Still Alive and Doing Better! Hyperacusis and Pain Have Reduced by About 75%!

[chinup]

I am on my fifth day of a low histamine diet. It is very difficult. I have low energy and mood. I ordered some enzymes to take with each meal. They will arrive on Thursday. They apparently help break down the food. I do eat apples and a very small amount of cottage cheese.

You might have keto flu. Try upping your electrolytes.

 

[Athens]

Yeah, trying to eat low histamine is a huge pain in the butt.

Do you think your low energy and mood are from the diet? If so, it could be an electrolyte issue. When I started carnivore I crashed really hard with zero energy. Adding a lot of extra salt to my food helped a lot while I adjusted to the diet.

I think that my body and brain have been conditioned to eating a lot of carbs/sugar. It has just been a shock to my system and therefore, less energy and lower mood. I did feel better this morning so maybe I am adjusting. I was surprised to see how much sugar is in low fat milk. You reference using more salt. I know that salt is not recommended for a lot of folks with auditory issues but I know that there are some "experts" who believe that is no science to back up any theory that diet has any causal connection to tinnitus or hyperacusis.

 

[Athens]

You might have keto flu. Try upping your electrolytes.

One person indicated that they used a lot of salt for this reason but I always thought that salt was bad for auditory issues.

 

[Marin]

Was it this one:

Boiron Arnica montana 200CK Homeopathic Medicine for Pain Relief, White, 80 Count

Or this one:
Boiron Pulsatilla 200CK

I got the one for colds, did you get the one that says it's for pain? Or the one for colds? Sorry this Pulsatilla stuff is confusing.

It's ok! So Arnica is a completely different homeopathic medicine than Pulsatilla. The 200ck value is the potency. I use Pulsatilla 200ck.

Arnica is good for bruises, injuries and aching pain caused by traumatic injuries.

There are A LOT of different homeopathic remedies for pain. Which one you use depends on the type of pain you have and how it was caused.

 

[Marin]

I think that my body and brain have been conditioned to eating a lot of carbs/sugar. It has just been a shock to my system and therefore, less energy and lower mood. I did feel better this morning so maybe I am adjusting. I was surprised to see how much sugar is in low fat milk. You reference using more salt. I know that salt is not recommended for a lot of folks with auditory issues but I know that there are some "experts" who believe that is no science to back up any theory that diet has any causal connection to tinnitus or hyperacusis.

I had heard the same warnings about salt and ear issues. I tried to eat very low salt for a while and I felt horrible! I felt like fainting every morning, had zero energy, and it didn't seem to help the ear troubles anyway. I feel MUCH better eating a lot of salt.

And yeah, sugar really is addicting and hard to cut out at first.

 

[Athens]

I had heard the same warnings about salt and ear issues. I tried to eat very low salt for a while and I felt horrible! I felt like fainting every morning, had zero energy, and it didn't seem to help the ear troubles anyway. I feel MUCH better eating a lot of salt.

And yeah, sugar really is addicting and hard to cut out at first.

I have loudness hyperacusis rather than pain hyperacusis. I am not certain that this very restrictive low histamine diet will help with loudness hyperacusis. It sounds like people with pain hyperacusis have been the people trying it. It is too restrictive and is causing me to be in too much of a bad frame of mind. I have had a few tough nights of little sleep for the past week. I am also not certain if the OTC enzyme pill that you take with each meal might be causing issues with my medications. I take one during the day and several at night.

 

[Marin]

@Marin, what do you think helped your tinnitus improve the most? Would you say Pulsatilla helped tinnitus, too, or does that only seem to help hyperacusis? Thanks.

The tinnitus gradually lessened as the hyperacusis went down so it's hard to say exactly what helped it. I'm guessing that Pulsatilla and diet helped with inflammation that lead to less tinnitus, but that's just a guess.

If your main concern is tinnitus, there are lots of other homeopathic remedies for tinnitus, but I wouldn't be able to tell you which one is best for you.

 

[Jerad]

The tinnitus gradually lessened as the hyperacusis went down so it's hard to say exactly what helped it. I'm guessing that Pulsatilla and diet helped with inflammation that lead to less tinnitus, but that's just a guess.

If your main concern is tinnitus, there are lots of other homeopathic remedies for tinnitus, but I wouldn't be able to tell you which one is best for you.

@Marin, is your tinnitus still reactive or did that go away? Thanks for the help.

 

[Marin]

@Marin, is your tinnitus still reactive or did that go away? Thanks for the help.

Thankfully, it's not reactive anymore, whew!

 

[StoneInFocus]

@Marin, thanks for sharing your story,

Could you tell us something about your experiences with LLLT?

What, how often, how, what power and what wavelength did you use?

When did you notice something was wrong?

 

[Marin]

@Marin, thanks for sharing your story,

Could you tell us something about your experiences with LLLT?

What, how often, how, what power and what wavelength did you use?

When did you notice something was wrong?

I just tried LLLT once with a neurological chiropractor who had experience with lasers for ear issues. I don't specifically remember what laser or wavelength was used.

