New University of Michigan Tinnitus Discovery — Signal Timing

[kelpiemsp]

@kelpiemsp People on here get tinnitus spikes due to caffeine, sugar, marijuana, etc... hypothetically speaking if any of these devices took someone's tinnitus completely away, do you think any of the above would create a spike or give you a very low tinnitus until the spike is over?

I noticed spike resilience. My tinnitus quit being reactive, and still isn't anymore.

 

[Mathew Gould]

I noticed spike resilience. My tinnitus quit being reactive, and still isn't anymore.

Thanks that's good news then. Over here waiting patiently most days. I'm glad I got hobbies.

 

[Aklara319]

They are all working on treating tinnitus through the same avenue (bimodal stimulation to calm firing neurons). However, that's not to say that they are all working with the exact same set of parameters to get those neurons to calm down. Each team is testing efficacy by testing different settings. For example, harsher or lesser shocks, where is the best place to shock, what sounds played give better results, how long should the treatment be applied each day, how long overall should the treatment be followed, etc.

It is great that this is being tested by different groups. That's how progress and the BEST setting can be found if bimodal stimulation becomes a viable treatment.

As of now these are the groups testing this theory:
- University of Michigan (Susan Shore)
- University of Minnesota (Hubert Lim)
- McMaster University (Larry Roberts)
- Neuromod (Hubert Lim along with others)

Im excited to see the results of these trials in the coming years. I really respect @kelpiemsp because he has always struck me as a guy that a) has a severe tinnitus sufferer like us, and b) wouldn't fall for quack cures/treatments.

Him saying his tinnitus went down gives me hope that this will become a viable treatment (however I'm a tinnitus realist so I never EXPECT a treatment). Time will tell.

I met with Larry Roberts. It's not a separate project. He's working with Susan Shore and the Michigan device. I was assessed, spoke with him for an hour, and am on standby for a future trial (my tinnitus is too new). Flies under the radar, but he basically founded this line of research. Also doing a study on spontaneous remission <1 year and young people. You can listen to his interview with the ATA on their podcast:
https://www.ata.org/podcasts/episode-4-ringing-ears-and-neuroscience-tinnitus

 

[Bambam0]

I noticed spike resilience. My tinnitus quit being reactive, and still isn't anymore.

@kelpiemsp Did you have fullness before? If so did that dissipate or lessen post trial? Thanks!

 

[kelpiemsp]

@kelpiemsp Did you have fullness before? If so did that dissipate or lessen post trial? Thanks!

I've had continuous, unrelenting fullness in both ears for 15 months now, unfortunately.

 

[Bambam0]

I've had continuous, unrelenting fullness in both ears for 15 months now, unfortunately.

Do you think that's more of an ETD issue? I guess fullness w lessened T is better than the other way around!

 

[jmasterj]

I found a Reddit thread that a user posted that he/she recently visited Susan Shore. Link

 

[Fabrikat]

posted that he/she recently visited Susan Shore. Link

It's bizarre that they told this person that they've not heard of Neuromod in Ireland. I don't get it! Dr. Rauschecker says he's never heard of Susan Shore's device. Susan Shore's people say they've never heard of Neuromod. Yet they all work in the same field and go to the same conventions. Very strange!

 

[spedgas]

It's bizarre that they told this person that they've not heard of Neuromod in Ireland. I don't get it! Dr. Rauschecker says he's never heard of Susan Shore's device. Susan Shore's people say they've never heard of Neuromod. Yet they all work in the same field and go to the same conventions. Very strange!

I don't believe them. There is no way they are this clueless about others in their research field. If they are then they are being irresponsible.

 

[Manny]

It's bizarre that they told this person that they've not heard of Neuromod in Ireland. I don't get it! Dr. Rauschecker says he's never heard of Susan Shore's device. Susan Shore's people say they've never heard of Neuromod. Yet they all work in the same field and go to the same conventions. Very strange!

Maybe the booths at the conventions only talk to the convention attendees, but not to one another...still weird!

 

[ee9892]

It's bizarre that they told this person that they've not heard of Neuromod in Ireland. I don't get it! Dr. Rauschecker says he's never heard of Susan Shore's device. Susan Shore's people say they've never heard of Neuromod. Yet they all work in the same field and go to the same conventions. Very strange!

Even with what was said in that reddit post... I highly doubt susan shore isnt aware of neuromod.

 

[GregCA]

Maybe the booths at the conventions only talk to the convention attendees, but not to one another...still weird!

