Sadness Thinking of When I Didn't Have Tinnitus — Hopefulness About Upcoming Research & Treatments

[Simon Czt]

Hello everyone, I hope you are well,

In the last few weeks my tinnitus has worsened, it is sharper, stronger. Even if I still consider it "moderate", I still have trouble getting used to it, especially since it has become reactive to noise and there are days when it is quite unbearable. I have the impression that it is getting worse every day.

I write this message with both sadness and hope. Sad, thinking back to my past, where I didn't have my tinnitus to keep me company, when I watched the sunset in summer, with quiet music in my headphones. I regret these moments. I'm only 19 years old, and I see all my friends having fun, and there's me, who stay at home, afraid that my tinnitus will get worse. My dream was to work in the music industry, so you can deduce that this dream was destroyed by my tinnitus. Tonight I feel sad.

But I also feel hopeful. I am "lucky" to have had my tinnitus at a time when research is finally starting to focus on tinnitus, and effective treatments are finally coming out (not for everyone unfortunately). Having had tinnitus due to a acoustic trauma, I have a lot of hope for cell regeneration to heal or at least relieve my tinnitus. I have hope, because I'm pretty sure I'll ever know about these cures for tinnitus. I'm not losing hope, but tonight I feel sad.

Don't give up hope too, and please take care of yourself. We're going to get through this, we just need to be patient, just a few more years. ❤

(Oh, and im really sorry if my English isn't perfect )

 

[Lynny]

Hey,

I'm 19 too and in the almost exact same situation you described. (Sad high five). I'm 7 months in, how about you?

Looking back sucks, in a way it is like grieving. It takes time. I'm personally determined not to seperate my life into a 'before' and 'after' tinnitus, because its deviously easy de to idealize the past and demonize the future. Your life before wasn't perfect, your life now isn't going to be either.

The future will be difficult and you will have moments where you feel like giving up- we all do -you just gotta make sure to stick around for the good stuff that will make it worthwhile

Also, I agree we're lucky to suffer from this in a time where technology is advancing towards relief.

(Would've been luckier if the cure was already around, but still, quite lucky indeed.)

I wish you all the best, you seem like a resilient person, I'm sure better times are just around the corner for you.

 

[JohnAdams]

My dream was to work in the music industry, so you can deduce that this dream was destroyed by my tinnitus.

I miss jamming out so much. I spent half my life learning and practicing guitar and was finally getting into master shred level and I haven't played electric guitar in over a year. I have had to change many things in my life and it has been devastating. However, life goes on.

 

[Simon Czt]

Hey,

I'm 19 too and in the almost exact same situation you described. (Sad high five). I'm 7 months in, how about you?

Looking back sucks, in a way it is like grieving. It takes time. I'm personally determined not to seperate my life into a 'before' and 'after' tinnitus, because its deviously easy de to idealize the past and demonize the future. Your life before wasn't perfect, your life now isn't going to be either.

The future will be difficult and you will have moments where you feel like giving up- we all do -you just gotta make sure to stick around for the good stuff that will make it worthwhile

Also, I agree we're lucky to suffer from this in a time where technology is advancing towards relief.

(Would've been luckier if the cure was already around, but still, quite lucky indeed.)

I wish you all the best, you seem like a resilient person, I'm sure better times are just around the corner for you.

Hey!

Im in 1years and 1month right now.

You're right it takes time, but things are gradually getting worse for me right now. After my spike due to a wedding, I think it started to get better 2/3 weeks later, but I was forced to work in noisy places, and I didn't always think to put my earplugs on at the moment so for 1 month I've been accumulating spikes and my tinnitus are getting worse and worse...hoping that it will calm down in a few weeks, a month..... and I have the impression that my tinnitus is much more reactive to noises and it takes much longer to return to a more "normal" state but I try to stay positive !

I really hope that things will change for people with tinnitus in the next 2/3 years. But I feel that we are close to finding effective treatments and why not cures for certain types of tinnitus!

I wish you all the best too, thank you for your lovely answer .

 

[Daniel Lion]

I miss jamming out so much. I spent half my life learning and practicing guitar and was finally getting into master shred level and I haven't played electric guitar in over a year. I have had to change many things in my life and it has been devastating. However, life goes on.

Master shred level...
I can dig it.
That's how I got with sculpture.
"However life goes on"

 

[Foamearplugssuck]

I'm in the exact same situation...I'm 20 years old and I want to work in the music industry, too. After I finally got an internship working in studio sessions and concerts, I get hit with tinnitus because of it. It sucks, and I think I might have to change career paths which is devastating to me. Hopefully there will be a cure within our lifetime, so we have something to look forward to.

 

[CroakyBat]

I'm right there with all of you. I'm 22 and last month after seeing a local band had a re-aggravation of the tinnitus I've had for about 6 years. It was pretty much silent before last month and I never even thought about it. Now I just can't cope with the fact that forgetting to wear ear protection for 20 mins might have put me in this state for the rest of my life. I am still holding out hope that things will get better since I'm only a month in, but it's definitely terrifying. I also do feel optimistic that a cure could come in our lifetime given advancements in technology. In the meantime, I am trying to tell myself to focus on the things I can still do and enjoy, and not let this destroy the life I want to live.

It is at least comforting to be able to speak with people in similar situations. Would be happy to talk with anyone if they ever need. Best wishes to you all and I hope to see some positive updates from you soon. Being young, there is still a lot of good to come for us!