New Stem Cell Transplantation Method Restores Damaged Auditory Pathways

[Mario martz]

@Mario martz ive been doing that... I think I call or e-mail at least 3 stem cell clinics a day. I want them to know there is a market for us!!!! We still have a voice and I intend for us to be heard.

Thank yoy for doing that, everytime you push a door for yourself,
you are also helping me and a millions of others

 

[Ears Hurt]

I'm encouraging everyone else to do the same!!!

 

[Mario martz]

I'm encouraging everyone else to do the same!!!

i will!, i just need to find the way to get an email from someone in Kyoto university

 

[Ears Hurt]

@Mario martz inquiry e-mail is inq@ent.quhp.kyoto-u.ac.jp

 

[whiskeykonteq]

I found here: http://www.c-a-network.com/pdfs/240186 SHHH.pdf story from Australian guy Francis L. Sounds very encouraging:

Personal Experience of a Stem Cell Recipient
Francis

I was interested in the possibility of stem cell treatment for my hearing loss and did most of my research on the internet. There are no stem cell treatment clinics in Australia, so had to look at overseas ones. After researching my options I decided on Cryocord in Malaysia, who specialise in taking women's afterbirth after childbirth and freezing it to use as a source of stem cells in the future, for the child. Cryocord appeared to me to quite professional and honest. There are many places that do stem cells, but you need to be careful who you pick. The place that Chloe Sohl used was too expensive and difficult to communicate with. Places in Mexico looked dodgy. A place in China would not follow my protocol. One place advertised itself as being in Germany, but the email response that I got was from Poland or somewhere similar. Many places do bone marrow derived stem cells, but not adipose (fat). My hearing improved by about 20-25db but there are no guarantees, it may work for you or it may not. The younger you are, it seems the more likely it is to work. You can ask them to remove as much fat as you like by the way, within reason. I just got 1/2kg removed, as I was not that bothered by being a little bit overweight. Bone marrow and other sources of stem cells can be used, but the advantage with adipose derived stem cells is that you can get a high volume easily, around 30 - 50 million. This quantity can be expanded (multiplied) more easily. When you expand stem cells, there are some limits to the amount that can be done without introducing other problems. The stem cells need to be analysed to check that no bacteria have been expanded as well, before use. Cryocord give you a copy of the report in which this is demonstrated. So on your first visit you will get liposuction, which takes about 1.5 hours as an outpatient. Use as little pain killer as possible as this may have an effect on the stem cells. Your stomach will look like a horse kicked you for the next week. The stem cell company will then expand (multiply) the stem cells which will take 1.5-2 months. On the next visit, you will receive 200 million stem cells intravenously every 5 days, 3 times in a row (1 round). Get them to store your fat in case you want another round, which should be done not less than 6 months after the first round. If they store your fat, you will not need liposuction again. You need to carry earplugs as well and wear them on the aircraft going home as the new growing hair cells are delicate. I wore sound cancelling headphones as well and plugged these into the aircraft's video system. Avoid people shouting close to you, loud music etc. No smoking or drinking. Keep caffeine to a minimum, as this shrinks blood vessels and reduces blood fl ow to the cochlear. You should notice the results within two months, and further minor results two–three months after this. If you get it done, I recommend taking two Ginkgo Biloba a day while having stem cell treatment (Blackmore's Ginkgo 2000 is good). This increases blood fl ow to the cochlear. I know that these work as if I do not have one a day, my hearing is worse. I also took N-Acetyl Cysteine (NAC), which is an antioxidant and helps protect the hair cells against stress caused by loud noise. To develop hair cells used to listen to high frequency sounds, I listened to high pitched music at a very low volume, so I had to strain to hear it. I also listened to the TV at very low volume after the treatment. This helps with speech discrimination, i.e. you do not want to just hear speech with increased volume, you want to be able to make out the words.

 

[Sasja]

Seems like the research in the field of stem cells is making progress, this one is regarding the Spiral Ganglion Neurons:

http://www.ncbi.nlm.nih.gov/pubmed/27021700
2016 May 15

"Spiral ganglion neurons (SGNs) are usually damaged in sensorineural hearing loss. SGN-derived neural stem cells (NSCs) have been identified and proposed to differentiate into neurons to replace damaged SGNs. However, it remains obscure whether SGN-NSC-derived neurons (ScNs) are electrophysiologically functional and possess the capability to form neural connections. Here, we found that SGN-derived cells demonstrated NSC characteristics and differentiated into SGN-like glutamatergic neurons. Neurotrophins significantly increased neuronal differentiation and neurite length of ScNs. Patch clamp recording revealed that ScNs possessed SGN-like NaV and HCN channels, suggesting electrophysiological function. FM1-43 staining and synaptic protein immunofluorescence showed ScNs possess the ability to form neural connections. Astrocyte-conditioned medium was able to stimulate ScNs to express synaptic proteins. These data suggested that neurotrophins are able to stimulate postnatal SGN-NSCs to differentiate into functional glutamatergic ScNs with the capability to form synaptic connections in vitro."