You don't need to attend conventions to know what's going on in the field. Perhaps this was required in the pre-internet era, but not anymore.

 

[Bndsmheowqhe]

I don't believe them. There is no way they are this clueless about others in their research field. If they are then they are being irresponsible.

It's laughably dishonest.

 

[Aklara319]

That Reddit user didn't meet with Susan Shore. He/she met with Dr. Larry Roberts at McMaster University.

 

[urgentresearch]

U-M just posted.

 

[annV]

Ringing in the Ears: Where is That Sound Coming From?
A U-M expert in tinnitus, or ringing in the ears, discusses progress made in resolving the common problem.

https://healthblog.uofmhealth.org/health-management/ringing-ears-where-sound-coming-from

 

[Contrast]

It's bizarre that they told this person that they've not heard of Neuromod in Ireland. I don't get it! Dr. Rauschecker says he's never heard of Susan Shore's device. Susan Shore's people say they've never heard of Neuromod. Yet they all work in the same field and go to the same conventions. Very strange!

If that's the case then I'm pretty sure they don't know about MPP either.

Something's fishy.

How do we know they go to the same conventions? What if it's just Jastreboffians spewing TRT and CBT dogma at the conventions.

The important research from Susan Shore and the Neuromod team is obviously going to be neglected by those kinds of people.

 

[Markku]

How do we know they go to the same conventions? What if it's just Jastreboffians spewing TRT and CBT dogma at the conventions.

The important research from Susan Shore and the Neuromod team is obviously going to be neglected by those kinds of people.

They do go to some of the same conventions. See for example Tinnitus Research Initiative's May 2019 conference in Taipei:
https://2019.tri-conf.org/index.php/conference/tentative-program

Keynote Speakers Topics:

1. Prof. Nathan Weisz: Auditory prediction processes/Corticofugal processes as seen by MEG
2. Prof. Belen Elgoyhen: Pharma treatment in Tinnitus
3. Prof. Antonio Lopez-Escamez: Genetics of tinnitus and Meniere disease
4. Prof. William Martin: Challenges facing tinnitus care in Asia
5. Prof. Susan E. Shore: Brainstem mechanisms in tinnitus

And from the Invited Speakers list you can find Berthold Langguth (consultant neuropsychiatrist of Neuromod), Dr. Josef Rauschecker, Richard Salvi, Richard Tyler and many others.

 

[Contrast]

They do go to some of the same conventions. See for example Tinnitus Research Initiative's May 2019 conference in Taipei:
https://2019.tri-conf.org/index.php/conference/tentative-program

Keynote Speakers Topics:

1. Prof. Nathan Weisz: Auditory prediction processes/Corticofugal processes as seen by MEG
2. Prof. Belen Elgoyhen: Pharma treatment in Tinnitus
3. Prof. Antonio Lopez-Escamez: Genetics of tinnitus and Meniere disease
4. Prof. William Martin: Challenges facing tinnitus care in Asia
5. Prof. Susan E. Shore: Brainstem mechanisms in tinnitus

And from the Invited Speakers list you can find Berthold Langguth (consultant neuropsychiatrist of Neuromod), Dr. Josef Rauschecker, Richard Salvi, Richard Tyler and many others.

It boggles the mind to know some of them are not familiar with each other's research.

 

[kelpiemsp]

It boggles the mind to know some of them are not familiar with each other's research.

They are aware of the research, obviously. What they don't want to do is get into a situation where a layperson is asking them endless questions about research, publications, and devices. It would be hard to have a conversation with say, Dr. Shore. She has no idea what your area of knowledge is, what angle you are coming from, and how misinformed you are, or are not, about a certain topic. It just isn't worth their time.

 

[Contrast]

They are aware of the research, obviously. What they don't want to do is get into a situation where a layperson is asking them endless questions about research, publications, and devices. It would be hard to have a conversation with say, Dr. Shore. She has no idea what your area of knowledge is, what angle you are coming from, and how misinformed you are, or are not, about a certain topic. It just isn't worth their time.

I didn't know they have an elitist mentality, or at least you are claiming they do.

Can't they just politely decline questions from fans?

 

[kelpiemsp]

I didn't know they have an elitist mentality, or at least you are claiming they do.

Can't they just politely decline questions from fans?

It's not an elitist mentality. They just don't have time for normies. And by time, I mean that literally. Would you rather her work for a cure or spend her time discussing information which is freely available for anyone to read.

