It began in 2017, increased in 2018 but was stable, then accidental noise exposure in 2020 put me over the edge - much louder, highly reactive and unpredictable. Before this, I was well habituated but now find that impossible.
I fully understand. Tough choice. You do have the chance to go back on the medicine in case you stop. Going from 1 out of 3 bad, barely functioning days to 1 out of 10 (10%) seems like a great improvement. Gives me hope that I can one day too can make such improvements, with or without medicine. Eager to see the study results. This is one of the least invasive medicinal treatments in the pipeline.
Seems to be - my tinnitus is very reactive (always increases with sound exposure, but often also for no apparent reason), so with the treatment, the level of severity on 'bad' days is somewhat less - it's enough of an effect for me to want to continue taking it given its low risk and no obvious adverse effects. I believe people in the study experienced a range of benefit - dramatic in some cases, minimal in others.
Based on the last modification date which changed the participation status but did not update the estimated completion, and this was one month before closure. I assume the completion date is correct.
@ploughna, did you see Dr. Newman to get the prescription after the study or someone else? If it was a different doctor, would you mind sharing? Thanks!
Honestly, I don't know - as mentioned above, Dr. Newman is now retired so I need to find a new source once my current prescription runs out.
DO NOT BUY THIS. It's a scam! Oxytocin needs to be refrigerated, it degrades very quickly in room temperature. That definitely is NOT the pharmaceutical quality Oxytocin therefore.
Look at my post above. This isn't just regular Oxytocin. It has been modified.
@ploughna, would you mind sharing the exact prescription? That way someone could reach out to a compounding pharmacy with exactly what they prescribed for the study. Assuming that's what you have. Sorry if you've already done earlier in the thread.
Sorry, I don't want to post my personal prescription, but the details are on both the clinical study webpage and in even more detail on the patent application both referenced above. The exact dosage is tailored to the patient (also detailed in the patent application).
This is a matter of giving me relief and keeping me on this planet from my spinning raging level 90 dB tinnitus. Any help wanted on getting proper prescription for this.
Any help on getting the proper prescription done by my GP would be welcomed. I am at the end of my rope with how reactive my tinnitus is and it's insanely loud. Would do anything for any improvement.
Travis, call the hospital where this trial is ongoing. Ask for the one overseeing the trial at the moment.
I just messaged my MD about it and she said:
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