 

[Mario martz]

@Mario martz inquiry e-mail is inq@ent.quhp.kyoto-u.ac.jp

didnt work :/

 

[Ears Hurt]

@Mario martz Well that isn't good. Maybe try this one from the Kyoto site.

but this is the admissions e-mail.

 

[Mario martz]

@Mario martz Well that isn't good. Maybe try this one from the Kyoto site.

View attachment 10670
but this is the admissions e-mail.

thanks, ill give it a try!

 

[Ears Hurt]

@Mario martz let me know. The website has a ton of contact information but it's not logical on who to contact.

 

[Mario martz]

@Mario martz let me know. The website has a ton of contact information but it's not logical on who to contact.

Yes! hahah and hard to read XD

 

[Ian Mac]

I had vestibular nueritis and now have nerve damage tinnitus. You want to know what nerve damage sounds like? He'll like three birds fighting over a morse code machine. Bee bee beer- weee wee we- meeee me me beeee wee be we me wee bee wee

 

[Ian Mac]

I especially need auditory nerve regeneration and hair cells because I have the normal noise induced T (which is baby cake compared to nerve damage T)

 

[Ian Mac]

Baby.. Cake..

 

[Beste]

thanks, ill give it a try!

Did it work? I also want to send them mails.

Do you know what I am most pissed off about T sufferer community. We just sit and suffer. I know many people could not so anything more than it since ten years ago there was no information about tinnitus is caused from over excited neurons in the brain. But now we know where the damage is and the cause. We even find a a way to create a reduction in T for temporary period with retigabine. Why are we still waiting? We are more than 13K people here. We CAN make our voice heard. We need to come together and move.

 

[Mario martz]

Did it work? I also want to send them mails.

Do you know what I am most pissed off about T sufferer community. We just sit and suffer. I know many people could not so anything more than it since ten years ago there was no information about tinnitus is caused from over excited neurons in the brain. But now we know where the damage is and the cause. We even find a a way to create a reduction in T for temporary period with retigabine. Why are we still waiting? We are more than 13K people here. We CAN make our voice heard. We need to come together and move.

This is how i see things too, the problem is that most people get used to this bully.
and stop worrying.... then habituates..... lives pretty good for a few years until another loud/med episodes.
it becomes louder, and then they habituate.

i dont have no problem about it, i think is great.
but thats is the reason why we dont have a cure.

we need to think of something, send more emails, create a campaing, do whatever it takes to let them know we have a condition and we need to get treated.


i totally feel the same way.

 

[Beste]

This is how i see things too, the problem is that most people get used to this bully.
and stop worrying.... then habituates..... lives pretty good for a few years until another loud/med episodes.
it becomes louder, and then they habituate.

i dont have no problem about it, i think is great.
but thats is the reason why we dont have a cure.

we need to think of something, send more emails, create a campaing, do whatever it takes to let them know we have a condition and we need to get treated.


i totally feel the same way.

Yes. I do agree. But I wonder how to get together. Do you have any idea?

 

[Penate]

I'm being saying that for long time,last year I try too hard make a campaign send i mails too the White House bot nobody Leasent. Go to I mail to the White House you can see my thread.

 

[RB2014]

Did it work? I also want to send them mails.

Do you know what I am most pissed off about T sufferer community. We just sit and suffer. I know many people could not so anything more than it since ten years ago there was no information about tinnitus is caused from over excited neurons in the brain. But now we know where the damage is and the cause. We even find a a way to create a reduction in T for temporary period with retigabine. Why are we still waiting? We are more than 13K people here. We CAN make our voice heard. We need to come together and move.

Many people when they first get it feel just like you do. We go out and try some ideas, do some fundraising efforts, raise awareness, write emails. I even emailed the Bill Gates foundation with no response. Eventually it goes nowhere. People will sympathize with you, but it just doesnt get very far. Eventually, you will either get used to it, or habituate, or both and life will go on and as Mario said the cycle repeats itself.
I am at the point where I can't even let myself feel emotion since that makes it worst once you do habituate. This forum has 3 groups that you can join if you want to help. They try and do some of these things as a combined group. I might suggest you join them and it will help you feel better and help accomplish some of the goals you want to do. They have team awareness, if that is your goal.
At the end of the day though you just have to get better yourself. No one is going to be able to help you, but you and of course all of us on this forum that can offer our experiences and support.
Right now the key to getting better is to read the success stories and see what people have done to manage T. If can get so soft you can barely hear it, or so loud that it sounds like a jet engine. That part is up to you. I can tell you though that if you do get to the point where it is so soft that you can barely hear it, it becomes very very manageable and generally people can forget they have it for most of the day. I won't say this is the ideal situation, but its the one that you will eventually come to accept. Also see the fundraising and awareness section. Many ideas have already been tried and there are also companies working on solutions for us.

