Only One More Month Before My Tinnitus Is Cured

[Bam]

I did trial some in ear canal ones. I did hear better, but it did nothing for the tinnitus. I may try another type.

Yeah I'm trialing some at the moment. Useless to be honest. The T just squeals over the masking sounds at whatever volume I set them and the amplification is totally unnecessary for someone like me with minimal hearing loss and makes even my own voice sound tinny and loud. Another total con, but at least I can return them so worth a try I suppose.

 

[Telis]

Yeah I'm trialing some at the moment. Useless to be honest. The T just squeals over the masking sounds at whatever volume I set them and the amplification is totally unnecessary for someone like me with minimal hearing loss and makes even my own voice sound tinny and loud. Another total con, but at least I can return them so worth a try I suppose.

If you amplify the wrong frequency range it's useless. If your tinnitus and hearing loss sit at say 14khz, the hearing aids won't touch that, nor will any on ear tinnitus masking device.

 

[jay777]

Habituation is a substitute for learning to live with it, and now it's a treatment, who are you kidding?

 

[Bam]

If you amplify the wrong frequency range it's useless. If your tinnitus and hearing loss sit at say 14khz, the hearing aids won't touch that, nor will any on ear tinnitus masking device.

That's fact. That's why I've been conned royally.....again. These people are ruthless. Fucking thieves. Luckily I can return them. Shameless.

 

[just1morething]

That's fact. That's why I've been conned royally.....again. These people are ruthless. Fucking thieves. Luckily I can return them. Shameless.

I've never had much luck with hearing aids/maskers. Usually there is a dispensing fee for trying hearing aids. I thought mine was $300 years ago.

 

[Wolfears]

They sure want to sell me $5000 hearing aids, however.

Why so expensive?

I mean isn't hearing aid just an tiny amplification device?

I freely admit my ignorance on the topic of hearing aids, but unless I'm missing something that seems like a highway robbery.

It wouldn't really surprise me, if they were being made by the lowest bidder at some Chinese factory at the cost of about $50 cents per unit.

 

[Jazzer]

I have a simple method that helps me.

Every one of us with this wretched affliction needs to find practices that help.
'Hearing' my "T" and then going into a meditative state helps me on a daily basis, so much so, that I will never miss it.

I would like to pick your brains folks.
Is there anything at all that 'does it' for you?

 

[Greg Sacramento]

I'm always afraid in trying to explore friends tinnitus that post here because a sensitivity barrier can be broken.

@Jazzer You and I are older so that makes solving any physical problems that can relate to pathway tinnitus more difficult. From holding a weighted instrument for so many years, it's very possible that two pathways are involved with your tinnitus. This is taking in consideration to having direct noise played near your ear increasing your T. There are many case studies about this. I won't get into any complex physical medical explanations, but I would love to see a neck X Ray and hearing tests results.

@Bam I have read your introduction post that includes auto accidents. Only ten percent of those with any form of whiplash end up with permanent tinnitus even with minimal hearing loss. You are under 45 and I suspect that your neck has involvement with limited probability cause. A question that I always wanted to ask you is do have a lifetime history of ten speed bike riding? I would like to see neck X Rays from you as well.

 

[Jazzer]

I'm always afraid in trying to explore friends tinnitus that post here because a sensitivity barrier can be broken.

@Jazzer You and I are older so that makes solving any physical problems that can relate to pathway tinnitus more difficult. From holding a weighted instrument for so many years, it's very possible that two pathways are involved with your tinnitus. This is taking in consideration to having direct noise played near your ear increasing your T. There are many case studies about this. I won't get into any complex physical medical explanations, but I would love to see a neck X Ray and hearing tests results.

@Bam I have read your introduction post that includes auto accidents. Only ten percent of those with any form of whiplash end up with permanent tinnitus even with minimal hearing loss. You are under 45 and I suspect that your neck has involvement with limited probability cause. A question that I always wanted to ask you is do have a lifetime history of ten speed bike riding? I would like to see neck X Rays from you as well.

I understand your point about sensitivity barriers Greg - but not appplicable to me buddy.
My trombone was not heavy.
However, the delivery tube that becomes the bell lays just beneath my left jawbone, so bone conduction could certainly be an issue.
But if this is the case, it took years to develop and become apparent.

I was reading a post from @Lane this morning where he talked about the danger of taking prednisone.
In 1992 I had a severe attack of Sarcoidosis with attendant erythema nodosum, my blood calcium went up to 3.3 where it should have been 2.5.
Under X-ray my lungs showed all white with hypercalcemia - breathing at all was virtually impossible.
I was hospitalised for two weeks and prescribed 30 mgs of prednisone daily for 6 months.
(1,000 mgs each month!)
According to Lane, this makes hearing hypersensitive.
Your thoughts Greg ?