I felt fine during and immediately after the treatment. The first indicator of catastrophe was when I woke up in the middle of the night after that single treatment with searing pain on the sides of my head and down my ears. I lay in bed the rest of the night trying to stay calm, but in hindsight the pain was excruciating... and I've been through some very physically painful events in my life compared to this.

The next day, all sounds caused an increase in ear/head pain on top of the constant pain I was now experiencing. Like, I couldn't even open a window in my house and listen to the ambient sounds from outside (30 dB freeway noise in the distance) without immediately experiencing a sharp increase in ear pain/burning.

I kept hanging on thinking things would get better on their own, but they only continued to get worse after for another 8 or 9 months until I started the therapies and diet that I'm on now. For a long time I thought that LLLT treatment had literally killed me.

 

[StoneInFocus]

I am sorry to hear that, that sounds absolutely awful. Thanks for sharing.

 

[Taw]

@Marin, what kind of LLLT device did you use? The one that you stick inside your ear or the one similar to a lamp, near the ear? I know the first type is more dangerous. Thanks.

 

[Marin]

@Marin, what kind of LLLT device did you use? The one that you stick inside your ear or the one similar to a lamp, near the ear? I know the first type is more dangerous. Thanks.

I don't know the exact model because it belonged to the chiropractor, but I do know that it was not a lamp like device. It was more like the laser devices that are aimed down the ear canals.

For a little while I was tempted to try a red light device that would be more of a lamp, but after my reaction to the first treatment I just couldn't risk it.

 

[JaneDo]

@Marin, thank you for sharing your story. I have also a lot of the symptoms you had so this gives me hope. May I ask how your musical tinnitus manifested and how long it took before the musical tinnitus went away? And did it just go away after a while?

Many thanks.

 

[Marin]

@Marin, thank you for sharing your story. I have also a lot of the symptoms you had so this gives me hope. May I ask how your musical tinnitus manifested and how long it took before the musical tinnitus went away? And did it just go away after a while?

Many thanks.

The musical tinnitus showed up a few weeks after the LLLT catastrophe. It's hard to remember exactly when it went away, but I know I had it for several months. Over time it faded into the background and one day I realized it wasn't there anymore.

I'm sorry that you have a lot of the same horrible symptoms. I hope you find something that works for you.

 

[Travis Henry]

I just tried LLLT once with a neurological chiropractor who had experience with lasers for ear issues. I don't specifically remember what laser or wavelength was used.

I felt fine during and immediately after the treatment. The first indicator of catastrophe was when I woke up in the middle of the night after that single treatment with searing pain on the sides of my head and down my ears. I lay in bed the rest of the night trying to stay calm, but in hindsight the pain was excruciating... and I've been through some very physically painful events in my life compared to this.

The next day, all sounds caused an increase in ear/head pain on top of the constant pain I was now experiencing. Like, I couldn't even open a window in my house and listen to the ambient sounds from outside (30 dB freeway noise in the distance) without immediately experiencing a sharp increase in ear pain/burning.

I kept hanging on thinking things would get better on their own, but they only continued to get worse after for another 8 or 9 months until I started the therapies and diet that I'm on now. For a long time I thought that LLLT treatment had literally killed me.

I think LLLT caused my hyperacusis/reactive tinnitus and I am currently homebound with severe pain as you have described... I have really bad thoughts, lately even more so. Ton of noise exposures of course on my part helped bring me to such a state.

Praying I can recover like you have because I'm this close to selling everything I own and bringing national awareness to how bad tinnitus and hyperacusis can be.

Thank you for all the information on this thread.

 

[Marin]

I think LLLT caused my hyperacusis/reactive tinnitus and I am currently homebound with severe pain as you have described... I have really bad thoughts, lately even more so. Ton of noise exposures of course on my part helped bring me to such a state.

Praying I can recover like you have because I'm this close to selling everything I own and bringing national awareness to how bad tinnitus and hyperacusis can be.

Thank you for all the information on this thread.

Oh noooooooooo! I am so so so sorry that you are having a similar reaction to LLLT.

You'll be in my thoughts and I hope that you get some relief soon. My heart breaks for you having to go through this.

 

[Travis Henry]

The only supplements I take are CBD, L-Theanine, a small amount of bee pollen, adrenal cocktails (Potassium, Sodium, Vitamin C), Magnesium spray, and beef kidney (to reduce histamine reactions).

What CBD and what oral spray Magnesium do you use? I just order some beef kidney and bee pollen supplements. I am desperate to survive this, I am barely making it day to day with how loud this is.

 

[PebblesForNow]

The musical tinnitus showed up a few weeks after the LLLT catastrophe. It's hard to remember exactly when it went away, but I know I had it for several months. Over time it faded into the background and one day I realized it wasn't there anymore.

I'm sorry that you have a lot of the same horrible symptoms. I hope you find something that works for you.

Hi Marin - Would you be willing to describe what your musical tinnitus was like? Was it constant or intermittent? Glad it went away for you!

 

[Rockman]

@Marin, I was wondering how long it took for you to see improvement? For me, some days certain sounds aren't as bad, but then the next day back to the way it was. Frustrating!

