Rube

[ruben ruiz]

A series of events led to my status.
During that time I took Cipro for a stomach problem. This was followed by Sertraline and Lexa Pro. I ended up with Vertigo. Some days later I experienced the first tone of T. The H came later.
I ended up with horrific anxiety. Im going on three years.
I got habituated then the T/H got worse. Im having big trouble getting used to the new level. I got laid off and Im having trouble working much less leaving the house. Ive tried T retraining (to expensive) Homeopathic Therapy, acupuncture, and ENTs. The only thing that works is getting out of the house and leave on little local trips and meds. I love hate the meds.
Addiction is a real bummer. I have chronic insomnia from the illness.
I feel that's the worst part of this experience.

A few years ago life was great. I was working, in love, had a beautiful ranch in Northern Mexico (pure wilderness) a creek runs through it, playing good guitar music, been playing since I was a kid. I stopped playing electric guitar in my mid 20s so I dont feel it was music that caused the T/H. Ive only played acustic guitars. I always knew that health was a key to a happy life.
I ate good food, didn't drink or smoke -only smoked pot once in a blue moon.
My girlfriend begged me not to take the Cipro. I should have just gone through the illness and taken pro-biotics. They call Tinnitus a secondary nueropathy, I call it a different kind of hell. Ive seen beauty
greatness, wondrous nature and beautiful people Tinnitus cant take that away.

I consider everyone on Tinnitus Talk a friend, brother and sister.
God bless.

 

[ruben ruiz]

It is strange how the days vary so much. Some days little T and no anxiety. Other days are the complete opposite.
When one is blind you dont have days that are radically different. If the Cochlear unit is totally shot why would some days be acceptable? God I wish this would be cured or let there be at least reasonable relief. I not sure but I believe that the Alpha Stim may be a better unit than Tens. But the AS unit works on anxiety and depression, jury is out about T.

 

[ruben ruiz]

Im new here what a great site. Wow people who understand this nasty malady...

 

[ruben ruiz]

I saw to ENTs during the onset of tinnitus. It was brand new. Both said tough luck. I asked both about steroids.
As Ive read that when steroids have a chance during the beginning. I would love to ring both their necks.
They both denied me the chance to get well three years ago. Im bummed about Drs in general. Ive seen maybe a dozen they dont know Jack Diddley about T/H because they werent taught in school and they have stopped learning during their practice.

 

[billie48]

Welcome to the board, Ruben. Yes, this is a site with people who understand what you are going through because only those who have T & H understand the challenge. But many here do recover or become well enough to write their success stories. Just read through them to see if you can get some insights from those who have similar condition. I have both T & H like you. My T is ultra high pitch dog whistle, which was soon followed by severe H. The H made all normal sounds piercingly hurtful as if they were too loud to bear. Even the soft voice of my wife spoken too close hurt. I had to wear ear plugs a lot to protect but the plugs made the T so dominantly unbearable. Then I also had anxiety and panic attacks plus depression and sleeplessness. All those cans or worms that come along with intrusive T. I thought my good life is over and I would never recover from the sufferings. But here I am today living a normal and enjoyable life. Hope you realize that T though challenging is not an end game. Check out the strategies/treatments such as TRT, CBT, mindfulness meditation etc. Give it some time.

Yes, most doctors, ENTs included, who are untrained about T have no idea how to help us. My ENT even cruelly told me the only way he could stop my T ringing was to shoot me. Gosh!!! This forum has many resources to help you. Try this link for a start. Take care and God bless.

https://www.tinnitustalk.com/panic/

 

[Danny Boy]

Welcome to the board, Ruben. Yes, this is a site with people who understand what you are going through because only those who have T & H understand the challenge. But many here do recover or become well enough to write their success stories. Just read through them to see if you can get some insights from those who have similar condition. I have both T & H like you. My T is ultra high pitch dog whistle, which was soon followed by severe H. The H made all normal sounds piercingly hurtful as if they were too loud to bear. Even the soft voice of my wife spoken too close hurt. I had to wear ear plugs a lot to protect but the plugs made the T so dominantly unbearable. Then I also had anxiety and panic attacks plus depression and sleeplessness. All those cans or worms that come along with intrusive T. I thought my good life is over and I would never recover from the sufferings. But here I am today living a normal and enjoyable life. Hope you realize that T though challenging is not an end game. Check out the strategies/treatments such as TRT, CBT, mindfulness meditation etc. Give it some time.

Yes, most doctors, ENTs included, who are untrained about T have no idea how to help us. My ENT even cruelly told me the only way he could stop my T ringing was to shoot me. Gosh!!! This forum has many resources to help you. Try this link for a start. Take care and God bless.

https://www.tinnitustalk.com/panic/

Try Keppra, it's cured my hyperacusis and Vikings. Good luck.

 

[sonic123]

Welcome here! I've had T for 16 years (I'm 43), sometimes it gets worse, but on the whole I manage it pretty well. Early days were horrible. Often it get can pretty loud.