 

[Jazzer]

Chaps
When I first attended The Royal Throat Nose and Ear Hospital at King's Cross London I saw my first clinician.
I was in tears.
She asked me how I coped?
I said "all I currently have is stoical acceptance."
I sobbed.
This lovely young lady walked round to my side of her desk and gave me a big hug.
Have to say - she was pretty guys - real pretty!
So the visit was not a complete wasted journey!!

"Don't worry - we will not leave you there."
She drew diagrams and told me all about the amazing Jastrebof Habituation Method.

I have to tell you that right from the start I did not believe in it.
As I don't believe in:
the man upstairs,
Father Christmas,
or my fairy godmother.
(Have to say though that the tooth fairy did leave two bob (that's shillings - for you yanks) under my pillow the first time - but the next time she forgot - 'Bitch!')

I never mention the word 'habituation' on here, as it usually promotes projectile vomiting from certain members:

and it is clearly NO substitute for a cure.

Having said that I do have to admit that my practice of daily meditation (written up above) does to a certain extent help to minimise the lethal impact of "T" on my feeling of (almost) well being.
It does nothing to reduce the volume, I admit, but perhaps to a certain extent it helps to desensitise me.

 

[Greg Sacramento]

@Jazzer I wonder if you can remember any swelling in legs either before or while taking prednisone? Your blood calcium levels where probably under 3.4 - 3.5. Elevated Vitamin D caused increasing calcium absorption, so bone conduction is probably ruled out.

Did you develop tinnitus within one year after or immediately? I would guess under six months, but not immediately. Weaken hair cells from hypercalcemia, sarcoidosis and E.N. would have given you almost instant tinnitus like within a week or two. Prednisone should had been a plus, not a negative to hearing. Most likely some after effect caused from all of this caused your T.

Once hair cells are weaken due to infection, any nerve or muscle imbalance can cause tinnitus as well - with or without an increase to noise.

 

[Jazzer]

@Greg Sacramento - the sequence of events:

In 1992 I started juicing oranges, several, on a daily basis, believing it was good for me.
(I believe I overdosed.)

My first symptom was a persistent cough.
Some weeks later a dozen hard sausage shaped swellings in both legs. (erythema.)
My breathing was getting laboured.
My doctor prescribed prednisolone but I was reluctant to take it, believing steroids to be a bad thing.
(Real ignorance on my part of course.
I now know they are a life saver.)
One week later I was walking my dogs over the downs and could not climb up a slight bank.
I was managing to draw breath, but could not absorb oxygen because of calcium blocking the receptors in my lungs.
Sylvie called the doctor who said 'take him straight to A & E - immediately!'

The specialist injected steroids and told me that, without them, I had been in the last 24 hours of my life.

Very faint manageable Tinnitus started soon after this sequence of events.

Tinnitus only became severe after noise trauma in June 2014.

What do you make of all that Greg - my guru?

 

[Greg Sacramento]

@Jazzar Yes your symptoms are medical text book. The connection of sarcoidosis causing tinnitus is with the development of neuro sarcoidosis. Neuro sarcoidosis is caused within weeks or a few months from neck nerve and muscle infection which weakens hair cells. Any loud noise, even years later could damage hair cells more as we all know.

 

[Tinker Bell]

@Greg Sacramento - the sequence of events:

In 1992 I started juicing oranges, several, on a daily basis, believing it was good for me.
(I believe I overdosed.)

My first symptom was a persistent cough.
Some weeks later a dozen hard sausage shaped swellings in both legs. (erythema.)
My breathing was getting laboured.
My doctor prescribed prednisolone but I was reluctant to take it, believing steroids to be a bad thing.
(Real ignorance on my part of course.
I now know they are a life saver.)
One week later I was walking my dogs over the downs and could not climb up a slight bank.
I was managing to draw breath, but could not absorb oxygen because of calcium blocking the receptors in my lungs.
Sylvie called the doctor who said 'take him straight to A & E - immediately!'

The specialist injected steroids and told me that, without them, I had been in the last 24 hours of my life.

Very faint manageable Tinnitus started soon after this sequence of events.

Tinnitus only became severe after noise trauma in June 2014.

What do you make of all that Greg - my guru?

This may be a silly thought process on my behalf, but is erythema a result of increased blood flow? Increased blood flow can contribute to tinnitus and impact hearing. Or could calcium build up in your body have contributed, too?

I have a family member who in non-medical terms has thicker blood due to several health issues. It's contributed to hearing loss.

