Repeated Modified Nerve Blocks and Auditory and Non-Auditory Nerve Stimulation

[aura]

Just focusing on it more. Also seems to be temporarily spiking the past few days but hopefully it will calm down soon. I have a ton of tones but they are usually not too loud. Sometimes they get reactive and it's like a swarm of electric insects in my head.

It's been a rollercoaster. I keep improving then having major setbacks. Improvement takes about 7-8 months each time. Fortunately I've found some trends that were causing the setbacks and have cut those out of my life. I've also been taking a ton of ginger supplements and eating + drinking ginger foods and drinks. For some reason that seriously improves my noxacusis.

I'd say I'm about 70-75% recovered, but I've been here before and have had multiple setbacks to the 35-40% range.

Could you tell me what's causing the setbacks? Is it sound exposure or is it more than that?

 

[chinup]

Could you tell me what's causing the setbacks? Is it sound exposure or is it more than that?

It's sound exposure to cheap speakers. Let's continue this discussion in the hyperacusis section. Don't want to derail this important thread

 

[GlennS]

There is no nerve regeneration here.

The term was used by those pioneering it, though, which understandably hurt credibility.

 

[Chinmoku]

The term was used by those pioneering it, though, which understandably hurt credibility.

Wouldn't you agree that the word regeneration is not used a single time in the study being discussed in this thread? There are other issues but the authors of this study are hardly responsible for possible regeneration claims by totally unrelated people of the past in relation to alternated nerve stimulation and blocks (who, by the way? [citation needed]).
Edit the link to regeneration can be in their using placenta derivatives actually, but that is optional an is not in the study, and it's quite speculative anyway, and not the main focus. So I wouldn't use that to compare this to the previous South Korean experience.

 

[ArthurCzerniak]

Interesting, will watch this thread for the future. At this point, since no official cure has ever existed for tinnitus and many other ear/nerve/brain problems, no harm in keeping an open mind and seeing where something goes. Thanks to the brave members who have been willing to try this treatment, wishing you the best.

 

[GBB]

Was there any clarification on what this costs?

 

[Bambam0]

Was there any clarification on what this costs?

$290 per session.

 

[BrysonKingMe]

I understand some of you are anxiously waiting on my results from this treatment -- I am completing 1 or 2 more sessions before leaving Korea on the 31st.

After that I'm going to need a few days to get over the jet lag. As I've mentioned before my tinnitus is extremely correlated with my sleep (and stress it seems from this journey), so to give it a fair and full assessment, I want to write something up once those 2 have had time to settle.

The results have seemed somewhat positive so far.

 

[Joey72]

Thank you for all you've done.

 

[reggie green]

There is hope after all.

 

[AfroSnowman]

I understand some of you are anxiously waiting on my results from this treatment -- I am completing 1 or 2 more sessions before leaving Korea on the 31st.

After that I'm going to need a few days to get over the jet lag. As I've mentioned before my tinnitus is extremely correlated with my sleep (and stress it seems from this journey), so to give it a fair and full assessment, I want to write something up once those 2 have had time to settle.

The results have seemed somewhat positive so far.

Regardless of the outcome, thanks for doing this.

 

[BrysonKingMe]

There is hope after all.

There's ALWAYS hope.

 

[GeorgeLG]

There's ALWAYS hope.

@BrysonKingMe, well said.

George

 

[scotty03874]

I understand some of you are anxiously waiting on my results from this treatment -- I am completing 1 or 2 more sessions before leaving Korea on the 31st.

After that I'm going to need a few days to get over the jet lag. As I've mentioned before my tinnitus is extremely correlated with my sleep (and stress it seems from this journey), so to give it a fair and full assessment, I want to write something up once those 2 have had time to settle.

The results have seemed somewhat positive so far.

I'm hoping for a good response for you Bryson.

 

[Travis Henry]

Praying.

 

[GPL]

Thank you Bryson.

 

[Essy]

Never posted on this forum before but just wanted to let you know Bryson that I wish you all the best! And looking forward to hearing your and other participants' further results.

