Repeated Modified Nerve Blocks and Auditory and Non-Auditory Nerve Stimulation

50002-d27967f497258e68d51bef1447764a53.jpg


@Lane, how are you doing? I wanted you to check out the location of the needles, I thought this may be of interest to you. When I have regular acupressure/massage it is in front a little bit where Bryson's facial hair is. Also my old Korean acupuncturist, who's moved down south, applied needles to nearly the same local. These are injection sites, filled with Lidocaine, placentae and possibly other goodies from what Bryson has posted.

@BrysonKingMe, wishing you quieter days, good health and good fortune... we all are. Stay strong buddy!

Daniel
 
Alright people, so here's the good and the bad.

Good: I did my 4th treatment on a good day, yesterday. I wanted to give an early update because of the study mentioning "Additionally, within four treatment sessions, most patients [14/15 (93%) in subacute and 28/40 (70%) in chronic tinnitus] reported a transient reduction or fluctuation of tinnitus loudness." My good days, I still have a hiss that I am 100% habituated to. The hiss completely disappeared for about 3 hours. Last night.

Bad: I have not seen any improvement, especially when compared to the study results regarding my bad days. I continue getting what seem to be temporary spikes on the bad days after the treatment.

Again, I want to stress, I am a horrible test subject due to my hourly fluctuations on bad days. I have not had great sleep since being here, the stress of a new place, and working from 4 am to 1 pm can all be factors. I am also in the middle of Seoul with reactive tinnitus. Self explanatory, much louder environment than I'm used to.

I will classify an improvement by any of the following:
- less reactive tinnitus
- milder bad days
- less fluctuations

I am going to continue treatment. If I do not see any improvements by the 8th session, I will probably call it quits.

I should also add there is a US helicopter pilot with noise induced tinnitus, who has seen a reduction in his tinnitus of 50% after 13 sessions. He saw no improvements until 10 sessions. He had to leave early back to the US due to his service.

I would not take a sample size of n=1 (myself) as do or die. I am updating you all since I would want the same from a patient who went and did this, and I know I wanted answers on this asap.

Stay tuned for session 8.
 
@BrysonKingMe, thank you for the update.

If the pilot had a change after 10 sessions, why would you want to stop after 8 sessions if no improvement?

Can you not take some time off of work? I'm sure with that and you working hours it is stressful.

Good luck.
 
Alright people, so here's the good and the bad.

Good: I did my 4th treatment on a good day, yesterday. I wanted to give an early update because of the study mentioning "Additionally, within four treatment sessions, most patients [14/15 (93%) in subacute and 28/40 (70%) in chronic tinnitus] reported a transient reduction or fluctuation of tinnitus loudness." My good days, I still have a hiss that I am 100% habituated to. The hiss completely disappeared for about 3 hours. Last night.

Bad: I have not seen any improvement, especially when compared to the study results regarding my bad days. I continue getting what seem to be temporary spikes on the bad days after the treatment.

Again, I want to stress, I am a horrible test subject due to my hourly fluctuations on bad days. I have not had great sleep since being here, the stress of a new place, and working from 4 am to 1 pm can all be factors. I am also in the middle of Seoul with reactive tinnitus. Self explanatory, much louder environment than I'm used to.

I will classify an improvement by any of the following:
- less reactive tinnitus
- milder bad days
- less fluctuations

I am going to continue treatment. If I do not see any improvements by the 8th session, I will probably call it quits.

I should also add there is a US helicopter pilot with noise induced tinnitus, who has seen a reduction in his tinnitus of 50% after 13 sessions. He saw no improvements until 10 sessions. He had to leave early back to the US due to his service.

I would not take a sample size of n=1 (myself) as do or die. I am updating you all since I would want the same from a patient who went and did this, and I know I wanted answers on this asap.

Stay tuned for session 8.
Did you meet the pilot and he told this to you or was it relayed second hand?
 
Thanks a lot for this, @BrysonKingMe. I hope there is a dramatic trend of improvement from the next session.

Interesting what you say of the pilot. The pilot started improving after session 10 but had to leave after session 13 so all the progress was in three sessions. So for chronic cases it may be worth sticking around longer. Or perhaps they started using placenta on him?

No pressure but I would be grateful if, in the next update, you could let us know whether you tried the placenta growth factors and cytokines.
 