 

[Jazzer]

Obviously I am not knowledgeable or I would not have made such bad decisions.
Subsequent to my reading up on Sarcoidosis I now know that the calcium sediment blocks all small capillaries - affecting first of all, lungs, then eyes, and kidneys.
I believe roughly 40% of patients recover fully, 50% have persisting problems, and 10% die.
These statistics are an attempt to remember what I read 20 odd years ago.
I may be quite wrong, but Greg will correct me I'm sure.

 

[Jazzer]

@Jazzar Yes your symptoms are medical text book. The connection of sarcoidosis causing tinnitus is with the development of neuro sarcoidosis. Neuro sarcoidosis is caused within weeks or a few months from neck nerve and muscle infection which weakens hair cells. Any loud noise, even years later could damage hair cells more as we all know.

Yes.
Greg I remember terrible headaches and very stiff neck aches.
I felt I was dying for sure.
Could the orange regime have promoted all this?

 

[Greg Sacramento]

@Tinker Bell Yes - correct. That's part of the equation causing tinnitus with ticker blood sometimes also in relation to neck nerves and muscles as well as ear structure nerves and muscles. Taking everything into consideration there was a 36% chance of neuro tinnitus development.

 

[Jazzer]

@Tinker Bell Yes - correct. That's part of the equation causing tinnitus with ticker blood sometimes also in relation to neck nerves and muscles as well as ear structure nerves and muscles. Taking everything into consideration there was a 36% chance of neuro tinnitus development.

Unlucky to get Tinnitus but lucky to survive I guess Greg.

 

[Wolfears]

@Tinker Bell Yes - correct. That's part of the equation causing tinnitus with ticker blood sometimes also in relation to neck nerves and muscles as well as ear structure nerves and muscles. Taking everything into consideration there was a 36% chance of neuro tinnitus development.

I wonder if this is one of those cases where a good quality Ginkgo Biloba could be of help, since it is a natural blood thinner.
Medi-Herb makes one of the best on the market.

 

[Tinker Bell]

Wow. Thank you @Greg Sacramento. For me, this confirms what so many of the specialists I saw said. Very loud noise exposure - like working in a factory or an IED exploding near you - can cause hearing damage, but often other past or present health factors contribute that patients do not even realize.

Unlucky to get Tinnitus but lucky to survive I guess Greg.

This is how I feel too. It's a perspective that I've tried to keep throughout all of this. Of course, it was hard to maintain when I was suicidal.

 

[Jazzer]

@jasonbourne - I must apologise to you.
Your original post has now deviated so far, and largely through me taking my eye off the ball.
I am sorry my friend.
I wish I could do something, say something, anything that might help you.
We are all essentially powerless.
I just hope you might somehow begin to feel a little better,
love
Dave x

 

[Greg Sacramento]

@Jazzer Do you know how much hearing loss you have? Sometimes there's not much hearing loss involved. The treatment for your immune cause is prednisone even at this point in time. It's quite successful, unless hearing loss is substantial.

 

[Greg Sacramento]

but often other past or present health factors contribute that patients do not even realize.

So true. I once posted a link that listed thousands of health causes of tinnitus. It just listed cause and number of cases reported. I didn't save the article and I don't know where it is in my history.

There's about 350 ways to get tinnitus just within the mouth and facial.

 

[Jazzer]

I'll try to find my readings Greg.

 

[Jazzer]

I just found this @Greg Sacramento.

Sarcoidosis is a common multisystemic granulomatous disorder affecting several organs and tissues. However, the respiratory tract is the region commonly involved in more than 90% of patients, and the middle ear is a direct extension of it. In spite of this, direct middle ear and/or mastoid involvement of sarcoidosis is more rarely seen. Otological involvement may mimic a number of other diseases of the ear; sarcoidosis will probably not be considered prospectively. In addition, pulmonary symptoms of the patients often go unnoticed for some time. We report a patient presenting with hearing loss and tinnitus as the primary manifestation of sarcoidosis of the ear.

 

[jay777]

I would like to pick your brains folks.
Is there anything at all that 'does it' for you?

Linda Lusardi in her heyday

 

[jay777]

When I first attended The Royal Throat Nose and Ear Hospital at King's Cross London I saw my first clinician.

I have an appointment on the 22nd there. Is it worth going? To see a Prof L. Luxon.

 

[Jazzer]

Linda Lusardi in her heyday

I remember her - and you're a very naughty boy !!

 

[Jazzer]

I have an appointment on the 22nd there. Is it worth going? To see a Prof L. Luxon.

Definitely go.
You need all the information you can get on your condition Jay.
You might get a hug !!
(Hope it's a gal.)
Best wishes mate
Dave x
Jazzer

 

[Jazzer]

Linda Lusardi in her heyday

She had a couple o' things going for her Jay.....

You probably never noticed......x

(PS - I was never properly weaned)