Petitioning Celebrities to Support Tinnitus Research

[Chris Holland]

Hi Guys,

Seeing as Tinnitus Week is not creating any major waves and funding for research is pathetic maybe we as a community can try to petition celebrities known to have Tinnitus to join the cause?

There are loads of celebs with Tinnitus such as:

David Letterman
William Shatner (who is a supporter of ATA)
Barbara Streissand
Will.i.am
Bono
Steve Aoki
Pete Townsend
Anthony Kiedis
Moby

And many more ...

I'm guessing with their pull and possible donations a lot more can be done to create a fund for research than has been achieved up til now by the ATA and BTA ...

 

[threefirefour]

Wtf this is actually kind of a good idea. Very impressed Chris.

 

[Chris Holland]

It's the first interesting thing you say in all your comments. And since you are very good at organizing ideas (although many have not made sense) it would be good to organize a kind of machinery that we could use to make your idea succeed, and to achieve once and for all a direct financing to find the cure for tinnitus: not giving the money to ATA, or BTA, etc, but directly to an important pharmaceutical like Bayer, pfizer, Merck, Roche, Abbot, etc.

Wtf this is actually kind of a good idea. Very impressed Chris.

Maybe you guys can do some due diligence and try finding out how to reach management or funds set up by these celebrities or create short lists of all celebrities with tinnitus? I will try to reach out to some DJ's I know personally.

 

[Chris Holland]

The list had already been posted earlier in this forum, but I'm going to do the "hard work" of copying it here:
https://en.wikipedia.org/wiki/List_of_people_with_tinnitus

Half of these are dead or don't have it (Keanu Reeves only had it for a few weeks).
Maybe some local celebs in your home country?

 

[Chris Holland]

I do not know celebrities with tinnitus in my country. Before I get sick, tinnitus was something I had heard only twice in my life, in a movie "the incredible hulk" in the 80s and in an interview to a boy who could not sleep because of a pulsatile tinnitus and was going to go to a supposed treatment in the usa, by the same time of the 80s . That is why I insist that this disease has very low prevalence in the world, less than 0.001 percent of global population. All which I say is because I have analyzed it before, not because I like to contradict others, for the same reason be sure that the habituation does not go beyond being a simple home remedy.

It's more prevelant than that, however severe Tinnitus is relatively rare. I personally know quite a few people with Tinnitus but the severity ranges a lot.

The list is interesting, there are a lot of people on there after going through it who do have it, a lot of them actually have stated so in interviews some also campaigned for awareneas already.

 

[AZeurotuner]

I do not know celebrities with tinnitus in my country. Before I get sick, tinnitus was something I had heard only twice in my life, in a movie "the incredible hulk" in the 80s and in an interview to a boy who could not sleep because of a pulsatile tinnitus and was going to go to a supposed treatment in the usa, by the same time of the 80s . That is why I insist that this disease has very low prevalence in the world, less than 0.001 percent of global population. All which I say is because I have analyzed it before, not because I like to contradict others, for the same reason be sure that the habituation does not go beyond being a simple home remedy.

1.5 million vets alone in the US are currently collecting disability for tinnitus, and that's just the people with severe enough T to be receiving benefits. You also need to factor in all the other folks who work in loud environments (police, firefighters, bartenders, construction workers, music industry, etc.), those with loud hobbies (clubbing, concerts, target shooting, motorcycles, audiophiles/headphones, etc.), people who suffered accidents (car accidents, head injuries, neck injuries, etc), and miscellaneous factors (ototoxic medications, tmj, stress, etc.). Is it really so hard to believe that tinnitus isn't common? I personally know seven people with varying levels of tinnitus, this condition is much more prevalent than you're giving it credit for.

 

[Chris Holland]

The lie can be very persistent when things are repeated like a parrot without analyzing. Look if you can reach add the 1.5 million of tinnitus sufferers with the US tinnitus facebook groups (jajaja):

Dude, nobody is parroting anything, just speaking with people will already give you some hint as to how many people have T. Just because most of them are not in Facebook groups or on forums does not mean anything.

Today I contacted a friend of mine who has contacts with all the famous DJ's, his brother is one of them. I'm looking if I can get a hold of one or more of them that have T so they can maybe help raise awareness.

Make yourself useful and see what you can do, being sarcastic all the time ain't helping.
Be glad that T is this prevalent anyway otherwise nobody would care to begin with.

 

[AZeurotuner]

The lie can be very persistent when things are repeated like a parrot without analyzing. Look if you can reach the 1.5 million sufferers, adding all the members of the USA tinnitus facebook groups (jajaja):

View attachment 15294

Facebook is an awful source to draw statistical conclusions from. Do you really think that most people want to broadcast their medical conditions on social media websites?

And what, are you now accusing the United States military of lying about how many veterans collect disability benefits for tinnitus? Is this some sort of elaborate disability benefits fraud?

 

[Chris Holland]

And what, are you now accusing the United States military of lying about how many veterans collect disability benefits for tinnitus? Is this some sort of elaborate disability benefits fraud?

The plot thickens ...