I still find this article to be one of the best in explaining tinnitus. For those with somatic tinnitus, nerve blocks below the brain stem do help:

Tinnitus: Characteristics, Causes, Mechanisms, and Treatments

Somatosensory system

The activity of the DCN is also influenced by stimulation of nonauditory structures; however, the somatosensory system is the only nonauditory sensory system that appears to be related to tinnitus (e.g., in temporomandibular-joint syndrome and whiplash). Somatic tinnitus can develop from activation of latent oto-somatic interaction. Somatic (craniocervical) tinnitus, like otic tinnitus, is caused by disinhibition of the ipsilateral DCN, which is mediated by nerve fibers whose cell bodies lie in the ipsilateral medullary somatosensory nuclei. These neurons receive inputs from the nearby spinal trigeminal tract, the fasciculus cuneatus, and the facial, vagal, and glossopharyngeal nerve fibers innervating the middle and external ears.

Pain signals from the cochlea carried by the cochlear C fibers could also be interpreted by the CNS as tinnitus. It is further hypothesized that somatic tinnitus is due to central crosstalk within the brain, because certain head and neck nerves enter the brain near regions known to be involved in hearing.​
 
@Chinmoku, I am just doing Lidocaine. The pilot saw transient reduction in his tinnitus but it kept coming back to his baseline until it stayed lower around session 10.

@Uklawyer, idk, I am getting anxious in Korea and would like to be home. But I will probably stick it out as long as it makes sense.

@GBB, second hand from the doctor, but I really don't think she is lying about anything.

They also inject Lidocaine into your back wherever you feel pain, when they press down with their fingers.
 
If the pilot had a change after 10 sessions, why would you want to stop after 8 sessions if no improvement?

Can you not take some time off of work? I'm sure with that and you working hours it is stressful.
Stick it out Byron.
 
Bryson, you could also try placenta cytokines and growth factors. It's not stem cells but it could be worth a shot given that side effects are minimal (moderate itching and possible moderate allergic reaction).

I hope you have great success with the next sessions.
 
I am getting anxious in Korea and would like to be home. But I will probably stick it out as long as it makes sense.
@BrysonKingMe, we can't tell you what to do and you'll ultimately know what's best for your situation, but I can understand the anxiety that comes in an unfamiliar place, especially when you're dealing with unstable tinnitus.

My advice: just don't let regret get the best of you. You've traveled this far to see this through and you wouldn't want to leave any stones unturned, or have any reason to look back, or wonder if 10 treatments would've been the sweet spot rather than 8, for example. Maybe things will take a turn sooner rather than later, but who knows. We're all rooting for you, though!

Thanks for being the brave one to try this.
 
Yea failing pretty miserably with the sound generators since it just gets louder when they're in.
I am in a similar situation. I can use my sound generators for like 2 days and then I have a setback and need to back off for a few days. But I need to start using them because I see that as one of the very few options. Maybe I should just take it slower. I had good success with sound generators in the past. My tinnitus could be anything from minor sound sensations to an intensive dentist drill.

I hope you will benefit much more from the remaining sessions!

@BrysonKingMe, if you have time, read all posts by @Coffeebean. He knows quite a lot about reactive tinnitus and how to treat it from his own experience.
 
@BrysonKingMe, thank you for your update.

I have been reading / following this subject / thread for the past month or so now and this morning
I decided to register so that I could personally thank you
and ask you to keep it going pushing on and please do not give in...

This treatment might just be the miracle or the start of a cure for this evil illness millions of poor people are suffering every second of the day.

You have travelled so far and put your faith and judgement in this new treatment. I can only ask you to persevere with the treatments for at least 12 to 15 sessions if you can please.

There are so so many people counting on you to really give it your very best effort for us all.

I think you are an incredibly brave person who can push through the pain and doubts. I wish I could be there also receiving this treatment and each of us spurring the other one on.

Many, many thanks,
Keith
 
Hello @BrysonKingMe, hope you're doing great!

Could you ask the doctors how long the effects last and how often a patient should re do the treatment? Once a year, every other year? Am I correct in assuming it is not a permanent fix?

Forgive me if these questions have already been asked or discussed.

Take care Bryson,
Daniel
 
@BrysonKingMe, I really like your perseverance and commitment on this. Forging new trails and taking risks to change the course of things can sometimes be lonely and scary. I made a career making risky and ground breaking decisions so I have been where you are many times. You decide what's best for you, if it helps the rest of us here then great. My advice is don't leave anything on the table after the big initial commitment that you made. See it through as far as you can without harm to yourself and then learn from the total experience and hopefully get better.

All the best,
George
 

Log in or register to get the full forum benefits!

Register

Register on Tinnitus Talk for free!

Register Now