This Is Why We Need a Cure: Mother Who Suffered Tinnitus Took Her Own Life, Inquest Hears

[dpdx]

https://www.eastbourneherald.co.uk/...tus-took-her-own-life-inquest-hears-1-8566140


Tinnitus ruins the lives of many people (myself included), it dosent choose to whom it will happen . It ranges from mild, moderate, severe, and extreme. For people who have mild tinnitus they are lucky as they can live a somewhat normal life, but with limitations. I feel sorry for the moderate and severe tinnitus individuals and especially extreme. I hope treatment comes out soon so we can get all the help we need. Therefore we can move on with our lives. My dream is to continue my life where I have left off (my life stopped on September 23,2017 and especially on January 17/18). I hope the medical community realizes that Tinnitus is not just a minor ache, it is a serious disease like Aids/Cancer, the difference it that it destroys a person very slowly, first mentally then physically.

My thoughts and prayers are with everyone suffering with this terrible condition.

 

[glynis]

@dpdx,
Can you copy and paste the story to me by pm as I can not access it as keep my add blockers on.
love glynis

 

[Terrel]

@dpdx,
Can you copy and paste the story to me by pm as I can not access it as keep my add blockers on.
love glynis

Hey Glynis this is a little off topic but if I've been experiencing dizziness for over a month and a half(not vertigo) no balance problems and I walk fine what could be the possible problem?

 

[glynis]

@Terrel ,
It could be blood pressure,Hydrops or Labyrinthitus.
I would get checked out tomorrow before the weekend.
love glynis

 

[Terrel]

@Terrel ,
It could be blood pressure,Hydrops or Labyrinthitus.
I would get checked out tomorrow before the weekend.
love glynis

Thanks Glynis, what is hydrops? And my post definitely doesn't sound like meneires?

 

[glynis]

@Terrel ,
Hydrops is when crystals have developed on the ends of the tiny hairs in your cochlear and can cause dizziness without the vertigo of Menieres or hearing loss.
love glynis

 

[Terrel]

@Terrel ,
Hydrops is when crystals have developed on the ends of the tiny hairs in your cochlear and can cause dizziness without the vertigo of Menieres or hearing loss.
love glynis

Is hydrops easy to get rid of?

 

[glynis]

It can come and go bit I'm not sure about cured.
Maybe some other member one can answer that .
Medications can help contol it.
love glynis

ps you might not have it so please get checked out.

 

[Wolfears]

https://www.eastbourneherald.co.uk/...tus-took-her-own-life-inquest-hears-1-8566140


Tinnitus ruins the lives of many people (myself included), it dosent choose to whom it will happen . It ranges from mild, moderate, severe, and extreme. For people who have mild tinnitus they are lucky as they can live a somewhat normal life, but with limitations. I feel sorry for the moderate and severe tinnitus individuals and especially extreme. I hope treatment comes out soon so we can get all the help we need. Therefore we can move on with our lives. My dream is to continue my life where I have left off (my life stopped on September 23,2017 and especially on January 17/18). I hope the medical community realizes that Tinnitus is not just a minor ache, it is a serious disease like Aids/Cancer, the difference it that it destroys a person very slowly, first mentally then physically.

My thoughts and prayers are with everyone suffering with this terrible condition.

As long as we have people within the tinnitus community, whom are fortunate enough to be able to bear their tinnitus telling those who are not so fortunate to "suck it up", not much will happen in that regard, since it makes the true sufferers look like bunch of cry babies who simply "refuse to get on with their lives".

This situation makes it harder to get the message across.
That message is of course the fact, that everyone has different genetic make-up, everyone experiences tinnitus differently and everyone has a different breaking point.
Most normally functioning individuals don't resort to suicidal thinking for no reason.

The mainstram tinnitus propaganda machine will of course be more than happy to focus on the "sucess stories" and hold them as a golden standard for everyone else.
This way there is no pressure on them to come up with the cure.

 

[Terrel]

It can come and go bit I'm not sure about cured.
Maybe some other member one can answer that .
Medications can help contol it.
love glynis

ps you might not have it so please get checked out.

