New Funding Opportunity for Tinnitus Research / Investing in Tinnitus Research

[EddyLee]

I think most T patient who has totally habituated and their life no longer affected by T will still want to have their T totally disappear if given the option. So if we can have some new funding option for potential T treatment/cure that is easier to donate (paypal?), more transparent (how the money is use), very specific (for which particular research), rewarding (early access) and etc etc and then we could make them aware about it then i would say most will donate. They could accept $5 and if 10% of world's T population donates what will be that amount!?

Maybe it will fail initially but if keep trying one day it will success. 10 years ago if someone did a kickstarter type of funding for a game he will fail miserably. As time goes by many impossible will become possible. Just like cure for T, there is no impossible in this world!

The story goes like this, a topic in tinnitustalk has inspired some upper management from some T organization. They experimentally try a kickstarter like funding. First time they failed due to lack of experience to run such campaign. Second time they failed again due to lack of awareness. Third time's the charm as they are more experience, run the campaign better and thanks to previous failures they are being made known but various media reporting their failures. Failure is the mother of success！

 

[cmurem]

When a website puts the researches one under the other and makes columns as "rate", "donate", "amount targeted", "donations collected", etc. i will donate to one of the most promising for me. When i look at the donation page of ATA i find it complex and not meet the mindset of donators or sufferers.

 

[jes]

I think the Money goes in the pockets of some fat amerikans.
Better give the tenner to hutson and his team.

 

[James White]

Hi guys,

I was reading a few topics on companies who aim to develop new compounds or technologies to help tinnitus or hearing loss.

I was thinking: What does it mean to invest in these companies ?

I want to go straight to the subject : how much money is considered investing ? How does it work ?

Are we, as a community, strong enough to consider investing as a "side effect" of this beautiful forum ?

What are you views on it ?

 

[daedalus]

Are we, as a community, strong enough to consider investing as a "side effect" of this beautiful forum ?

Tinnitus sufferers invest very little in research as a whole. Unfortunately. Matteo De Nora has individually founded for 12 million of research. There are startups out there but i don't even know if they are open to small private investors.

I give a small yearly sum to the ATA, it is my drop of water in the ocean.

 

[Champ]

I have always been a fan of a Kickstarter style crowd funding plan and partnering with a company that's working on permanently annihilating chronic tinnitus.

 

[Erlend]

TinnitusTalk should crowdfund an investment in Auris Medical (am-101)

Let's say the stock goes up 300%

If I invested £200 I now have £6000 (i think lol) which would be cool. If 100 members paid £200 each it should be enough money that they accept it as an investment.

 

[Hudson]

You could always email Thomas Meyer and ask him.... as I did, to which he replied no.

They have no plans of any kind of IPO until after their first product launches.

 

[matthew heafield]

If we grouped together and decided on whats the best area to invest in, I would be more than will to invest money.

In all honesty we would need 100,000 at least for a company to take any investment from us small people seriously

 

[marcp]

If we grouped together and decided on whats the best area to invest in, I would be more than will to invest money.

In all honesty we would need 100,000 at least for a company to take any investment from us small people seriously

I would be glad to invest in a company that was serious in finding a cure for T. Matthew I like the idea of us grouping together and investing in our health!

 

[matthew heafield]

If every member of this forum was to donate £10, $10 or €10 depending where your from I bet the would be a very nice sized cash pot that we could invest in which area we thought was most promising

 

[briano]

I am a new member and I am just beginning my research. If the group can decide and agree on one place to donate, I would be interested in checking it out. I'd rather have all the money go to one place and make a difference than split it 5 ways and not really help.

 

[matthew heafield]

We had a good discussion going on about investing in tinnitus research (and funding it therefor) earlier back in September, with good points from several people, so I merged the two threads.

What think we should do about starting group to raise money?

 

[marcp]

I am up for that !

 

[NikoD]

Finally. A crowd sourced project to treat an ear related defect!

Have been hoping to see or start something like this for a while. I hope this will spread to other fields and ear related diseases like Mineres disease, Sensor neural hearing loss.

This way, the funders (us!) can have an influence and say on who works with researching solutions for these problems. Rather than leaving it up to Pharma to decide if a drug would make financial sense and be beneficial to their stock holders or an institute set-up to seek funding over a long term period only to satisfy other objectives.

Don't get me wrong - Good is probably being done but knowing these initiatives rely on long term funding to stay in business worries many to say the least. We need greater transparency.

A big step towards sincerity.

Actually i do not pay any attention to the researches which are about hearing devices or medications for manupilating the brain to reduce T. I would rather to support researces which aim to repair the tissues and solve the problem from the root cause.

Well said.

