Hello everyone,
I have been reading this site for the past few weeks, and finally decided to join. I have been very impressed by some of the scientific and medical knowledge shared here.
I have had low-level T at least since high school (I'm in my early 40's now), and it never bothered me. On this site I listed the onset of my T as 7/17, because it has become significantly louder this month, and I would currently describe it as moderate. I'm not sure of the cause because several things happened in the same few weeks: exposure to noise, 2 injections of steroids & anesthetics within one month, and high prescription doses of ibuprofin. I wore earplugs throughout most of the noise incident (always carry them with me), and had no idea medications could cause or exacerbate T, until after it became louder and I subsequently began my research.
I am a school teacher and a mother. My 12 year-old son is high-functioning on the autism spectrum, but when he was younger he was not high-functioning. I learned a lot about the incompetance of many doctors then, and the many issues of our medical system. I learned then that I would have to educate myself about my son's disorder, find every possible treatment, and dedicate myself to improving his future. This quest involved finding the best specialist mainstream and alternative doctors, the best schools, the best therapists, the best diet, and the best nutritional supplementation. Then it consisted of implementing all of the recommendations. And for the most part, his journey has been successful. At age four, I asked one of his therapists if he would ever be able to talk, even a few words. Now he's a successful student at school (& not in a special needs program). There is still progress to be made, but he's pretty much out of the woods, thanks to God and the so many wonderful people in his life.
Why did I write a paragraph about my son? Because I think his journey parallels my own. Just as his disorder was initially written off as incurable, so was mine. The "professionals" who saw such a limited future for him were wrong, and the ENT who told me that nothing could be done was wrong, too.
After a few weeks of research (I'm on summer vacation from work), I have formed some conclusions about this disorder. These are my opinions, based on what I learned about the body both from my research during the early years of my son's disorder and also from the research I've done over the past few years about T.
I have been reading this site for the past few weeks, and finally decided to join. I have been very impressed by some of the scientific and medical knowledge shared here.
I have had low-level T at least since high school (I'm in my early 40's now), and it never bothered me. On this site I listed the onset of my T as 7/17, because it has become significantly louder this month, and I would currently describe it as moderate. I'm not sure of the cause because several things happened in the same few weeks: exposure to noise, 2 injections of steroids & anesthetics within one month, and high prescription doses of ibuprofin. I wore earplugs throughout most of the noise incident (always carry them with me), and had no idea medications could cause or exacerbate T, until after it became louder and I subsequently began my research.
I am a school teacher and a mother. My 12 year-old son is high-functioning on the autism spectrum, but when he was younger he was not high-functioning. I learned a lot about the incompetance of many doctors then, and the many issues of our medical system. I learned then that I would have to educate myself about my son's disorder, find every possible treatment, and dedicate myself to improving his future. This quest involved finding the best specialist mainstream and alternative doctors, the best schools, the best therapists, the best diet, and the best nutritional supplementation. Then it consisted of implementing all of the recommendations. And for the most part, his journey has been successful. At age four, I asked one of his therapists if he would ever be able to talk, even a few words. Now he's a successful student at school (& not in a special needs program). There is still progress to be made, but he's pretty much out of the woods, thanks to God and the so many wonderful people in his life.
Why did I write a paragraph about my son? Because I think his journey parallels my own. Just as his disorder was initially written off as incurable, so was mine. The "professionals" who saw such a limited future for him were wrong, and the ENT who told me that nothing could be done was wrong, too.
After a few weeks of research (I'm on summer vacation from work), I have formed some conclusions about this disorder. These are my opinions, based on what I learned about the body both from my research during the early years of my son's disorder and also from the research I've done over the past few years about T.
- T is a neurological disorder, not a disorder of the ear. (This needs to be more widely understood in the medical and pharmaceutical research community.) ENTs are the wrong type of doctors for these patients to be referred to.
- Like autism, T is a disorder that some people are born with a genetic predisposition to, but like autism, the predisposition only manifests into the disorder if a certain environmental trigger occurs (for T: noise, certain medications, etc. / for autism: not yet known).
- High homocysteine is likely one marker for predisposition to both autism and T.
- You can reduce your susceptibility to getting or aggravating T by improving your internal health, particularly by maintaining good levels of glutathione (primarily via NAC & ALA), zinc and B vitamins (particularly B12). (PubMed database studies I've looked at are what seem to indicate this.)
- Listening therapies can often be helpful in modulating sensory dysfunction. Specially modulated tapes helped my son immensely with his sensory integration issues. I'm sure notched white noise & music can work for T, just as the research studies I've seen indicate.
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