In a weird kind of way, I've become accustomed to my T. What can I say, you get used to it, and then begin to focus on what you're hearing, what people are saying etc, rather than listening for incessant EEEEEE in your head. I even laugh about it these days, that helps a lot!! That is part of my strategy, not lack of understanding toward those who have T.

My own momentary down moments are not hearing at night all the small noises. I loved hearing the night sounds, standing outside. I choose not to dwell on that - there's so much more other stuff to focus on!!!!

I take a lot more care of myself in general and my ears than I did before the T set in for good, and that whole attitude change has been a positive thing for me. )

Take cheer - I read up on which are the most painful conditions to live with (bear with me on this!), and I discovered there are certain back injuries that are hell to live with every moment of every day, without respite. What's interesting about studies looking at people in deep pain, is that pain tolerance goes up and up as the mind becomes acccustomed. Perhaps like athletes, who learn to circumvent the pain/warning signals their bodies are giving them, and pushing through. The mind is so clever/subtle, have to find a way to let it do its thing....

So everyone can find a way.... especially with a strategy as a starting point to see what works/doesn't work

 

[awbw8]

Welcome here! I've had T for 16 years (I'm 43), sometimes it gets worse, but on the whole I manage it pretty well. Early days were horrible. Often it get can pretty loud.

In a weird kind of way, I've become accustomed to my T. What can I say, you get used to it, and then begin to focus on what you're hearing, what people are saying etc, rather than listening for incessant EEEEEE in your head. I even laugh about it these days, that helps a lot!! That is part of my strategy, not lack of understanding toward those who have T.

My own momentary down moments are not hearing at night all the small noises. I loved hearing the night sounds, standing outside. I choose not to dwell on that - there's so much more other stuff to focus on!!!!

I take a lot more care of myself in general and my ears than I did before the T set in for good, and that whole attitude change has been a positive thing for me. )

Take cheer - I read up on which are the most painful conditions to live with (bear with me on this!), and I discovered there are certain back injuries that are hell to live with every moment of every day, without respite. What's interesting about studies looking at people in deep pain, is that pain tolerance goes up and up as the mind becomes acccustomed. Perhaps like athletes, who learn to circumvent the pain/warning signals their bodies are giving them, and pushing through. The mind is so clever/subtle, have to find a way to let it do its thing....

So everyone can find a way.... especially with a strategy as a starting point to see what works/doesn't work

I just loved your post @sonic123, just wanted to say so. I haven't had T long compared to you, but it's always heart-warming to see positive people who have had it for a stretch of time. So thank you.

@ruben ruiz, I know you're going through a terrible time, but it seems like you have the seed of positivity even now. I'm glad you found TT, lots of good people here. I hope you re-habituate soon. You're family to us, too!

 

[ruben ruiz]

I don't really remember if I introduced myself.
Life was really great then bad luck appeared.
I live in a family full of narcissism and megalomania.
Law suits, stealing, lying to the law. This stuff is really toxic.
People are really sick, they've never had adversity, so they have it invent it
stir it until the s_ _ _ it hits!
I was a pretty god film maker, acustic musician and to beat all I owned a Ranch
on the continental divide of Sonora and Chihuahua Mexico. Ferral land, wild country.
No land for an old man or an ill man kinda place. Some days its the most beautiful place on the earth. I just finished my first film script. Its dark and a little funny.

Im doing low level laser for sixths months now. I DYI my own notched music therapy - just started.
I measured it around 8000hz. Then I went to an ENT and that what they told me 8,000hz I was right.

Also fish oil, zinc, Bs, C, some pro-biotics...some CBDs and THC.
The tinnitus seems different. Its smoother easier to deal with. Yet if Im tired, hungry or grouchy the t is
a little worse. I had it totally down then it went south you know the story re-habituation...
Some days are good some are bad! Feel free to ask me anything. I really appreciate the peoples input here.
I know we know each other. Bless us we are especial too!

 

[Sailboardman]

Welcome Rubin,

Your ranch must be beautiful! I only have 2 acres here in FL, but my neighbors have between 5 and 35 acres, so I'm surrounded by woods and nature.

Before I got T, I could sit outside for hours enjoying peace and quiet. Just listening to the heartbeat, of the living world around me. Wind Gently blowing through the tall yellow pines, sounds of tree frogs and cicadas, birds, etc. These are the things that we take for granted and believe we will hear, without interruption the rest of our lives.

T Is a madman, that robs us of one of the most sacred things we have, peace! No matter how chaotic life got, I could always, walk, run or drive somewhere quiet.

Now, I have to create ways to mask T, during the day and night. It's hard work, that I shouldn't have to do, but what I need to do, until I can habituate.

I hope for a cure someday and await it, like everyone else here. It's amazing how many new members hit this forum everyday, with sad stories about how and when they received their T and how they manage it.

Last year, I was a normal human being, living life large. This year, I live a different life altogether. It reminds me of Sting's song, "How fragile we are". Funny, he also suffers from hearing loss and T.

However, we all will survive and get to a better place like all the veterans here. The research being done is promising and getting closer to the root of this dreadful symptom. We all just need to think, it will come sooner than later.

God bless,

Sailboardman