 

[bill 112]

I know that everyones life on this forum has been affected by T and H someway or another and that we all dream of that glorious feeling of silence that has eluded us for so long.As we all know the T community arent perticularly taken seriously by people or health care professionals alike were just told to live with it and that is unacceptable to a T sufferer!¡Here in Ireland there are always fundraising days for cancer,arthritis which are very worthy causes and as we all know still there is no cure..but the treatments have come along leaps and bounds due to huge funding and research.Recently I was talking to a lady who has suffered with arthritis for many years in her knees and found it very hard to walk and was told to live with it back when she was diagnosed.She had recently gone for a treatment on her knees which involved having injections into her knees twice a month for five months and she considers herself cured!¡She even participates in mini marathons which is amazing considering she could barely walk a few years ago.But my point is there has never been a fundraising day for T in Ireland and there probably never will be so I started fundraising nothing like fundraising days but something simple.I have a bucket and anytime somebody calls round they throw a few a cents or even a few euro into the bucket I throw in 10 euro every week and youd be amazed how quickly it adds up!¡So was just wondering would any members be up for doing this to help research find a cure we all know research is very underfunded and any donations will bring the cure closer....

 

[tomytl]

I am totally agree with you. If we could make here some fundraising would be exciting.
Then every 10'000 we reach, we donate it to a institution or a lab.
We have just to start it. Maybe there is a good plattform to do and integrate here. I don't know?
I mean, if everybody or some of us would throw in some Dollars/Euros/SwissFrancs ;-)
we could really make a difference.

 

[katriina]

I have already told that I would be happy to donate money for this, but I don't have a clue to whom should I donate it!??? I would like it very much if in here TT we could make some donating thing and then end of every month we could see the number we have collected and then we donate it etc?

 

[Stina]

I have already told that I would be happy to donate money for this, but I don't have a clue to whom should I donate it!??? I would like it very much if in here TT we could make some donating thing and then end of every month we could see the number we have collected and then we donate it etc?

Project Chicken: https://hearinghealthfoundation.org/donate

 

[nills]

Honestly, I think we can all use our money for the upcoming treatments they are inventing as we speak.. so I don`t feel guilty not wanting to donate to much personal money. However I do have my own dreams and ideas how to help the research. Some of them involve marathons, others crossing Europe on foot from Sweden to Spain... Maybe we can share ideas and ignite a fire in others to do something? it does n`t have to be right this moment, research will continue for years ... so let that little flame burn, maybe one day it`s a bushfire spreading wildly

 

[tomytl]

Honestly, I think we can all use our money for the upcoming treatments they are inventing as we speak.. so I don`t feel guilty not wanting to donate to much personal money. However I do have my own dreams and ideas how to help the research. Some of them involve marathons, others crossing Europe on foot from Sweden to Spain... Maybe we can share ideas and ignite a fire in others to do something? it does n`t have to be right this moment, research will continue for years ... so let that little flame burn, maybe one day it`s a bushfire spreading wildly

Hi Nills,

yes you are right, nobody should be feel guilty not donating. It's always also a point of budget and and.
Many of us spent a lot money on treatments, probably some can't really work anymore, so I totally understand
people not to donate. I just mean, if here would be a collection and then someone could give the amount
to a researcher, which actually might give some updates, it would be some kind of positive thing.
How many times I spent money for stupid parking fees, so I would better donate to a researcher.

 

[daedalus]

You can donate to the TRI: http://www.tinnitusresearch.org/en/foundation/donation_en.php The Tinnitus Research Initiative is an organisation dedicated to pioneering research in tinnitus. Exactly what we need.

There is also the ATA: https://www.ata.org/involved/donate_secure.php

The ATA invests in research and also does advocacy. Advocacy is very important to get public funding for tinnitus research since private funding is unsufficient.

Each year they organise fundrasing events. I usually make a thread for their annual "tinnitus walk for a cure".

 

[bill 112]

The way I look at it is the government will probably never properly fund research its much too easy for them to throw billions into disability to shut people up!¡But with a community as good and as passionite as this its possible to make a huge difference to research on T and H.The hearing restoration project gives a timeline of 10 years for a cure with more funding that could be halved....wouldnt that be exciting

 

[katriina]

I'm just waiting here that I hit lottery jackpot and then I could give couple millions for research How awesome it would be If someone with tinnitus would win the lottery and then put most of the money to tinnitus research...

 

[bill 112]

The euromillions is next week 120 million euro or something like that....get buyin those tickets

 

[valeri]

Imagine people if every person with t gives just $1, finding cure would not be so impossible.
In USA that would be over $50 mil.
WOW!!!
Imagine the rest of the world!
Just a thought!

 

[tomytl]

Hi valeri,

I guess it's not just about money.... in the last 10 years there have been an increase of
many lab's and companies doing research in the field of hearing loss/ tinnitus.
At least it would be a huge market.. but solid research on how we hear is needed to
develop a causal good drug. Hearing or hearing disorders aren't fully understand at the
molecular level.

But I had once exactly the same thought,
it's maybe a given dream because this suffering is hell of hell's hell.

 

[borris]

Imagine people if every person with t gives just $1, finding cure would not be so impossible.
In USA that would be over $50 mil.
WOW!!!
Imagine the rest of the world!
Just a thought!

Anyone with T would give allot more then $1 I'm sure I would

 

[valeri]

Borris same here
I was thinking more along the lines of funding research and finding a cure.
Since they all blame lack of funds imagine how much money this would generate!

 

[Leah]

Anyone with T would give allot more then $1 I'm sure I would

Me too!!