Tinnitus... 10,640 People Just on This Site and There's Nothing That Helps

[Atlantis]

I know he has donated a lot of time and effort toward tinnitus awareness. Not sure if he was paid or not. He is really the only major Celebrity who has had the courage to really tell his story....Thats priceless

Mr. Shatner has been interviewed in one video for ATA, what else has he done? Can you look up his twitter and facebook and see if he mentions tinnitus?

 

[jss]

Mr. Shatner has been interviewed in one video for ATA, what else has he done? Can you look up his twitter and facebook and see if he mentions tinnitus?

Yes he had done a ton of work for tinnitus awareness more than any enter celebrity by far, and probably did most of it for free since he donates to the ATA.

In 1995 he testified before Congress in support of tinnitus research funding on behalf of the ATA. He has told his story on most of the major networks in interviews ABC,CBS and NBC. Spoke about in detail on David Letterman, NPR Radio, Has done fundraising for Action on Hearing Loss....the list goes on look it up.

Google him, watch the interviews on youtube or read the articles where he mentions tinnitus.

Besides Tinnitus he has done lots of charity work for other organizations, including habitat for humanity. In 2014 NASA even gave him the Distinguished Public Service medal - highest award NASA gives a non-government employee, for his charity work.

 

[derpytia]

@jeannie - if you look at the comment above, you can perhaps appreciate that this "awareness thing" to some degree starts with the members themselves.

As an advocate, I will however, make the tinnitus community the following deal: now that we are speaking of member numbers - as per your introductory message - if the following post gets a total of 250 ratings (likes/shares combined)...



...and you raise a total of USD 500,- within a reasonable time frame, I will write up a message of awareness, where I pick the top 3 to 4 Facebook-posts from the year that has just passed, and for each message, I will explain the rationale for choosing that post. We will then share that on the social media as a boosted item. The picks will consist of science/awareness FB-messages (which will be embedded in the TT-post itself).

You can ask @Markku for help with the above i.e. setting up a donation page - indeed we should wait for his approval (I am not a member of staff). As such, I leave it in your hands.

attheedgeofscience
07/JAN/2016.

Hey @Markku I have money to spare for donations this time around. Can we do this?

 

[attheedgeofscience]

Hey @Markku I have money to spare for donations this time around. Can we do this?

I would rather that a couple of folks on this board (i.e. one of the teams) come up with a clever idea e.g. "the one click campaign" or "the one dollar campaign".

This board does indeed have many members, or, rather visitors. So find a mechanism for how to get hold of them with a proper message. There are ways, but it takes a little bit of time to design it right.

The underlying message is: I'd rather have 500 people spend one dollar than 50 members spending 10 dollars. In addition, I wouldn't have moral problems with the campaign collecting more than 500 dollars if the limit is one dollar per person.

 

[AnxiousJon]

I think at the end of the day, money will get the job done like it always does. When someone comes across a theory on how to treat a certain cause of tinnitus with a new drug or other patentable technology, they will think of all the money they can make doing it, and will get into production somehow. Neuro-science R&D, at least at the consumer level, seems to be in an early stage; the brain and its workings is still an illusive beast (from what I can tell).
But awareness is good; could get some people thinking about making money in this area instead of some other one.