Suicidal

It's already been fast-tracked. They could release it before going through phase 3 which could be as early as the end of the year, and from everything I gather they're pushing this drug to market as quickly as possible. Since they've already tried the FDA on fast track status I don't see why they wouldn't opt to be labeled as a "Breakthrough Therapy."
That's so awesome, it really is. I would really like to know where people get these 5-10 year estimates for when viable treatments will be out. It's just uniformed and incredibly pessimistic. I understand how awful tinnitus and HL are and how it affects your outlook on the future, but it's not the 2010's anymore...
 
If any, it won't be in a couple of years, but in a dozen years.
I have no idea how long it takes to bring a drug to market after a completion of Phase 3/Phase 2... If it actually takes years after a study is completed to bring the drug to market, you might be right.
Hearing Regeneration Trials
Frequency Therapeutics - FX-322
in Phase 1.5 (Results: December 2018)
Phase 2 (begin 2019)
Audion / Regain Trial
Phase 1/2 ongoing in the UK
Genvec / Novartis - CGF166
Phase 1/2 ongoing

Trials to begin in 2019 / Things to look out for in 2019
Neuromod (MuteButton)
launching their new device in January 2019 starting in Ireland, then Europe, then the US
results of their latest trial: 1H2019
Xenon Pharma - XEN-1101
Phase 2, expected to wrap up in 2nd quarter 2020
Frequency Therapeutics
Phase 2
Otonomy
1H19: OTO-313 (reduce tinnitus) Phase 1/2
1H19: OTO-413 (repairing synaptic damage) Phase 1/2
OTO-6XX (hair cell regeneration)
2H18: candidate selection
2019: Phase 1/2
University of Minnesota (device for tinnitus)
Phase 3 ?
University of Michigan (device for tinnitus)
perhaps updates on their currently ongoing trial
Estimated Primary Completion Date: September 2022
Estimated Study Completion Date: January 2023
 
I gotta admit, even though it's been such a short while for me (6 weeks, give or take a few days) I've been pretty low and suicidal since this started. You know what's the worst thing about this all though? I've been depressed and suicidal before, for years. My mental health has never been too great.

I was finally really starting to improve, or at least be more hopeful, and looking forward to 2020 and things I planned to do. Maybe I'll still get to if this T disappears, but I've felt so low and it feels so much worse knowing this started RIGHT after I finally started to feel better.

Life just doesn't stop.

Same for me
 
My country has euthanasia laws. It's not easy though to be approved for the procedure. Your family needs to support your request as well iirc. It's not just up to you and you need to undergo an extensive evaluation by several doctors and psychiatrists.

The most difficult part is convincing them that you tried everything, all possible treatments, to no avail and that you're still in inhumane suffering. It's likely very difficult, if not close to impossible, to get approved for tinnitus. It's not even considered to be a disability in my country.
It's not considered a disability in any country but is this site and their sponsors the ATA, BTA etc. doing anything about that? No, nothing. Zero.

No one other than other tinnitus sufferers have any clue about the condition and even then, it's limited. People whine about others here posting about their suffering and suicidal thoughts but SAY NOTHING about how this condition is ignored even by the advocates and related agencies.

I don't understand it. I feel like I am the only one mad about it. When I am gone, it'll be zero.
 
Realistically I give myself a 2 year. If I'm suffering past then, I don't want to continue.

I'm not going to sit at home all day for years to come just to feel more lonely and pick up various other disorders along the way

If I'm lucky, I'll develop something soon that will take me out
 
@Orions Pain what really hurts me the most, is that Christmas 2019 was my first in over 10 years I didn't struggle at all. My mental illnesses were in the background, and I've had the happiest Christmas since I was a small child. One and a half week later, I end up with tinnitus. But I guess that's just life. I still have moments of happiness - actually, even though I felt horrible this morning, I'm feeling pretty calm right now, listening to some music and writing a bit :)

But I absolutely didn't need the reminder of how awful being genuinely suicidal felt. Hang in there if you can, I will try too.
 
