They found a papillary edema in my right eye and to rule out different illnesses, they did a lumbar puncture on me. I asked for potential side effects, but was only told that I might get a mild headache.
Instead I got a handicapping headache, nausea, different kinds of tinnitus, dizziness, some hearing loss in one ear, had difficulty swallowing... I asked for a bloodpatch after a couple of days, but they told me to just rest and it would get better. A week after the lumbar puncture, my husband drove me to the ER, since I was just getting worse, and they did a blood patch immediately.
I hear high pitch noises, what I guess people mostly think of when you say "tinnitus". The worst is a low pitch oscillating noise, kind of buzzing and at the same time it feels like my ears are vibrating/fluttering... It's a very "living" noise, because sometimes it's fast and sometimes the oscillating slows, like it's being stretched, hard to explain...
The papillary edema they gave me three days of IV Solu-Medrol (cortisone) for about a month after the lumbar puncture. The low pitch noise with the vibrations/fluttering went almost completely away that week, as some sort of side effect... Then it has slowly come back week by week. The high pitch noises have stayed the same.
Doctors I've met here so far are very blasé and tells me to just wait and it will "probably" resolve on its own and prognosis is good after a lumbar puncture. Or I'll learn to live with it.
I am autistic and very dependent on silence for mental recovery in daily life.
I had absolutely no tinnitus before the lumbar puncture. I moved out to the countryside eight years ago to really be able to enjoy the silence, and that I have. Until now...
Forgot to mention that the hearing loss was restored when I got the bloodpatch. I have done three audiograms since and they said my hearing is even better than expected in my age (I'm 40). I have always taken great care of my ears...
Instead I got a handicapping headache, nausea, different kinds of tinnitus, dizziness, some hearing loss in one ear, had difficulty swallowing... I asked for a bloodpatch after a couple of days, but they told me to just rest and it would get better. A week after the lumbar puncture, my husband drove me to the ER, since I was just getting worse, and they did a blood patch immediately.
I hear high pitch noises, what I guess people mostly think of when you say "tinnitus". The worst is a low pitch oscillating noise, kind of buzzing and at the same time it feels like my ears are vibrating/fluttering... It's a very "living" noise, because sometimes it's fast and sometimes the oscillating slows, like it's being stretched, hard to explain...
The papillary edema they gave me three days of IV Solu-Medrol (cortisone) for about a month after the lumbar puncture. The low pitch noise with the vibrations/fluttering went almost completely away that week, as some sort of side effect... Then it has slowly come back week by week. The high pitch noises have stayed the same.
Doctors I've met here so far are very blasé and tells me to just wait and it will "probably" resolve on its own and prognosis is good after a lumbar puncture. Or I'll learn to live with it.
I am autistic and very dependent on silence for mental recovery in daily life.
I had absolutely no tinnitus before the lumbar puncture. I moved out to the countryside eight years ago to really be able to enjoy the silence, and that I have. Until now...
Forgot to mention that the hearing loss was restored when I got the bloodpatch. I have done three audiograms since and they said my hearing is even better than expected in my age (I'm 40). I have always taken great care of my ears...
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