Scheduled an appointment for today, also forgot to mention that my right ear has felt unpleasant and has hurt for a little bit

 

[glynis]

@Terrel ,
Let me know how you get on.
love glynis

 

[Contrast]

The year is 2018 and there are no therapeutics that directly target the cochlear vestibular system and ENT's are not enthusiastic to here people complain about the lack of progress in the field. Most audiologist are only basic doctors who test hearing and at best in our current day otologist can correct middle ear problems using surgery. But if anything in the inner ear gets damaged it's a life sentence of misery, no one can do anything and most don't care. They must have a prefixed mindset that inner ear damage is untreatable and that it's a fairytale to even research it.

Why isn't there an outrage? Most people just slap on a hearing and and submit to tinnitus or live like hermits with hyperacusis. The only way something will get done is if people complain about the underlining problem not being solved.

Because tinnitus is a neurological condition that may or may not be solved by treating hearing loss obviously it does require cross discipline research of otology and neuro-science. Cross discipline research is not common, research for non life threatening conditions is not common, basically if the community doesn't speak up for help and show appreciation for the scientist that actually do care. We're going to be here another few decades saying a cure is 10 years away ect. While Jastreboff and people like minded continue to profit off suffering and CBT's manage to occupy a niche that modern science cannot address.

Also Homeopathy has a HUGE role to play in scamming people with hearing loss and tinnitus!
SMH, normies can tolerate a life like this I can't stand it! Previously generations had the mental toughness to deal with this, our generation doesn't. Mental toughness isn't a virtue or anything it's just a way to cope with suffering emenslessly brought about by psychological abuse.

 

[Tinker Bell]

Sad story but odd that the headline only mentions tinnitus. Did you read the article? It mentions tinnitus once and instead repeatedly mentions that she was having trouble coping following her divorce, that she had not been the same since the divorce. That the divorce was a "significant thing in her life that really upset her." She began taking antidepressants as a result of anxiety from the divorce and then experienced tinnitus.

Divorce can be incredibly difficult. I wish comfort for her loved ones, especially her children.

We absolutely need a cure for tinnitus, but we also need better mental healthcare to help people who are struggling with anxiety, depression or coping with significant life changes.

 

[glynis]

@Contrast ,
If Jasterboff TRT took no money out of resurch and resurch was pushed more would you still be against TRT ?
Or is it that people get brainwashed with TRT and helped to cope instead of a real cure?
love glynis

 

[dpdx]

https://www.express.co.uk/news/uk/9...er-killed-himself-tinnitus-headphones-suicide

Please Medical Community do something about Tinnitus and Hyperacusis. This is not a headache, stomachache, sprained foot, etc. This is something along the lines of aids/cancer, it kills a person very very very slowly, first by destroying their mental health (no sleep, depression, anxiety, extreme stress) then it goes physical (eye floaters, visual snow, high blood pressure). I strongly urge the medical community to do something about Tinnitus. I wish I had 20-25 years of T and H free life. I would gladly then die of cancer or heart attack or whatever, just not this..anything but this...… I am so scared of my future.

 

[Terrel]

@Terrel ,
Let me know how you get on.
love glynis

Just got done, they said my left ear looked fine but my right ear has Eustachian tube dysfunction. Prescribed me some Flonase, do you think the ETD is what's causing the dizziness. He also thinks I have vertigo although I told him nothing is spinning for me so it can't be vertigo

 

[Contrast]

@Contrast ,
If Jasterboff TRT took no money out of resurch and resurch was pushed more would you still be against TRT ?
Or is it that people get brainwashed with TRT and helped to cope instead of a real cure?
love glynis

the first one is more concerning of habituation esque therapies taking priority

To be honest most people aren't 'brainwashed by TRT but they seem to treat it like it's the only option that will ever exist if they don't hear about research.

 

[Contrast]

TRT gets more attention and praise then research does within the audiology community.

It's a seriously unmet human need to address problems in the cochlea and audiotory brain themselves

 

[glynis]

@Terrel,
Dizziness is a inner ear problem or blood pressure high or low or low oxygen if asthmatic or dehydration.
not ETD in my view.
love glynis

 

[glynis]

@Contrast,
I do think tinnitus research needs pushing to find a cure and I think maybe a world wide petition sent to the highest of people in each country of what it's like to live with tinnitus and needs a treatment that everyone can afford.
More awareness is needed and would be great for an advert on tv to keep on regularly supported by all Tinnitus associations around the world.
We live in hope.
love glynis

 

[dpdx]

TRT gets more attention and praise then research does within the audiology community.