What were some of things you did to keep your mind distracted?

I saw you're from USA. Just curious what part? I'm from Minnesota.

Thanks.

 

[Marin]

What CBD and what oral spray Magnesium do you use? I just order some beef kidney and bee pollen supplements. I am desperate to survive this, I am barely making it day to day with how loud this is.

Sorry for the late response. Had a lot of things going on so I was pretty unplugged for a couple of months.

I like the Lazarus Naturals CBD/CBG tincture blend. The Magnesium spray I use is actually a body spray and I spray it on my feet. It's Life-Flo Pure Magnesium Oil made with Magnesium Chloride. Too much Magnesium makes me feel really weak and for a long time made my ears feel worse so a spray or two on my feet is all I can handle. It's weird...

 

[Marin]

Hi Marin - Would you be willing to describe what your musical tinnitus was like? Was it constant or intermittent? Glad it went away for you!

It would be like a short tune played over and over and over. It was constant, too. Sometimes it was a happy tune, or sometimes it sounded dark like something that belonged in the soundtrack of a horror movie. I can't remember much more detail at this time, but I do remember that it drove me nuts!

 

[Marin]

@Marin, I was wondering how long it took for you to see improvement? For me, some days certain sounds aren't as bad, but then the next day back to the way it was. Frustrating!

What were some of things you did to keep your mind distracted?

I saw you're from USA. Just curious what part? I'm from Minnesota.

Thanks.

Hello there in Minnesota! I was in California, but I recently moved to Tennessee. I'm loving it here in TN

So at first I had almost a whole year of getting worse. Then when I started the things I mentioned in my post, I very slowly started getting better. The first couple of months were only tiny improvements. After a couple of months I was able to do more and more like going on walks and short trips to the store, and the rate of recovery seemed to speed up, too. I know what you mean about some days things sounding better or worse than other days, and it is extremely frustrating. I still get that! At first the fluctuations were significant, but at this point (over a year into recovery) most of the fluctuations I experience are minor and I try my hardest to ignore them.

To stay distracted I would work on puzzles, color in coloring books, organize my house, spend as much time with my kids as my ears would let me, and when I was finally able to go outside, I would go on lots of nature walks. It was really tiring having to actively keep myself so busy for every waking minute, but thankfully, I didn't have to do that forever. Also, practicing the DNRS program took up a lot of time so that helped to distract me, too.

 

[Rockman]

Hello there in Minnesota! I was in California, but I recently moved to Tennessee. I'm loving it here in TN

So at first I had almost a whole year of getting worse. Then when I started the things I mentioned in my post, I very slowly started getting better. The first couple of months were only tiny improvements. After a couple of months I was able to do more and more like going on walks and short trips to the store, and the rate of recovery seemed to speed up, too. I know what you mean about some days things sounding better or worse than other days, and it is extremely frustrating. I still get that! At first the fluctuations were significant, but at this point (over a year into recovery) most of the fluctuations I experience are minor and I try my hardest to ignore them.

To stay distracted I would work on puzzles, color in coloring books, organize my house, spend as much time with my kids as my ears would let me, and when I was finally able to go outside, I would go on lots of nature walks. It was really tiring having to actively keep myself so busy for every waking minute, but thankfully, I didn't have to do that forever. Also, practicing the DNRS program took up a lot of time so that helped to distract me, too.

Thank you very much for the reply, you are giving so many people hope on here. I'll keep fighting the battles to win the war!

 

[OnlyUP]

I wanted to mention, since Marin used a similar program, that Curable is really helping me. It's an app for chronic pain sufferers that addresses how our brains get wired to over-perceive thing, etc. It can easily be applied to hyperacusis/tinnitus. There's also really great podcast episodes for free on their website (curablehealth.com) that discuss the science of the brain and pain. I developed a lot of other symptoms after getting hyperacusis (back aches, hip, paranoia in general) so it's been really helping me there.

@Marin, I love reading your success story. It gives me so much hope. 7 months in I am at the point of preferring to be around more sound than less. My tinnitus bothers me more than hyperacusis (it's reactive and also stress related). It gives me great hope that yours settled down so much - or your brain settled it down so much!

 

[GeorgeLG]

I wanted to mention, since Marin used a similar program, that Curable is really helping me.

@OnlyUP, I am going to take a look at this app, thanks.

George

 

[Uklawyer]

Also, practicing the DNRS program took up a lot of time so that helped to distract me, too.

You did DNRS for tinnitus? How much did it help?

@OnlyUP - you think that Curable is helping tinnitus? It seems relevant? I keep getting the offers and keep thinking about it. Have you read Sarno and stuff on TMS?

 

[GeorgeLG]

You did DNRS for tinnitus? How much did it help?

I should have clarified, I'm looking at this for pain hyperacusis. I believe that we can improve our chronic pain response.

George

 

[Marin]

You did DNRS for tinnitus? How much did it help?

I did the DNRS program for hyperacusis and pain management... I do think it helped to teach me to not focus on the tinnitus, but tinnitus wasn't my main concern.