Not Much Left (Not for Those Wanting to Feel Uplifted)

[Jkph75]

@Joek97006
If hearing aids made an improvement in your T, then how much more would regrowth from stem cells or advancements in hearing aid technology improve it further? Enough to take a little off of it? Maybe enough to get it down to quiet room level? You really don't know. There are people who wake up one day and find it gone. I've had it a little over a year. At first, I didn't know how I could go on. That was when it was much MUCH quieter. Now I have times where I totally forget about it. I don't mean that I can't hear it. I can hear it but my brain is focused on something else. I'm hoping that in time I will have longer periods of not focusing on it, even if it is 20xs as loud. Just keep thinking about your kids. I'd walk through fire for mine. I bet you would do the same. Hang in there.

 

[Lex]

I think "it's just noises" is a great way to think of it.

No, it's not just noises. And no, it's not a great way to think of it. Why? Because that's what doctors will think. Heck, who am I kidding? That's what they're already thinking. I've heard "It's just noise, you can learn to live with it" from several doctors in the last few months. If we sufferers also think that way, we're not going to get doctors to change their mindset. Worse, we're not going to get the cure or treatment we need. Or even the respect we deserve at the very least! People take peanut allergy more seriously than T.

I'm not saying we should stop living our lives. Not at all. I'm struggling, but I take baby steps to enjoy what I still can.

But for me it's not just noise. For me, it's a chronic illness/impairment that has put limitations on what I can do, and I'm just trying to cope because I don't want to waste whatever quality is left in my life right now.

Having said that, hang in there, @Joek97006! It's a tough ride but there are a lot of incredibly strong people here from whom you can draw inspiration.

 

[Joek97006]

I feel what Spiral is saying. People are saying we did nothing wrong so we shouldn't feel like a burden to others. For the T it self I would agree. But T changes us too. I act like an ass toward my family sometimes. My patience level is way down, I sleep all the time related the depression, and because I feel robbed of life, there are a host of other problems I put on my family. That being said I'm sure it would be more burdensome if I took my life.