Hi there. I'm in such a terrible state. I cannot cope anymore. It's affecting my whole life.
I've had tinnitus for years and years. (Doctor said too louder music and going to gigs) and I've had ear infections since I was knee high. They all seemed to clear up and then in my teenage years the tinnitus started which I've always managed to cope with quite easily. I've been able to know what causes it to get worse and could manage it.
About 5 years ago I had quite a serious operation for a cholesteatoma (I think that's the correct spelling). It's quite unusual for someone who was 25 at the time and took an age to get diagnosed. The operation was successful, although a shambles, and almost complete hearing was restored in that ear. The tinnitus was slightly worse but not so bad. I've had no infections or problems since then really. A couple of scares about the tumour returning but MRI scans were done and found nothing.
In the past 6 months I've started to experience pulsation tinnitus and it has gradually got worse and worse....I don't know where to start!!!
I get a few days where I feel like I have an ear infections coming on. To the point where my jaw aches and I feel like my glands are swollen. The pulsing is worse and I get discharge.
Then nothing happens and it disappears. This happens about once or twice a month. I have a constant feeling of 'something in my ear' like a feather or hair tickling. And this is how I felt before I was diagnosed with the rumour so you can imagine the stress...particularly as no one believed me the first time!
I have been to gp and referred to a ' very good' local specialist in ENT. All tests were run because of my previous condition. MRI, CT and blood tests for thyroid and diabetes.
All came back clear. My hearing test was the same level it was after my op.
The doc said he would see me back to discuss but instead sent me a letter saying he has discharged me as nothing he can do and referred to audiology for help with it, although 3 months on I still haven't heard anything from them.
The pt is constant however and getting worse. I can't zone it out AT all. The only relief I get is while at work, driving around and visiting customers. As soon as I get home I'm in utter despair again. The to doesn't cover it anymore. I can sit and watch tv in the evening at a fairly loud level (I have surround sound too) and I can still hear it over everything.
I go to sleep and it's there, I wake up in the morning and boom, it's there and I can't get back to sleep. I can wake at 2am and it kicks in (I don't know if it's the cause of me waking) and I cannot get back to sleep! I have a headache all the time, I'm constantly tired and miserable!
I just can't take it anymore...the sound therapy is all well and good when you're trying to sleep but what about when I'm sat in the evening with my partner watching to. All I want to do is sleep because it's the only way I know to make it stop. My partner sees how unhappy I am, I try my hardest to forget about it and try to be normal. In only 30 and to be told I have to just 'cope' is just unacceptable to me! Id rather have the whole lot ripped out of my ear and be stone deaf in that ear than continue like this! I'm crying as I'm writing this as it really is changing my life and making me so so unhappy. It feels like I have nowhere else to turn. Someone somewhere must be able to help me! I do t want a magic wand waved I just want someone to understand and try and help.
Is there an op I can have to have my hearing essentially cut off and remove the or?!? I'm that desperate.
I'm sorry to go on.
I've had tinnitus for years and years. (Doctor said too louder music and going to gigs) and I've had ear infections since I was knee high. They all seemed to clear up and then in my teenage years the tinnitus started which I've always managed to cope with quite easily. I've been able to know what causes it to get worse and could manage it.
About 5 years ago I had quite a serious operation for a cholesteatoma (I think that's the correct spelling). It's quite unusual for someone who was 25 at the time and took an age to get diagnosed. The operation was successful, although a shambles, and almost complete hearing was restored in that ear. The tinnitus was slightly worse but not so bad. I've had no infections or problems since then really. A couple of scares about the tumour returning but MRI scans were done and found nothing.
In the past 6 months I've started to experience pulsation tinnitus and it has gradually got worse and worse....I don't know where to start!!!
I get a few days where I feel like I have an ear infections coming on. To the point where my jaw aches and I feel like my glands are swollen. The pulsing is worse and I get discharge.
Then nothing happens and it disappears. This happens about once or twice a month. I have a constant feeling of 'something in my ear' like a feather or hair tickling. And this is how I felt before I was diagnosed with the rumour so you can imagine the stress...particularly as no one believed me the first time!
I have been to gp and referred to a ' very good' local specialist in ENT. All tests were run because of my previous condition. MRI, CT and blood tests for thyroid and diabetes.
All came back clear. My hearing test was the same level it was after my op.
The doc said he would see me back to discuss but instead sent me a letter saying he has discharged me as nothing he can do and referred to audiology for help with it, although 3 months on I still haven't heard anything from them.
The pt is constant however and getting worse. I can't zone it out AT all. The only relief I get is while at work, driving around and visiting customers. As soon as I get home I'm in utter despair again. The to doesn't cover it anymore. I can sit and watch tv in the evening at a fairly loud level (I have surround sound too) and I can still hear it over everything.
I go to sleep and it's there, I wake up in the morning and boom, it's there and I can't get back to sleep. I can wake at 2am and it kicks in (I don't know if it's the cause of me waking) and I cannot get back to sleep! I have a headache all the time, I'm constantly tired and miserable!
I just can't take it anymore...the sound therapy is all well and good when you're trying to sleep but what about when I'm sat in the evening with my partner watching to. All I want to do is sleep because it's the only way I know to make it stop. My partner sees how unhappy I am, I try my hardest to forget about it and try to be normal. In only 30 and to be told I have to just 'cope' is just unacceptable to me! Id rather have the whole lot ripped out of my ear and be stone deaf in that ear than continue like this! I'm crying as I'm writing this as it really is changing my life and making me so so unhappy. It feels like I have nowhere else to turn. Someone somewhere must be able to help me! I do t want a magic wand waved I just want someone to understand and try and help.
Is there an op I can have to have my hearing essentially cut off and remove the or?!? I'm that desperate.
I'm sorry to go on.
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