 

[Bambam0]

@Bambam0, not very recently by these timing standards. I need to catch up as I am wondering myself how they are getting on.

Hey @Uklawyer, have you reached out to them yet? Could be great to theoretically get two "trip" reports this week. Thanks!

 

[Uklawyer]

Hey @Bambam0,

I have. They said that they were waiting for @BrysonKingMe to provide his results before providing their own results here - so looks like you may well get those 2 reports within a similar timeframe.

 

[Bambam0]

Hey @Bambam0,

I have. They said that they were waiting for @BrysonKingMe to provide his results before providing their own results here - so looks like you may well get those 2 reports within a similar timeframe.

Thank you for checking! This is good news. Fingers crossed they both received reward for their risk!

 

[BrysonKingMe]

Head tinnitus gone, now only on my left ear.

Volume reduction beyond a placebo, but not like the study reported. I did 16 sessions. If I had to put a number to it I would say 30-40%. Hard to tell since there's no baseline with reactive tinnitus.

It did nothing for the reactivity of the tinnitus. Before it would ramp up so intensely by the end of the day, now it stays at a consistent level.

Could be natural improvements from my noise trauma 5 months ago, but unlikely since it was just getting worse and worse.

Would I recommend this treatment? Yes, if it was in the US or you are really suffering.

Should ENTs be doing this here? Yes since there is literally no treatment that does anything.

I got a spike after each treatment that subsided probably 10/16 times, other times it was reduced.

Now the rest is up to me to work on getting the reactive tinnitus down with sound generators.

The other guy, who I met up with a couple of times, got minimal results.

No, the clinic is not a scam. Yes, I believe the participants in the study got great results, but also think there is a disconnect between the etiologies of tinnitus in the study.

Now I have one favor to ask you all, not to get too off topic, please read my condition and let me know what you think and I will try to answer any questions you might have.

I had severe tinnitus in 2016 from unprotected gunshot noises. It went mild probably within 3 months, continuing to improve to almost nothing. By that mean I heard a static in silent rooms, sometimes over ambient noises if I was high or hungover, tired etc. But honestly in December 2021 I hadn't even thought about tinnitus in years.

In January an aftermarket car alarm went off in my ear in a closed garage for probably 30 seconds. I noticed my tinnitus was louder for a week, and then I smoked a huge rip of weed and had a full blown panic attack from how loud it was. I had a little reactiveness that I had noticed a few days after the incident, but only to fan noises.

Ever since then, it's been one day baseline (near silent, cannot hear it over ambient noises inside), one to three days reactive tinnitus. When I say reactive, I mean it reacts to EVERYTHING. It is quieter in a quiet room. As I mentioned this treatment 100% reduced my baseline on reactive days, I can tell from how it starts in the morning.

So my questions are:

1. Do I have any chance of going back to mild tinnitus every day?
   
   
2. Do you think the panic attack triggered the pattern, and if so, could it ever break? It's been 5 months with no more than 3 days straight.
   
   
3. I started benzos daily again the day after the panic attack. Could this be the cause of the pattern, or more likely the panic attack?

@Michael Leigh, I am worried I have what you have (insane fluctuations forever), but at the same time it never reaches severe levels, just competes with everything and is an extremely annoying irregular hiss/static, so I hear it everywhere. I am using sound generators for the reactivity working with a TRT audiologist. I would like your input since you had mild tinnitus and then "variable" as you call it. Was your experience similar? How long did it take for you to realize it was always going to be up and down?

I am obviously hoping this fades with time, and I'm reading @Jason C and @jjflyman's posts almost every day. Especially Jason's since he seemed to have reactive tinnitus before it faded.

 

[Jerad]

Head tinnitus gone, now only on my left ear.

Volume reduction beyond a placebo, but not like the study reported. I did 16 sessions. If I had to put a number to it I would say 30-40%. Hard to tell since there's no baseline with reactive tinnitus.