I had conversations in real life with people who have depression and mental issues and I still think they are in better shape than myself and others here with severe tinnitus.

This is simply not true. My mom is severely depressed right now and is suicidal. She has already tried to take her own life twice by overdosing and I can assure you that the pain and torment she feels is every bit as bad as what some are facing on this forum.

There can be no distinction made between the two conditions when it comes to suffering, so there's no point in making these comparisons. To me, it just shows ignorance towards real depression and how bad it can get. Many people have lost their lives to it just like tinnitus sufferers have, and today, a TV presenter in the U.K. took her own life (which was most likely because of depression).

Depression is still the biggest killer of young males.
 
I still think they are in better shape than myself and others here with severe tinnitus.

Do not assume till you walk in their shoes. Assumption is a fallacy. Walk in their shoes, live their lives, then validate your statement....

As someone that lives with a VERY bad case of tinnitus, I have the most respect for all that suffer from tinnitus. I also, I have the most respect for those that have hardship outside tinnitus, that are doing their best to live their lives. Never assume how someone feels, have compassion towards their struggles as well.....
 
My tinnitus is extremely loud today. Maybe its because I got kicked out of the house and I used the car horn yesterday before I left because I was a little mad. I don't know anymore I hate tinnitus and I seriously worry my hearing is deteriorating because the sounds never stop and get worse at times. I wish seeing an audiologist wasn't so expensive.
 
This is simply not true. My mom is severely depressed right now and is suicidal. She has already tried to take her own life twice by overdosing and I can assure you that the pain and torment she feels is every bit as bad as what some are facing on this forum.

There can be no distinction made between the two conditions when it comes to suffering, so there's no point in making these comparisons. To me, it just shows ignorance towards real depression and how bad it can get. Many people have lost their lives to it just like tinnitus sufferers have, and today, a TV presenter in the U.K. took her own life (which was most likely because of depression).

Depression is still the biggest killer of young males.
I had depression before and I know lots of people who have it. There's no comparison to someone who has severe tinnitus. No one is going to convince me otherwise.
 
Do not assume till you walk in their shoes. Assumption is a fallacy. Walk in their shoes, live their lives, then validate your statement....

As someone that lives with a VERY bad case of tinnitus, I have the most respect for all that suffer from tinnitus. I also, I have the most respect for those that have hardship outside tinnitus, that are doing their best to live their lives. Never assume how someone feels, have compassion towards their struggles as well.....
Then your tinnitus isn't that bad.

I have had depression before tinnitus and I know others who have depression. Whatever it is that has them depressed, explainable or unexplainable, they still don't have loud fucking tones in their head and ears!
 
My tinnitus is extremely loud today. Maybe its because I got kicked out of the house and I used the car horn yesterday before I left because I was a little mad. I don't know anymore I hate tinnitus and I seriously worry my hearing is deteriorating because the sounds never stop and get worse at times. I wish seeing an audiologist wasn't so expensive.

Yeah save your money
 
There is no guarantee they can help you. I am on my 3rd and nada!
They're useless unless your tinnitus is mild.

Some people here say their tinnitus fluctuates and they had help from audiologists. But, if it's loud and intrusive 24/7, there's nothing that they can do. Some people claim hearing aids help while others say they made things worse.

I don't think anything helps and I wish there was an easy way to commit suicide.
 
My tinnitus is extremely loud today. Maybe its because I got kicked out of the house and I used the car horn yesterday before I left because I was a little mad. I don't know anymore I hate tinnitus and I seriously worry my hearing is deteriorating because the sounds never stop and get worse at times. I wish seeing an audiologist wasn't so expensive.
Stress and anxiety will make it worse.
 
Then your tinnitus isn't that bad.

I have had depression before tinnitus and I know others who have depression. Whatever it is that has them depressed, explainable or unexplainable, they still don't have loud fucking tones in their head and ears!

Your comments are insulting to anyone who has had to deal with real physical depression at a level that is seriously debilitating, either personally, or via a family member or friend.

