New University of Michigan Tinnitus Discovery — Signal Timing
- Thread starter Hudson
- Start date
Member
I personally never believed in a device like this working anyhow, but I'm certainly less studied than others on the science. The point is though, we could be a hell of a lot more productive on any kind of results here with this device. I suppose that's what Lenire said and they just went for it.
nicole76
Member
- Apr 23, 2019
- 41
- Tinnitus Since
- 07/17 / Worsened 04/19
- Cause of Tinnitus
- One-Sided Hearing Loss (of unknown origin)
I have such mixed feelings on this topic. On one hand it seems Lenire launched too soon as I don't have much confidence it works all that well. (That being said, if it was available in the US I'd still try it out because what other option is there?)
On the other hand, Susan Shore is taking way too long and it's making me kinda mad because I think it would work better than Lenire and I would definitely choose it over Lenire if she ever releases it. I think she wants to be certain it works but at this rate it'll be another ten years of trials. By then maybe FX-322 will be available and working and she will have missed her chance! Although I'm not really sure she cares about making money on this. Plus, maybe it would still be a valid treatment if there's no hearing loss.
I don't know. Those are my garbled thoughts on the matter.
- Feb 11, 2019
- 801
- Tinnitus Since
- 01/2014
- Cause of Tinnitus
- Headcold/Flu
To Nicole76:
Although everyone complains about Chicago: the atrocious weather, dangerous levels of crime, property taxes, general cost of living, congestion, etc. (although I actually live in Oak Park, an insignificant difference).
Still, given the World Class Medical Centers at the U of C and Northwestern (among others), whenever a new medical treatment is released I have noticed that it is oftentimes first available here.
One of Dr. Shore's websites implied that it may be released next year (but I am not sure about this).
My Audiology Group is always notified ASAP of the availability of new treatments.
I have one sided hearing loss as well; imagine not having tinnitus as a factor in your life my December 2020.
Although everyone complains about Chicago: the atrocious weather, dangerous levels of crime, property taxes, general cost of living, congestion, etc. (although I actually live in Oak Park, an insignificant difference).
Still, given the World Class Medical Centers at the U of C and Northwestern (among others), whenever a new medical treatment is released I have noticed that it is oftentimes first available here.
One of Dr. Shore's websites implied that it may be released next year (but I am not sure about this).
My Audiology Group is always notified ASAP of the availability of new treatments.
I have one sided hearing loss as well; imagine not having tinnitus as a factor in your life my December 2020.
nicole76
Member
- Apr 23, 2019
- 41
- Tinnitus Since
- 07/17 / Worsened 04/19
- Cause of Tinnitus
- One-Sided Hearing Loss (of unknown origin)
That would be AMAZING! Tinnitus has seriously impacted my life. Now I'm dealing with other health issues too and it's all just too much for me. I'm highly sensitive and life the past seven months has been completely miserable to the point I've wished for death.
I'm in CA, as far from Ireland you can get in the US. I'm still waiting for my appointment email from Neuromod because even though it does not seem as good as Dr. Shore's device based on what we know so far, we also know it works for most. Have you read we have two people reporting bouts, even days of silence with the device?
I surely don't expect it to be that effective on everyone, including myself, but if it can just knock it down a good 10-20%, I would be happy with that, which it looks like is a reasonable expectation based on what we are seeing. That would be enough to make the wait for better treatments that much more bearable, the further refinement of their own device included.
FX-322 may or may not help with tinnitus. I'm happy they are officially looking at that now, and we all ponder that restoring hearing would fix our condition, but none of us know that for sure. The only things we are certain abiut that can reduce and even eliminate tinnitus at this time is bimodal neuromodulation.
We? Who is we? And on what basis? You're welcome to view it that way, but I just can't let statements like that go by without a challenge. Only Neuromod claims that it works for "most". When restricted to the user reports, it's not "most" even if you look at it with rose-colored glasses.
Do you have the link to the website that implied her device might be released next year?
The first time she says it is here in this ATA podcast.
She has also said it in emails recently this year.
If there is another website saying it too, I wouldn't mind to seeing it either. Everytime she hopes from what I've seen, she doesn't guarantee it.
You can live in your own reality distortion field but that won't stop me from calling out inaccuracies for the sake of others.
AfroSnowman
Member
- Jul 23, 2019
- 1,071
- Tinnitus Since
- 04/2019
- Cause of Tinnitus
- Nonnatural energy source
Without me having to go through this thread, do we have anyone here who is actively in her current study?
MRItechssuck
Member
I don't believe so. One member did a phase one, but now they require someone to live within 100 miles. I'm about double that, and I was denied.
My personal experience is that with improvement to my hearing my tinnitus reduced in volume. Got steroid injections in my ear after initial acoustic trauma. Had audiograms done before and after steroid injections. Had hearing improvement after injections. My tinnitus decreased in loudness during this same timeframe.
Let's hope it really was because of restored hearing and FX-322 does that to all of us!
MRItechssuck
Member
How long after the trauma does one need to get steroid shots?
My audiogram was symmetrical and the ent didn't think I lost any hearing from the trauma... so I could only convince him for prednisone.
- Dec 2, 2015
- 159
- Tinnitus Since
- 01/2002. Became worse 11/29/2015.
- Cause of Tinnitus
- Medication
I just got accepted into the trial. I won't be able to post anything about it until I am done with the whole trial. Which will be in about 7-8 months.
G
GoatSheep
Guest
Congrats and best of luck... yehhhh!
Quick question, is your tinnitus somatic? Can you change it with your jaw or neck?
Mine is not, and I recall this being a requirement... Thank you.
MRItechssuck
Member
- Dec 2, 2015
- 159
- Tinnitus Since
- 01/2002. Became worse 11/29/2015.
- Cause of Tinnitus
- Medication
That is awesome! Best of luck to you! I have a hunch the Dr Shore device is gonna be a winner!
MRItechssuck
Member
Maybe she does have plans to release the device next year and is just trying to keep our expectations low in case something comes up. Which is understandable...I feel like giving tinnitus sufferers a date to look forward to and then not delivering would deal some major mental damage to a lot of us.
AfroSnowman
Member
- Jul 23, 2019
- 1,071
- Tinnitus Since
- 04/2019
- Cause of Tinnitus
- Nonnatural energy source
And she is a researcher not a medical device company executive. She probably has a very good handle on when her field of expertise, but the whole bringing it to the market thing is probably a bit more of an unknown to her. That being said there must be a pretty robust administrative component at U of Mich to guide these things through to market.
I wonder why everybody is so hyped about this (regarding somatic tinnitus) as I would assume that most people have noise induced tinnitus. So it won't work for all these people, right? OK, maybe I'm just envious...
Because noise induced tinnitus is somatic most of the times. And studies say this can help.
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