It's a seriously unmet human need to address problems in the cochlea and audiotory brain themselves

The problem is that people think that tinnitus and hyperacusis is nothing. For people who have MILD T they also need to push for a cure because you never know when it will worsen. I think CBT therapy is utter crap..dont know much about TRT but it seems like a waste of time and money. Unless TRT can lower my Tinnitus volume then I will praise it daily. Coping and getting used to it is not an OPTION for me. I wake up every day with a "new surprise", yesterday I had a tone in my R ear (healthy ear) and today I dont. You cant habituate with changing tones...not possible.

 

[SugarMagnolia]

Sad story but odd that the headline only mentions tinnitus. Did you read the article? It mentions tinnitus once and instead repeatedly mentions that she was having trouble coping following her divorce, that she had not been the same since the divorce. That the divorce was a "significant thing in her life that really upset her." She began taking antidepressants as a result of anxiety from the divorce and then experienced tinnitus.

Divorce can be incredibly difficult. I wish comfort for her loved ones, especially her children.

We absolutely need a cure for tinnitus, but we also need better mental healthcare to help people who are struggling with anxiety, depression or coping with significant life changes.

When I was a college student, I was really into Camus. This line always stuck with me:

"They always think one commits suicide for a reason. But it's quite possible to commit suicide for two reasons."

 

[Tinker Bell]

When I was a college student, I was really into Camus. This line always stuck with me:

"They always think one commits suicide for a reason. But it's quite possible to commit suicide for two reasons."

Absolutely. Divorce, anxiety and tinnitus are an awful combination. But despite the misleading headline it's clear from the article that tinnitus alone was not the cause and that she was unfortunately struggling even before tinnitus.

 

[dpdx]

Absolutely. Divorce, anxiety and tinnitus are an awful combination. But despite the misleading headline it's clear from the article that tinnitus alone was not the cause and that she was unfortunately struggling even before tinnitus.

Tinnitus can still drive people to suicide. It cant be only attributed to stress. Tinnitus is the thing that brakes the camels back. Read below.

https://www.dailystar.co.uk/news/latest-news/699014/Man-dead-suicide-Bose-headphones-caused-tinnitus

https://www.birminghammail.co.uk/news/midlands-news/gran-left-suicidal-after-loud-14767318
https://uk.blastingnews.com/london/...ide-after-battle-with-tinnitus-002116835.html

https://www.mirror.co.uk/news/uk-news/sorry-loud-man-killed-himself-11282292

https://www.theguardian.com/society/2017/may/05/inspiral-carpets-drummer-craig-gill-inquest-tinnitus

http://www.oldham-chronicle.co.uk/n...04820/suicide-father-was-tortured-by-tinnitus

https://www.express.co.uk/news/uk/623763/Catastrophic-pain-tinnitus-man-death

and the list goes on and on.....

I thought about it and I think we all need to push for a cure, habituated or not, mild t or not. We need to do it for other people who are suffering and for ourselves, we never know when it will get worse, it could get worse unexpectedly. It is better to have a treatment just so we can sleep safely and surely that there is something that can help us if it gets really bad.

 

[Terrel]

@Terrel,
Dizziness is a inner ear problem or blood pressure high or low or low oxygen if asthmatic or dehydration.
not ETD in my view.
love glynis

Yeah he also prescribed me anti-vertigo medicine but I told him I don't have vertigo because nothing has ever spinned for me. Glynis my right ear has been feeling a little tight with pain as well, they did some test on my right ear so I don't know if that's why it's feeling the way it is. In your honest opinion what do you think it is that I've been experiencing lately?

 

[SugarMagnolia]

we never know when it will get worse, it could get worse unexpectedly. It is better to have a treatment just so we can sleep safely and surely that there is something that can help us if it gets really bad.

The fear of my T getting worse causes me more distress than the ringing. Every high-pitched tone I hear makes me wonder if this is it - the one that elevates my T to a point I can't bear.

 

[Tinker Bell]

Tinnitus can still drive people to suicide. It cant be only attributed to stress. Tinnitus is the thing that brakes the camels back. Read below.

https://www.dailystar.co.uk/news/latest-news/699014/Man-dead-suicide-Bose-headphones-caused-tinnitus

https://www.birminghammail.co.uk/news/midlands-news/gran-left-suicidal-after-loud-14767318
https://uk.blastingnews.com/london/...ide-after-battle-with-tinnitus-002116835.html

https://www.mirror.co.uk/news/uk-news/sorry-loud-man-killed-himself-11282292

https://www.theguardian.com/society/2017/may/05/inspiral-carpets-drummer-craig-gill-inquest-tinnitus

http://www.oldham-chronicle.co.uk/n...04820/suicide-father-was-tortured-by-tinnitus

https://www.express.co.uk/news/uk/623763/Catastrophic-pain-tinnitus-man-death

and the list goes on and on.....

