Occasional Tinnitus Forever, Now Permanent

[kiwikel]

Hi,
I'm 17 years old and all my life, I have had occasional tinnitus. However, even though I was aware that it was there, my mother had told me that it was normal after a day of being exposed to lots of noise, so I didn't think much of it.
Recently, around January, I noticed that the sound had gotten much louder and that it wasn't going away. It's a loud, high pitched ringing. I then told my friends about my occasional ringing not going away, thinking it was a normal thing that everyone experienced regularly, and I panicked when I realized that it's not.
Of course, I researched my symptoms and got spooked, so I visited my doctor who told me I had Eustachian Tube Dysfunction. I did what he told me to do, yet the tinnitus is still there.
It keeps me from sleeping and focusing on work, and makes me feel very anxious. I've tried lots of "cures", and nothing seems to work for me.

Is there any research being done that I should keep my eye on? Is there any medicine being developed that looks promising?

 

[Bill Bauer]

Is there any research being done that I should keep my eye on? Is there any medicine being developed that looks promising?

Hearing Regeneration Trials

Spoiler

Frequency Therapeutics - FX-322
in Phase 1.5 (Results: December 2018)
Phase 2 (begin 2019)
Audion / Regain Trial
Phase 1/2 ongoing in the UK
Genvec / Novartis - CGF166
Phase 1/2 ongoing

Trials to begin in 2019 / Things to look out for in 2019

Spoiler

Neuromod (MuteButton)
launching their new device in January 2019 starting in Ireland, then Europe, then the US
results of their latest trial: 1H2019
Xenon Pharma - XEN-1101
Phase 2, expected to wrap up in 2nd quarter 2020
Frequency Therapeutics
Phase 2
Otonomy
1H19: OTO-313 (reduce tinnitus) Phase 1/2
1H19: OTO-413 (repairing synaptic damage) Phase 1/2
OTO-6XX (hair cell regeneration)
2H18: candidate selection
2019: Phase 1/2
University of Minnesota (device for tinnitus)
Phase 3 ?
University of Michigan (device for tinnitus)
perhaps updates on their currently ongoing trial
Estimated Primary Completion Date: September 2022
Estimated Study Completion Date: January 2023

Also, check out
https://www.tinnitustalk.com/thread...eone-else-who-has-tinnitus.26850/#post-307822

 

[GSC]

Hi,
I'm 17 years old and all my life, I have had occasional tinnitus. However, even though I was aware that it was there, my mother had told me that it was normal after a day of being exposed to lots of noise.
Recently, around January, I noticed that the sound had gotten much louder and that it wasn't going away. It's a loud, high pitched ringing.
Of course, I researched my symptoms and got spooked, so I visited my doctor who told me I had Eustachian Tube Dysfunction. I did what he told me to do, yet the tinnitus is still there.
It keeps me from sleeping and focusing on work, and makes me feel very anxious. I've tried lots of "cures", and nothing seems to work for me.

Is there any research being done that I should keep my eye on? Is there any medicine being developed that looks promising?

Look in the treatments and research thread, that's where I've been keeping my eye at. I'm sorry that this has happened to you. The slightly good news is that treatment could be on the horizon!! And also, keep prying and prodding your doctor about your ETD. Don't give up.

 

[Contrast]

Hi,
I'm 17 years old and all my life, I have had occasional tinnitus. However, even though I was aware that it was there, my mother had told me that it was normal after a day of being exposed to lots of noise, so I didn't think much of it.
Recently, around January, I noticed that the sound had gotten much louder and that it wasn't going away. It's a loud, high pitched ringing. I then told my friends about my occasional ringing not going away, thinking it was a normal thing that everyone experienced regularly, and I panicked when I realized that it's not.
Of course, I researched my symptoms and got spooked, so I visited my doctor who told me I had Eustachian Tube Dysfunction. I did what he told me to do, yet the tinnitus is still there.
It keeps me from sleeping and focusing on work, and makes me feel very anxious. I've tried lots of "cures", and nothing seems to work for me.

Is there any research being done that I should keep my eye on? Is there any medicine being developed that looks promising?

Do you have a history of noise exposure, loud music, headphones, cars?

 

[Lilah]

Hi,
I'm 17 years old and all my life, I have had occasional tinnitus. However, even though I was aware that it was there, my mother had told me that it was normal after a day of being exposed to lots of noise, so I didn't think much of it.
Recently, around January, I noticed that the sound had gotten much louder and that it wasn't going away. It's a loud, high pitched ringing. I then told my friends about my occasional ringing not going away, thinking it was a normal thing that everyone experienced regularly, and I panicked when I realized that it's not.
Of course, I researched my symptoms and got spooked, so I visited my doctor who told me I had Eustachian Tube Dysfunction. I did what he told me to do, yet the tinnitus is still there.
It keeps me from sleeping and focusing on work, and makes me feel very anxious. I've tried lots of "cures", and nothing seems to work for me.

Is there any research being done that I should keep my eye on? Is there any medicine being developed that looks promising?

What type of Eustachian Tube Dysfunction/symptoms do you have? What did the doctor tell you to do? For the time being, focus on getting enough sleep even if it means getting on a sleep aid (small dose). Taking a short break from work, if possible. I know this sounds hard, but keep telling yourself that tinnitus is not a threat.

 

[kiwikel]

Do you have a history of noise exposure, loud music, headphones, cars?

I've always loved music but these past years I've tried to be more mindful of how loud I played it because I felt like I was starting to lose some of my hearing. But before that, I would play it very loud. I've also went to a lot of concerts in the past years, the last one being in September.
I do think that it's partly my fault that I have tinnitus

 

[kiwikel]

What type of Eustachian Tube Dysfunction/symptoms do you have? What did the doctor tell you to do? For the time being, focus on getting enough sleep even if it means getting on a sleep aid (small dose). Taking a short break from work, if possible. I know this sounds hard, but keep telling yourself that tinnitus is not a threat.

Fullness in the ears, changes to my hearing (slight), sometimes feeling like my ears are plugged, my ears sometimes feel ticklish, sometimes a little bit of a pain/pressure and of course, tinnitus