To be fair, curing hearing loss won't cure all cases of tinnitus and they are specifically into hearing loss. Most of us would benefit from hearing loss cures BUT, we need to start distinguishing between the symptoms and the etiologies. We need to all get smart and educate ourselves.
LOL, yes!!! Know anyone?
Wouldn't that be the best thing ever to have on your resume? I'd love nothing more. And as an added bonus, I'd be rid of my own tinnitus, which still keeps me up at night, so double whammy!
I like your attitude
You've convinced me on this one. This organization looks pretty legit. The donation link even lets you designate where you want the money to go. Who knows where it goes once the money gets there, but it makes me feel like I have some control. I've donated monthly to three different organizations for the last six months. I'm going to concentrate on this one for a while.
Yes. This is my own choice for donations concerning tinnitus. I know exactly where the donation goes and that each dollar is used for our tinnitus community.If you are interested in donating to Tinnitus Hub - or rather, donating again, because most of you already have - you can be assured that 100% of your donation will go into our projects; we don't have salary or office costs. And we offer the possibility of 'earmarking' your donation for a specific project, e.g. a research project, a podcast episode, media outreach, or anything else you find important. So it will never just disappear into a black hole
Yes back in 2006. They found out the hard way it was a wrong decision.
No not really @Watasha. But the ATA staff kept being reduced to almost no one. When I was active there there was an office full of wonderful dedicated staff. The changes that occurred created a stream of lost revenue on a revolving door of different Executive Directors and the last one I had contact with left to work with the Red Cross.
If people are expected to part with their money for the hope of finding a cure it needs to be done with the chance of making a profit if a treatment is found. Like pooling together $500,000 and the amount of money a person contributes equals their stake in the company. The problem is finding a treatment would probably cost millions.
I've got some Ring Relief. I really want to see everyone involved in those scams sent to prison.We can make it into an Online Museum of Tinnitus!
Somebody better start collecting these... lol.
Yeah, they are probably all "farts & giggles" laughing all the way to the bank, with no remorse whatsoever.
I'm not as quick to dismiss mindfulness as many here are. I'm sure it helps some people. I'm not currently one of them. It does seem silly to keep throwing money at it though. We should certainly be aware of where our donated money goes. I don't know what's more frustrating. The BTA spending money on mindfulness or the ATA spending massive amounts on management.
I'm not surprised - the BTA has its own mindfulness "favourite", whose multiple conflicts of interest in this area are regularly overlooked.
1,000,000% Agree and doesn't surprise me one bit. They are definitely hard headed and stiff necked and hobbling down their own path and they think they are actually doing something tangible. HAHA! It's okay, they have absolutely nothing to do with the biomed corporations that actually are working on treatments and possible cures. The so-called research community is completely disjointed and blind anyway.
That's interesting. Is this what you are referring to? –https://www.nice.org.uk/guidance/indevelopment/gid-ng10077/documents
"The impact of a mindfulness intervention on tinnitus distress - volunteers required
Unbelievable! I am not gonna give a cent more to the BTA if that's the agenda they have.
Yes this is exactly what I am talking about, NICE's work on establishing a "tinnitus pathway" in the UK.
I do believe we might be eligible. @Hazel and I will be looking into this! It might be a good community effort as well, to include our community in the process (when NICE asks us for input as stakeholders).
Commercial influence on medical guidelines like NICE is a big problem and it's not much talked about. Industry can influence things via the medical literature (which gets reviewed to make the medical decisions), via the fact they often give payments to medical doctors, via "patient" charities who take money from industry. You can see how with some guidelines you can end up with a lot of commercial influence and less neutral unbiased influence and patient influence.
It would be great if Tinnitus Hub could join as a stakeholder - hope that you are able to do so.
We'll absolutely strive to do so. I hope to be able to provide an update on this soon. When looking at the current list of stakeholders, there are a number of names that are concerning to me, and I cannot help but wonder what some of their intentions might be... i.e. is patient benefit genuinely their goal, or is it just trying to make another buck by any means necessary (well, you already covered that in your post).
I think we can guess. I have asked the leader of my prior campaign what happened when she tried to register as a stakeholder. I know we didn't get on the official list.
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