It did nothing for the reactivity of the tinnitus. Before it would ramp up so intensely by the end of the day, now it stays at a consistent level.

Could be natural improvements from my noise trauma 5 months ago, but unlikely since it was just getting worse and worse.

Would I recommend this treatment? Yes, if it was in the US or you are really suffering.

Should ENTs be doing this here? Yes since there is literally no treatment that does anything.

I got a spike after each treatment that subsided probably 10/16 times, other times it was reduced.

Now the rest is up to me to work on getting the reactive tinnitus down with sound generators.

The other guy, who I met up with a couple of times, got minimal results.

@BrysonKingMe,

1. When you say that the head tinnitus is gone, you mean completely?

2. So do you still have the electrical tinnitus?

3. What's your tinnitus now compared to before you went to South Korea? Like if it was a 9/10 before, what do you rate it now?

Thanks for the help!

 

[BrysonKingMe]

1. When you say that the head tinnitus is gone, you mean completely?

Yes.

2. So do you still have the electrical tinnitus?

No.

3. What's your tinnitus now compared to before you went to South Korea? Like if it was a 9/10 before, what do you rate it now?

8/10 to 5/10 on bad days. Good days stayed 1/10.

 

[Jerad]

Yes.

No.

8/10 to 5/10 on bad days. Good days stayed 1/10.

Thanks, @BrysonKingMe!

Also, did your zapping tinnitus sensations go away?

My main, problematic tone right now is an electrical, high frequency tone that pulsates and also zaps.

 

[BrysonKingMe]

did your zapping tinnitus sensations go away?

These zaps still happen.

 

[DebInAustralia]

There's ALWAYS hope.

Thank you for reporting.

Q. Is your ear noise somatic at all? Do you experience residual inhibition? Is it a hiss?

 

[Michael Leigh]

@Michael Leigh, I am worried I have what you have (insane fluctuations forever), but at the same time it never reaches severe levels, just competes with everything and is an extremely annoying irregular hiss/static, so I hear it everywhere. I am using sound generators for the reactivity working with a TRT audiologist. I would like your input since you had mild tinnitus and then "variable" as you call it. Was your experience similar? How long did it take for you to realize it was always going to be up and down?

No two people will experience tinnitus the same @BrysonKingMe.

This applies variable tinnitus and hyperacusis because we are all different. Try not to compare what you are feeling to anyone else as this can induce worry and stress which can make your treatment with TRT more difficult.

Work with your audiologist and continue with the TRT. Give it time and be patient because this is not a quick fix. Please click on the link below and read my post: Can I Habituate to Variable Tinnitus?

Go to my started threads, print and read: The Habituation Process, How to Habituate to Tinnitus, Tinnitus and the Negative Mindset, Acquiring a Positive Mindset, Hyperacusis, As I See It.

You have mentioned Jason C in your post. I and others in this forum helped Jason when he was having a lot of difficulty coping with noise induced tinnitus, and believed his future was one of impending doom and gloom. His life has improved and tinnitus is no longer a problem. Jason has gone on to help many people in this forum which is something I am pleased to see.

Please click on the link below and read my post: From Darkness into Light. It explains the difficulty Jason once had with tinnitus and how his life turned around.

All the best,
Michael

Can I Habituate to Variable Tinnitus? | Tinnitus Talk Support Forum
From Darkness Into Light | Tinnitus Talk Support Forum

 

[KoolKat]

Years from now when a cure or treatment is discovered we will remember this. Thanks @BrysonKingMe.

Sucks it didn't cure you completely but if researchers were to get their hands on this and tweak things a bit, you'd think they would be onto something, or is this just how good it can get.

 

[Mentos]

These zaps still happen.

@BrysonKingMe, the head tinnitus that is gone, was it ever cricket like sound?

 

[BrysonKingMe]

Thank you for reporting.

Q. Is your ear noise somatic at all? Do you experience residual inhibition? Is it a hiss?

I can change the sound if I move my neck.

Yes, sometimes (rarely) I can get it to go away for a day with a shower.

Yes, a hiss.