 

[Ian Mac]

There is such thing as Tinnitus that fluctuates, fast, sounds like crickets and birds. This is a whole new ball game you never want experience. You think volume is the only variable? Like it's just about whether Tinnitus us loud or soft? That's baby foo foo tinnitus. Yes I have loud constant ringing in both ears and that's nothing. Explain how do I get rid of the bird in my right ear, the high pitch jingling noise, and how do I get the morse code machine to stop beeping? Like I care about volume I've got multiple dimensions of fluctuating vibrating chirping beeping sounds ripping through my consciousness every second. Luckily they make hearing aid maskers for people with suicidal truely severe T (not just annoying white noise/ old tv static sound) I'm talking about Tinnitus that is different and changing and fast twitchy like my tinnitus is trying to form words and talk with these bird noises and crickets and the mosquitos buzzing in my right ear.

 

[Mario martz]

Any news on this?

 

[Nick Pyzik]

Decreased Speech-In-Noise Understanding in Young Adults with Tinnitus

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4923253/

Uploaded online on June 28th, 2016.

 

[bill 112]

I'm loving this thread,a lot of like minded individuals which I like.

Listen I done the whole habituation thing,3 times in fact only to constantly and consistently have my world repeatedly flipped upside down because of an unexpected noise.I'm done living with it,been 6 years of pure heartbreak and sorrow as I watch my life and everything in it disappear in front of me not to mention the lack of a worth while future that simply doesn't exist for me anymore.

The last few weeks however have been amazing,and what I mean is my friends and local community have seen my true suffering and don't think I deserve it,I've become somewhat of a topic here in my town as people don't want to see me suffer and it does bring a tear to your eye it really does.Me and my father went out of our way to help a lot of people when they needed it most and now it seems everyone is returning the favour and want to help pay for my Stemcell treatment,hence why I'm rigorously researching my options as of late.

I'm done playing this game of winning and losing,I want to beat this game once and for all no matter what the cost.This research is just inspires more hope inside me to keep pushing,I may be getting a bit ahead of myself but I do believe good things are coming and sooner than we think.

 

[Ian Mac]

Fuck George Bush we could have the cure by now if stem cell research was legal.

 

[bill 112]

Fuck George Bush we could have the cure by now if stem cell research was legal.

If Trump pulls the same stunt I will personally stick that wig of his straight up his shit pipe.(Assuming he wins yada yada yada)

 

[Kane Moffat]

Fuck George Bush we could have the cure by now if stem cell research was legal.

Can you imagine having the stem cell technology of 2026 right now!? Not all of us would be cured but at least the phrase 'a few decades' could be replaced with '5-10 years'.

@bill 112 , so what are your options at the moment, i take it your goal is to repair the auditory nerve as you said before your hearing was okay?

 

[Ian Mac]

Try 100 years, this shit is too complicated we will never figure it out.

 

[Champ]

Try 100 years, this shit is too complicated we will never figure it out.

Bullshit. Our knowledge today is orders of magnitude greater than it was 50 years ago. Back then we were just discovering stem cells existed. Now we are manipulating them and rebuilding damaged tissue and organs.

Don't give me that crap that its too complicated. You don't understand it yourself to the degree these researchers and doctors do. What qualifies you to say its too complicated then?

 

[cornelius]

If Trump pulls the same stunt I will personally stick that wig of his straight up his shit pipe.(Assuming he wins yada yada yada)

Among his electorate there are many war veterans, and among those veterans, there are many wounded veterans waiting for cures for debilitating injuries like hearing issues. And if his project is not only promises, an isolationist usa might focus more on new markets like regenerative medicine than too much in abroad weaponry / deployment. Regenerating the wounded soldiers for example, and therefore the civilians with the same issues as soldier's ear wounds. It's already sporadically the case for limb transplantation and bionics to name a few.

 

[ruben ruiz]

Corneleus is correct. They could have found a cure in the past. At the minimum a relief. There in with the pharmaceuticals. Some releif besided benzos. Theres 50,000.000 tinnitus patients some 25 chronic. There taking benzozs and getting sicker. The US Gov. doesnt care. There currently taking medicinal Marijuana away from the public saying the THC and CBDs are garbage then on the other hand they just appropritate 70,000.000 to study Marijuana as a medicine. Over one million Americans die every year from medicinal complications. Greedy pigs they dont care. Bless us our nation has forsaken us. The greatest nation sure. The greatest are dying unnecessarily. Write to the gov put a mirror up to their face.