The only thing I can be sure of is that your previous depression wasn't too serious and those whom you have spoken to either have mild depression or are actually just "sad." I think many people today think they are depressed when they actually just have a low mood which is nothing like severe depression. I've witnessed things that no son should ever have to.

I understand that your comments are born out of frustration and that it's likely you don't even mean the things you say, but this isn't the first time you've made this comparison and I don't think it helps anyone, including yourself.

I have severe "multi-sound" tinnitus that I hear all the time. My head is a constant cacophony of noise and it had me on my knees begging for death, just like you, so I really do understand your emotions and where you're coming from. I lost everything that I'd built my life around which was utterly devastating.

Life can be really cruel, Pete, and I sincerely wish you well, but comparing your problems to others isn't going to help you because your pain and suffering will always win, as it's your life. Dealing with debilitating health issues is never easy especially when the problems you are facing are new to you. We often have no choice but to look for the inner strength that we never knew we had or existed, but it's there somewhere. With the passing of time, there's a good chance that the impact it has over you will lessen but this takes a lot of patience.

It's incredibly sad to see so many of you in such pain, but I believe you can all weather the storm, I know you can. There's also a lot of potential treatments in the pipeline as well, so never say never.
 
Just that people kill themselves because of depression tells that it must be also debilitating. Unfortunately there is way more research done on depression than on tinnitus.
 
Just that people kill themselves because of depression tells that it must be also debilitating. Unfortunately there is way more research done on depression than on tinnitus.
Yes very good point... at least there are actual treatments for depression and more awareness...

Heck I even see govt. commercials for depression... never ever seen a tinnitus commercial...
 
They're useless unless your tinnitus is mild.

Some people here say their tinnitus fluctuates and they had help from audiologists. But, if it's loud and intrusive 24/7, there's nothing that they can do. Some people claim hearing aids help while others say they made things worse.

I don't think anything helps and I wish there was an easy way to commit suicide.
Sorry for your suffering, believe me I'm in the same boat. 5am now, wide awake.
 
Your comments are insulting to anyone who has had to deal with real physical depression at a level that is seriously debilitating, either personally, or via a family member or friend.

The only thing I can be sure of is that your previous depression wasn't too serious and those whom you have spoken to either have mild depression or are actually just "sad." I think many people today think they are depressed when they actually just have a low mood which is nothing like severe depression. I've witnessed things that no son should ever have to.

I understand that your comments are born out of frustration and that it's likely you don't even mean the things you say, but this isn't the first time you've made this comparison and I don't think it helps anyone, including yourself.

I have severe "multi-sound" tinnitus that I hear all the time. My head is a constant cacophony of noise and it had me on my knees begging for death, just like you, so I really do understand your emotions and where you're coming from. I lost everything that I'd built my life around which was utterly devastating.

Life can be really cruel, Pete, and I sincerely wish you well, but comparing your problems to others isn't going to help you because your pain and suffering will always win, as it's your life. Dealing with debilitating health issues is never easy especially when the problems you are facing are new to you. We often have no choice but to look for the inner strength that we never knew we had or existed, but it's there somewhere. With the passing of time, there's a good chance that the impact it has over you will lessen but this takes a lot of patience.

It's incredibly sad to see so many of you in such pain, but I believe you can all weather the storm, I know you can. There's also a lot of potential treatments in the pipeline as well, so never say never.
I'm sure acute depression is also hell, but I heard depressed people sleep most of the time... sounds wonderful, just sleep and more sleep.
 
I'm sure acute depression is also hell, but I heard depressed people sleep most of the time... sounds wonderful, just sleep and more sleep.

No. The worst kind of depression is a living hell and is very much comparable to the suffering one can go through with a bad case of tinnitus. Anything that is awful enough to make someone end their life is pure evil and more needs to be done to help all those who suffer in such inhumane ways, regardless of the reason.

It doesn't make your own situation any better to believe that you are suffering more than others. It's a bad mindset to get yourself into.
 

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