I don't think anyone here actually wants to die. We just don't want to live like this. If you can even call this living.So, this is the thread of people who are fucked and want to die...
Home, sweet home lol
I don't think anyone here actually wants to die. We just don't want to live like this. If you can even call this living.So, this is the thread of people who are fucked and want to die...
Home, sweet home lol
Who is going to want to live life with someone who can't go to restaurants or bars.
@Yuuls -- A LOT of people! Love conquers all, even the little things like the inability to go out to bars and restaurants.
100% agree. And all the guys that I do know that have tinnitus have a very very mild case of it so it will be hard to get past that "overreacting with ear plugs" phase. I definitely agree on the feeling like a burden thing. I don't want someone to miss out on certain life experiences or have them ruined by my anxiety.Even if love conquers all, I think there is a huge difference between loving someone who later develops tinnitus and trying to date and meet people with tinnitus. Tinnitus is so limiting and so anxiety inducing for me at least that restaurants, bars are just the tip of the iceberg. I'm afraid to go to movies, exhibitions, theater or even just leave my place, so dating seems to be impossible. I'm anxious and frustrated all the time and very, very afraid of sounds and worsening. I would not want to be a burden on an other person and screw up his life too. Also, I really like kids, but very scared of a potential pregnancy's effect on tinnitus, and kids are so freaking loud. Who would want to put up with all of these issues? I had been depressed way before tinnitus, but this is a new kind of hell.
I think we are both right, we wanna live, but not like that, which makes me at least not wanna live much.I don't think anyone here actually wants to die. We just don't want to live like this. If you can even call this living.
There re so many lifestyles, some people enjoy being home 10 times more than leaving, there's hopeIs our only option to date other people with tinnitus?
Come on Valeri, he's a great person with many qualities beyond your diseases and issues.I've been married for 25 years now and lately all I'm thinking is that I should suggest divorce to my husband, this burden eventually becomes everyone's burden and I can't accept that.
He goes everywhere alone while I'm at home unable to participate in life.
He could still meet someone and live the rest of his life just like any other normal person.
I'm absolutely devastated what my life turned into... because of (out of all body parts) two f....g HOLES in my head!!!!
I often wish it was so at least we'd have 1) concern from the medical community and 2) and end in sight that was out of our hands.If one more person tells me to be very grateful that this is not life-threatening, I'm gonna lose it. Belittling the problem does not help.
I see your point but married life should be more than doing your own thing!Come on Valeri, he's a great person with many qualities beyond your diseases and issues.
If you love him and he loves you (which I'm sure he does because he's still with you in this insane fight), you guys are going to pass through it.
And after all, he's still living, he keeps going out, and by the end of the day always coming back home for you
This isn't aimed directly at you but everyone here who's feeling like they do. It's a tip for masking at night time that literally made my life SOOOO much better and was a game changer for me. If i think about the rest of my life like this yeah its also SOO depressing but I try not to think about it. Ok so here is my number one tip for night time.I can't be the only one here in which tinnitus tones go ****ng haywire late at night.
Amen LOLI want all my hair cells firing on all synapses. No more screeching tones. No more crackling eardrum, no more distortions and hyperacusis bullshit.
Same. I had a feeling I was getting tinnitus. Took a break from the electronic drums, went to Mexico, came back then to what I refer the 15 minutes that wrecked my life when I tried playing them again. Problem is I kinda knew about tinnitus but had no clue what hyperacusis was & had developed it.A few days before I went to the fucking concert that ruined my life, a guy at work was telling me how ears were one of the worst things to have injured because you're always listening. I should've read the fucking sign and not gone. I will never forgive myself for allowing the murder of the happy, full of life, fun loving guy that I was.
FX-322 and the other drugs can't come fast enough. Not only do I want to eradicate the tinnitus I've been cursed with since I was a fucking 10 year old, but I want ALL of my hearing back. That's right, all the way to 20kHz you motherfuckers make it happen!! I want all my hair cells firing on all synapses. No more screeching tones. No more crackling eardrum, no more distortions and hyperacusis bullshit.
@Tweedleman did everyone one else end up with tinnitus?
Mine just happened but when I have a spike I go into self blame mode. I try avoid that now as it causes me anger on top of all the other emotions. Once you stop, a weight is lifted. What would you say to a mate?
@valeri at the end of the day you're the one feeling all of this, he still gets to have an ok life. At least we are appreciative spouses and parents as we see the bigger picture with this condition. The ones around us could have worse companions...
To all newbies - you imagine that our whole life is going to be a repetition of this horrible period over and over again, that's what freaks you out... but it probably won't be.
Don't get me wrong, things aren't always a picnic... but, keep an open mind.
Fading and/or habituation.How can life not be a repetition of this horrible period? Struggling to be able to see it this way
From the sound of it, your tinnitus is moderate, you will get used to it.Hi Jazzer,
Thank you for your kind words. I am struggling greatly because all of the people in know in real life who have tinnitus seem like they're dealing with a different version than me. They just have the classic eeeee in silent rooms.
Mine his a weird hiss, combined with head pressure, sensitivity in my left ear, a whining noise in the left ear that blends in with external noises making them sound weird (I wouldn't say distorted completely) but weird). Every time I swallow, I hear a very loud pop and crackle in my ears which almost relieves the pressure sometimes and then builds back up. I was in a building on the 15th floor or so a few weeks back, and the popping was 10x worse. I was sitting in a silent courtroom and me swallowing was deafening. What could this be?
Anyways, I'm trying to find ways to live with this. Thinking of finding a support group. Going on walks every day instead of laying in bed depressed. Trying to pull myself out of this dark hole I've trapped myself in, slowly.
I haven't had insurance this month but hoping next month I'll be able to see a few more doctors to rule out ETD/TMJ or any other issues.
You will get your sleep back, it just takes some time for people who needed silence to sleep.I live without being able to sleep. I spend almost no sleep a whole night, the next night I sleep a little more because of how tired and exhausted I feel. But the next night it is impossible to sleep again. Its like this all the time. This fucking sounds are so loud.
Yeah like Allan1967.My tinnitus is through the roof. I am trying to get a gun but I was hoping I can last until I receive more money.
I am kinda scared to use an exit bag. My tinnitus is not reducing and the current state is hell. Every day I want to die. I know some people think my survival instinct will kick in but I don't think so. When the tinnitus is through the roof, I think I can do it.
I bet everyone who has committed suicide from this has done it when their tinnitus was loudest or when it was exceptionally loud.
I went for a walk outside today in a very hilly area. This is the second day in a row that this has happened but my hissing sound disappears and gets replaced with a vacuum sound in my right ear specifically. I'd describe it as not the sound a vacuum makes when you're right by it, but the high pitched whine you hear if it's in another room.Fading and/or habituation.
Your tinnitus is very new. It ought to continue to change, albeit incredibly slowly. Don't assume that you will be stuck with what you are hearing now.I went for a walk outside today in a very hilly area. This is the second day in a row that this has happened but my hissing sound disappears and gets replaced with a vacuum sound in my right ear specifically. I'd describe it as not the sound a vacuum makes when you're right by it, but the high pitched whine you hear if it's in another room.
Wtf ears I wonder if it's from traffic noise or from my heart rate going up. I always start to hear it towards the end of my hour long walk.
I thought I was starting to do a bit better by making myself be productive instead of laying in bed depressed but now I'm thinking staying inside might be a better option