Put a Spotlight on Tinnitus Research

[derpytia]

This is a bit disheartening. Nevertheless, I hope we don't just give up.

I've said it before and I'll say it again. We are on our own.

If we really want to make something happen we have to do it ourselves and not rely on others/organizations to do it for us.

Easier said than done, I know.

But those of us with the dreaded tinnitus come from pretty diverse backgrounds. We all have talents and things we are good at. If this community could just find that inner strength to lend a hand in the best way they can with what they have (not necessarily money) then I think we could really pull together and do something bigger than what we've already done.

I cry all the time over my tinnitus. But I try to do what I can while crying.

 

[Frédéric]

Did I miss something?

I daily logged in and checked the Frontiers website.

When I went through the subjects, tinnitus was always ranked # 1 among the most seen (and it is still the case today, I do not even see the winner: "vestibular system").

I read the articles regularly (before there was a "like" button but it disappeared), but if I remembered well, reading the article counted as a "point".

Can someone explain to me what happened?

That said, the mentality of the world is progressing: last year, the winner was something like "improving cognitive abilities", in short, transhumanism, meant "we did not care about diseases and suffering".

And indeed, this prize will benefit the research against diseases like that of Ménière's disease.

 

[Markku]

Can someone explain to me what happened?

This we and many others would love to know.

The Frontiers Jury decided on the winner, but I don't think their transcripts / meeting notes are publicly available.

It doesn't make sense to me. We are very disappointed.

 

[Frédéric]

So if I understand correctly, the process of designation of the winner was the one described below:

 

[GregCA]

This we and many others would love to know.

The Frontiers Jury decided on the winner, but I don't think their transcripts / meeting notes are publicly available.

It doesn't make sense to me. We are very disappointed.

Have you thought about reaching out to them to understand this better? Your notoriety would - I think - help take your inquiry seriously.

Perhaps something went wrong in the process, or some other parameter we didn't know about played a role.

 

[JohnAdams]

Understanding the why is a hugely important step in figuring out what treatments will work and how they may work.

For most of us, it is hearing loss from acoustic trauma or ototoxicity and death or dysfunction of hair cells. Why is this so hard to understand?

 

[Deamon22]

And indeed, this prize will benefit the research against diseases like that of Ménière's disease.

Is that stated somewhere? I just looked quickly over the article. In case it is true, that would be great news for all Ménière's sufferers.

 

[Frédéric]

I dare to say that it is implicit since Ménière's disease causes vertigo and involves the vestibular system.
https://en.wikipedia.org/wiki/Ménière's_disease

 

[Frédéric]

Have you thought about reaching out to them to understand this better? Your notoriety would - I think - help take your inquiry seriously.

Perhaps something went wrong in the process, or some other parameter we didn't know about played a role.

@GregCA good reflex: I was about to ask the same question but I had to log out.

 

[Deamon22]

I dare to say that it is implicit since Ménière's disease causes vertigo and involves the vestibular system.
https://en.wikipedia.org/wiki/Ménière's_disease

Let's hope so, that would be at least some good news

 

[Frédéric]

@Markku: Did I miss one more thing?

When I searched on Frontier's website with the keyword "tinnitus", 8 different topics about tinnitus appeared. Let's repeat the same process:

https://www.frontiersin.org/SearchData.aspx?sq=tinnitus&ht=1
(then click on the filter on your left "Frontiers Research Topics")

I was certain, though, that there was only one topic about tinnitus, the one we supported: Towards an understanding of tinnitus heterogeneity.

Too bad, it seems that "our efforts" (tinnitus researchers and tinnitus sufferers) were scattered.

What do you think about it?

 

[Markku]

@Markku: Did I miss one more thing?

When I searched on Frontier's website with the keyword "tinnitus", 8 different topics about tinnitus appeared. Let's repeat the same process:

https://www.frontiersin.org/SearchData.aspx?sq=tinnitus&ht=1
(then click on the filter on your left "Frontiers Research Topics")

I was certain, though, that there was only one topic about tinnitus, the one we supported: Towards an understanding of tinnitus heterogeneity.

Too bad, it seems that "our efforts" (tinnitus researchers and tinnitus sufferers) were scattered.

What do you think about it?

The other tinnitus related Frontiers Research Topics were mostly not competing for the same year as the one we all rallied for (Towards an Understanding of Tinnitus Heterogeneity). Some were older, some were newer (such as the Neuroimaging Approaches to the Study of Tinnitus and Hyperacusis which is currently accepting papers and is eligible for winning next year's Spotlight Award).