Member- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
Operation Regrow by Hearing Health Foundation
- Thread starter TheDanishGirl
- Start date
FANTASTIC NEWS!!!!
Looks like their site will be up Monday.
https://hearinghealthfoundation.org/regrow
Looks like their site will be up Monday.
https://hearinghealthfoundation.org/regrow
- Dec 7, 2018
- 554
- Tinnitus Since
- 03/2018
- Cause of Tinnitus
- Unknown
I just posted about them in the Tinnitus Talk Podcast episode suggestions thread.
Hearing Health Foundation looks much more favorable than the ATA.
Hearing Health Foundation looks much more favorable than the ATA.
FounderHearing Health Foundation is excellent. Our first contact with them was a conference call all the way back in 2015.
About a month ago we had a very nice call. Amongst other things, we discussed the Tinnitus Talk Podcast. They are glad to participate, so that's another great episode lined up! We have such an amazing assortment of guests now, this is shaping up to be fantastic.
And obviously everyone should support their Operation Regrow campaign! We'll post about it on our Twitter and Facebook - those who don't share it or spare at least a few dollars, will see an angry Markku in their nightmares!
- Oct 24, 2017
- 849
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- one-sided hearing loss (of unknown origin)
Yeah they seem pretty awesome, and are happy to collaborate with us, looking forward to hearing more about their work!
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
Nice that you guys are with me on this... Like Markku said, I hope everybody will donate to Operation Regrow. I concur that the Hearing Health Foundation seems awesome, when it comes to tinnitus research.
- Jun 6, 2013
- 1,373
- Tinnitus Since
- January 2002
- Cause of Tinnitus
- Dental Surgery
Awww thanx for informing me about this Star. I'll do best that I can by sharing it on Facebook and Twitter and other sites I am a member of. Financially as well. This sounds wonderful.
Hearing Health Foundation are collaborating with Hyperacusis Research. It would be cool if they wanted to collaborate with Tinnitus Hub too.
https://hyperacusisresearch.org/partnership-with-hearing-health-foundation/
https://hyperacusisresearch.org/partnership-with-hearing-health-foundation/
- Jun 6, 2013
- 1,373
- Tinnitus Since
- January 2002
- Cause of Tinnitus
- Dental Surgery
And as @Jcb noted previously you have a whip!!
Just kidding. But you did help a lot of us vote and that was fun back then.
Should I bring my whip out and start getting people to share the link??? Bahahahah...
So their page is up and it's just a donation page with no information about what their strategy is. Regardless, I am going to donate and the rest of you guys that can, should as well.
This is my preferred hearing non-profit to donate. I gave some money a few months back and got my company to match dollar for dollar. This isn't uncommon for companies to do so be sure to see if yours does as well.
Similar with Dr. Rauschecker fundraiser. It's not that people don't want to donate. They literally don't know about it. The right way to go about this is to drive traffic to the fundraiser by utilizing Facebook and social media ads, Google ads etc.
Unfortunately, even that has proven to be difficult.
If my memory doesn't fail me miserably, @Ed209 and @attheedgeofscience spent about $50 and $300 (respectively) on Facebook ads for the Dr. Rauschecker campaign. Those ads reached thousands of tinnitus sufferers.
Net result?
Zero new donations.
I'm not sure what it would take to get people to actually donate to tinnitus research fundraisers? I'd say it's pretty damn difficult. Even with the Danny Boy fundraiser - it had many elements; the emotional impact of someone passing and doing something in their memory; the democratic nature of the fund (donors could choose where the monies go).
Yet it only raised about £5,000. The donation page was visited by over 60,000 tinnitus sufferers and only a handful ended up giving anything. A few people gave multiple times though.
I and @Hazel are this year going to launch a new survey on awareness & fundraising, in a bid to figure out the obstacles to fundraising, and to learn more about people's concerns and wants. We'll see if that bears any fruit, maybe some new insights into the minds of tinnitus sufferers.
If we show how much money results in what objective being reached it may make it more real.
Where can we get more funds from? Can we lobby somewhere? The ATA are now in DC, are they lobbying?
I've read this lady's post on The Mighty where the Hearing Health Foundation features a lot. In fact they were asking sufferers questions and there weren't many responses.
Where can we get more funds from? Can we lobby somewhere? The ATA are now in DC, are they lobbying?
I've read this lady's post on The Mighty where the Hearing Health Foundation features a lot. In fact they were asking sufferers questions and there weren't many responses.
Hm. Maybe tinnitus sufferers with burdensome or debilitating tinnitus who may already struggle financially are the wrong 'niche market.' Especially, if they're being told that there's nothing that can be done for them by M.D.s.
Something's amiss that so few people donate. How about trying to market this in a way that hearing problems and tinnitus is something that can happen to absolutely anyone? That it became a serious problem in the modern world with noise pollution and much more demanding environmental factors where stress and depression reign supreme?
Also, thousands of people doesn't sound like much to be honest. In the Podcast Dr. Rauschecker said that millions of $ should be invested to tinnitus research, so at least a few millions of people should see it. Perhaps, instead of donating directly to the fundraiser we could team up and give money to social media influencers, restart the whole thing and promote it on a whole new level.
The fundraiser should also have a clear goal with a set time limit for potential donors to have an idea when to expect results. Not the stereotypical "Please donate, it'll help someone someday." And the campaign should look trustworthy, so people will want to donate (like shopping in a well-established online store).
I'm not trying to be 'clever trousers' here, just thinking out loud.
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- Jan 25, 2013
- 3,576
- Tinnitus Since
- 2008
- Cause of Tinnitus
- TMJ disorder, airplane barotrauma, noise exposure.
Sometimes it seems like fundraiser donations seem like a drop in the bucket compared to the tens of millions companies such as Otonomy and Frequency Therapeutics have involved in their R&D for hearing loss/tinnitus treatments.
Ken219
Member
@Candy I gave a lot of money to 'tinnitus' causes over the years.
Researching the web it appears there are many Clinics, Universities, Hospitals all over the world that are researching for a cure for hearing loss and tinnitus.
Not sure it is a matter of money?
Whoever comes up with a better treatment or cure would make billions.
Look how long it took a medical journal to say TRT is ineffective. My guess is at least 26 years. How much money do you think Pawel Jastreboff made in that time?
Researching the web it appears there are many Clinics, Universities, Hospitals all over the world that are researching for a cure for hearing loss and tinnitus.
Not sure it is a matter of money?
Whoever comes up with a better treatment or cure would make billions.
Look how long it took a medical journal to say TRT is ineffective. My guess is at least 26 years. How much money do you think Pawel Jastreboff made in that time?
- Dec 7, 2018
- 554
- Tinnitus Since
- 03/2018
- Cause of Tinnitus
- Unknown
I wouldn't donate a dollar more to that organization at this point. We have no idea what they do on a day to day basis, they pitch themselves as "research oriented" when asking for donations, only to find out that 5-15% of contributions go to research. The rest lines the pockets of their bureaucracy and cronies.. .and to produce a printed magazine that while being well done, I sincerely doubt justifies the cost with respect to its contributions to alleviating this experience for people.
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