In the worst case scenario, there's still hope:How do you live and sleep and enjoy life with a loud siren always present and you're not even 30 yet?
Hearing Regeneration Trials
Frequency Therapeutics - FX-322
in Phase 1.5 (Results: December 2018)
Phase 2 (begin 2019)
Audion / Regain Trial
Phase 1/2 ongoing in the UK
Genvec / Novartis - CGF166
Phase 1/2 ongoing
Trials to begin in 2019 / Things to look out for in 2019
Neuromod (MuteButton)
launching their new device in January 2019 starting in Ireland, then Europe, then the US
results of their latest trial: 1H2019
Xenon Pharma - XEN-1101
Phase 2, expected to wrap up in 2nd quarter 2020
Frequency Therapeutics
Phase 2
Otonomy
1H19: OTO-313 (reduce tinnitus) Phase 1/2
1H19: OTO-413 (repairing synaptic damage) Phase 1/2
OTO-6XX (hair cell regeneration)
2H18: candidate selection
2019: Phase 1/2
University of Minnesota (device for tinnitus)
Phase 3 ?
University of Michigan (device for tinnitus)
perhaps updates on their currently ongoing trial
Estimated Primary Completion Date: September 2022
Estimated Study Completion Date: January 2023
You don't know that for a fact. You should look at the success stories I sent you for the cases that were caused by drugs, rather than acoustic trauma.
I'm still new to this game, but my understanding is that most cases of hyperacusis improve dramatically or completely.
I think this drug despite low dose did some damage to my ears. Hypercausis is very present
I now have unbearably loud high pitches and alarming T. Woke up this morning and it's just this constant barrage of alarm and the pulse on my ears is weaker. Dunno if this Is from the med destroying my hearing but it's horrifyingly high pitch. Not much room for error and it's already unbearable.
How the hell does one week mess up my hearing completely
Send them to this forum...No one believes me and says go see an audiologist
Send them to this forum...
T is impossible to forecast. It is possible (likely?) that you will feel better several months from now. You need to be patient and do what you can to not panic. Remember, there is a connection between stress and T. The T you are hearing now might be louder as a result of the terrible stress that you have been struggling with. It is easy to give in to terror and to lose it. Try to fight it, try to not give in...I didn't follow up with an ENT and now have persistent tinnitus with sirens and static noise and pain in my ear.
T is impossible to forecast. It is possible (likely?) that you will feel better several months from now. You need to be patient and do what you can to not panic. Remember, there is a connection between stress and T. The T you are hearing now might be louder as a result of the terrible stress that you have been struggling with. It is easy to give in to terror and to lose it. Try to fight it, try to not give in...
There's no reason to think you won't improve and that you won't be able to do great things in life. It's still early days for your T.I had a bright future but how will that happen with T like this fighting against my ability to think and work
There's no reason to think you won't improve and that you won't be able to do great things in life. It's still early days for your T.
Do you have friends you could maybe hang out with?
You don't know that you've damaged your hearing, that's speculative.
Are you seeing a counsellor of some sort?
Not necessarily...And this T is for life so those are big things
You are (understandably!) allowing yourself to give in to the terror and horror of it all. You could make it easier on yourself if you make an effort and attempt to calm yourself down. Try to not think about the future. For now, tell yourself that this is only temporary. When you hear T, instead of telling yourself that you want to get away from it, but can't, try to think about something else. I realize that this is easier said than done, but trust me that this is coming from someone who has lived through similar experiences. I won't say that I had succeeded in following this advice, but I was able to partially follow it and I do agree/believe that following this advice will increase the chances that your T will get quieter and that you will survive this ordeal.Hearing Regeneration Trials
Frequency Therapeutics - FX-322
in Phase 1.5 (Results: December 2018)
Phase 2 (begin 2019)
Audion / Regain Trial
Phase 1/2 ongoing in the UK
Genvec / Novartis - CGF166
Phase 1/2 ongoing
Trials to begin in 2019 / Things to look out for in 2019
Neuromod (MuteButton)
launching their new device in January 2019 starting in Ireland, then Europe, then the US
results of their latest trial: 1H2019
Xenon Pharma - XEN-1101
Phase 2, expected to wrap up in 2nd quarter 2020
Frequency Therapeutics
Phase 2
Otonomy
1H19: OTO-313 (reduce tinnitus) Phase 1/2
1H19: OTO-413 (repairing synaptic damage) Phase 1/2
OTO-6XX (hair cell regeneration)
2H18: candidate selection
2019: Phase 1/2
University of Minnesota (device for tinnitus)
Phase 3 ?
University of Michigan (device for tinnitus)
perhaps updates on their currently ongoing trial
Estimated Primary Completion Date: September 2022
Estimated Study Completion Date: January 2023
Not necessarily...
Also, see
You are (understandably!) allowing yourself to give in to the terror and horror of it all. You could make it easier on yourself if you make an effort and attempt to calm yourself down. Try to not think about the future. For now, tell yourself that this is only temporary. When you hear T, instead of telling yourself that you want to get away from it, but can't, try to think about something else. I realize that this is easier said than done, but trust me that this is coming from someone who has lived through similar experiences. I won't say that I had succeeded in following this advice, but I was able to partially follow it and I do agree/believe that following this advice will increase the chances that your T will get quieter and that you will survive this ordeal.
Don't beat yourself up. In my early days after the onset, my guilt had also provided as much negative emotions as my T. Eventually these thoughts will stop being as disturbing (just like if you repeat the same joke multiple times a day for several months, eventually it will stop being funny). It is not productive to torture yourself with guilt - you need all of the mental strength that you can get.This was completely avoidable
For what it is worth - that person didn't mean to harm you... Next time, don' ask them for an advice!And I again listened to a stupid family member over and over on not going to the hospital for the ringing that now my life is worse than ever
This was completely avoidable and now my life is gonna be pure hell for no reason than I didn't go to the hospital and stop the medication.
And I again listened to a stupid family member over and over on not going to the hospital for the ringing that now my life is worse than ever
Exactly and 100% the same. I got T from loud music, which is entirely preventable, unlike assault. Also before I realised that I had T due to a hearing loss, for at least a few days I continued to listen to music on headphones. Big mistake. My T reacted and got way worse. If I'd been on this board and gotten some knowledge, I would've asked for prednisone and plugged up in loud environments. Who knows, I could've been further on in recovery now. You can't live life looking backwards.Don't beat yourself up. In my early days after the onset, my guilt had also provided as much negative emotions as my T. Eventually these thoughts will stop being as disturbing (just like if you repeat the same joke multiple times a day for several months, eventually it will stop being funny). It is not productive to torture yourself with guilt - you need all of the mental strength that you can get.
You don't know if you've lost hearing. Btw, it might interest you that one of the members of this forum had 85db tinnitus and saw significant improvement using one of the devices currently being developed by the University of Michigan. Don't lose faith that people are working towards helping us and you can still experience fading.Closing the bathroom door hurt my ears how did this happen to me I had perfect hearing a few weeks ago now I'm toast and always anxious
Use the masking sound to give yourself something else to listen to besides T, as opposed to drowning out T...the masking sounds don't even drown out this high pitched ringing
So an update on my T: it's still pretty much here but significantly faded since when I first got my concussion about 10 months ago.
I just had a follow-up appointment for my concussion with my neurologist at Yale and he explained that with head injuries most of the reason we get tinnitus is from hyperactive nerves that are still sensitive from the "trauma." He told me sometimes it can take a year to 2 years for it to fade completely. I know this isn't the best thing to hear but honestly I always say things can be much worse. Try to stay positive. Hope this helped.