Also she did an episode on a podcast answering information and questions. If you have ever worked for a prestigious professor, you would know exactly how busy they are. In my department, when I was in grad school, the big names all had personal email secretaries, usually grad students. These emails from Lim or Shore that have been posted are not actually from Shore or Lim. That would be absurd.

 

[Mathew Gould]

@kelpiemsp I'm sure this was discussed, but I can't find it... When was the last time you used the device?? And tinnitus is still at or under 2.

 

[Jim51042]

Would you rather her work for a cure or spend her time discussing information which is freely available for anyone to read.

While I understand them not talking to the avg joe I just don't buy that they have been using time effectively. They have delay trials for years simply because they couldn't garner the necessary funding. Between 2010-2019 there have investor flush with cash ready to bet on even long shot gambles. It malpractice to fail to get investors if you have a product that as decent odds of solving a untapped and financial lucrative medical problem.

 

[kelpiemsp]

While I understand them not talking to the avg joe I just don't buy that they have been using time effectively. They have delay trials for years simply because they couldn't garner the necessary funding. Between 2010-2019 there have investor flush with cash ready to bet on even long shot gambles. It malpractice to fail to get investors if you have a product that as decent odds of solving a untapped and financial lucrative medical problem.

Shore works for a University. Free market economics does not apply.

 

[Jim51042]

Shore works for a University. Free market economics does not apply.

Very well then the "University system" does not work full stop.

 

[Fabrikat]

Shore works for a University. Free market economics does not apply.

That may well be true @kelpiemsp, but I would've thought Universities also like money in their accounts.

I'm dismayed that Prof. Susan Shore's work has not been grasped as a game changing technology and viewed as a huge potential money making enterprise for the University, much sooner.

Her progress has crawled along at a snail's pace, needlessly really, when it could have been licensed long ago and facilitated into the commercial sphere. That's also what Universities do with their inventions.

Sure, she and the University will get there eventually, but others may beat them to the marketplace, at a loss to the University. It's a pity it's taking such an unnecessarily long time.

 

[PDodge]

I met with Larry Roberts. It's not a separate project. He's working with Susan Shore and the Michigan device. I was assessed, spoke with him for an hour, and am on standby for a future trial (my tinnitus is too new). Flies under the radar, but he basically founded this line of research. Also doing a study on spontaneous remission <1 year and young people. You can listen to his interview with the ATA on their podcast:
https://www.ata.org/podcasts/episode-4-ringing-ears-and-neuroscience-tinnitus

Are you in TO? If you don't mind me asking. Feel free to PM me as well. Thank you!

 

[dayma]

That may well be true @kelpiemsp, but I would've thought Universities also like money in their accounts.

I'm dismayed that Prof. Susan Shore's work has not been grasped as a game changing technology and viewed as a huge potential money making enterprise for the University, much sooner.

Her progress has crawled along at a snail's pace, needlessly really, when it could have been licensed long ago and facilitated into the commercial sphere. That's also what Universities do with their inventions.

Sure, she and the University will get there eventually, but others may beat them to the marketplace, at a loss to the University. It's a pity it's taking such an unnecessarily long time.

Having medical solutions produced and published by Universities is INCREDIBLY lucrative. You can Google how it works and see past success for universities like CASE and MIT.

 

[Pero1234]

STAT Madness, is a bracket-style contest to find the best innovation in science and medicine. The winner gets a write-up about their research at STATNews.com.

"The finalists were selected from a record 160 entries submitted by universities, medical schools, and research centers across the United States."

Susan Shore's device is in the top 4 right now! The semi-final!
https://www.statnews.com/feature/stat-madness/bracket/

Wouldn't it be great if Dr. Susan Shore's research / device was the winner!? This could probably get more funding for her tinnitus research and a whole lot of awareness!

https://mmheadlines.org/2019/03/your-vote-could-help-michigan-medicine-scientists-win/

This is a great way to create awareness for our cause. But competition is getting stronger! So we hope more of you will join us in voting.

Just follow these voting instructions:



PS: You can vote as many times as you want every 5 minutes.

To keep this research thread clean, please refrain from writing your comments on this competition here, please use the dedicated awareness / fundraising thread instead:

https://www.tinnitustalk.com/thread...ner-gets-a-write-up.34021/page-10#post-426973

(Thanks @OnceUponaTime for taking the lead in the voting thread and writing most of this post)