I thought about it and I think we all need to push for a cure, habituated or not, mild t or not. We need to do it for other people who are suffering and for ourselves, we never know when it will get worse, it could get worse unexpectedly. It is better to have a treatment just so we can sleep safely and surely that there is something that can help us if it gets really bad.

Having written a suicide note last year, I am well aware that tinnitus can drive one to suicide.

One of those links was actually an encouraging article about a woman who considered suicide but instead found support. While I am no longer suicidal, I still very much want a cure. But until we have a cure, supporting one another and learning to cope can be vital.

 

[fishbone]

As long as we have people within the tinnitus community, whom are fortunate enough to be able to bear their tinnitus telling those who are not so fortunate to "suck it up", not much will happen in that regard, since it makes the true sufferers look like bunch of cry babies who simply "refuse to get on with their lives".

This situation makes it harder to get the message across.
That message is of course the fact, that everyone has different genetic make-up, everyone experiences tinnitus differently and everyone has a different breaking point.
Most normally functioning individuals don't resort to suicidal thinking for no reason.

The mainstram tinnitus propaganda machine will of course be more than happy to focus on the "sucess stories" and hold them as a golden standard for everyone else.
This way there is no pressure on them to come up with the cure.

This is a misconception many have here. Positivity or negativity WILL NOT make a difference or speed up the research process. I doubt a cure will come here faster, because we are either positive or negative. Tinnitus is a serious issue, no doubt. It can ruin lives and set us back. I been at this for a long time and know that this is a reality.

Tinnitus can be caused my many different factors. It's related to how the brain works and functions. This is a VERY complex matter and not very easy to figure out. I want you folks to read what @Greg Sacramento writes. Maybe read what I write. All of us on this site face tinnitus every second of our lives. I am sorry that there is no cure right now. I don't know if one will come tomorrow. HOPEFULLY one will come before I leave this planet....

I am all for pushing for a cure, I have wanted it for 30 years. I have NOT been advocating positivity on a forum for 30 years, so it makes no difference. What is here is here, reality is reality. I am simply telling you folks to live your lives. I was in the gym and doing my treadmill. I have developed arthritis in my toes now. It hurts that damn much. My tinnitus was LOUD and intrusive as usual. My whole body felt like it was going to collapse. I was in that much pain. I still finished my treadmill routine and left.

Since there is no cure right now. Should we just stop living? You folks tell me this. I will not stop living because these damn ears ring. By me stopping my life or living my live makes NO DIFFERENCE.......in how fast a cure will come or not. It's up to you good people to decided, but I make the choice to live and try to enjoy the one life I have.....

Always keep fighting the good battle my friends.....Bless All

 

[glynis]

@Terrel ,
A basic pain medication will sort out the pressure and pain and see how you are tomorrow.
ETD is diagnosed better with a tiny camera up your nose so he might be guessing.
If your BP is ok have a blood test to rule out anemia.
Nose spray will clear tubes but not dizziness if it's inner ear trouble.
Labyrinthitus, Hydrops,Early Menieres only time will tell so keep a log of your symptoms.
A virus through ear infection or throat infection could have caused Labyrinthitus but that would clear up with medication so you can rule that out if you keep getting it in months to come if have no infection.
love glynis
get bloods done for inflammatory markers and iron.
love glynis

 

[Terrel]

@Terrel ,
A basic pain medication will sort out the pressure and pain and see how you are tomorrow.
ETD is diagnosed better with a tiny camera up your nose so he might be guessing.
If your BP is ok have a blood test to rule out anemia.
Nose spray will clear tubes but not dizziness if it's inner ear trouble.
Labyrinthitus, Hydrops,Early Menieres only time will tell so keep a log of your symptoms.
A virus through ear infection or throat infection could have caused Labyrinthitus but that would clear up with medication so you can rule that out if you keep getting it in months to come if have no infection.
love glynis
get bloods done for inflammatory markers and iron.
love glynis

Yeah they drew my blood as well, said I should know the results by tomorrow or Monday.