Hello all fellow sufferers, this is my story. I'll try to keep it short:
February 2023:
I was sitting in a coffee shop and suddenly noticed that everything seemed unusually loud. In the days that followed, my left ear somehow felt slightly clogged. I thought it was due to earwax and ignored it for a few weeks. In retrospect, I can't remember any specific trigger like acoustic trauma or anything like that.
March 2023:
I started noticing tinnitus in my left ear that was mild at first, but quickly became louder and louder. This was the alarm that startled me. I went to an ENT, who cleaned my ears, did a hearing test (-30 dB at 8 kHz in the left ear), ordered an MRI (with no findings) and prescribed me cortisone in tablet form. I did not receive a definite diagnosis and was assured that everything would be fine again.
The time that followed was absolute horror. Heart palpitations from the cortisone, no sleep for weeks, and very loud tinnitus. I was immediately suicidal. After 2 weeks the tinnitus suddenly stopped and I had a complete day of silence. I cried with joy and hoped that now everything was over. Unfortunately, it came back the next day, but a little more bearable than before. I continued to feel very bad, but the hope that it would continue to subside kept me going.
Since then, unfortunately, it has remained this way: An electric hissing sound in both ears, at about 10 kHz. It follows a certain rhythm. On bad days I hear it all the time and everywhere except in the shower. On good days it is almost gone and I feel like before the onset. Currently I have about 2 silent days per week. The change always happens while I am sleeping. In addition, I have hyperacusis, which is particularly evident in that car brakes seem louder than before and there are occasional clicking noises and fluttering in the left ear.
Now:
Somehow I have managed to continue going to work (quiet office job). But my social life has come to a complete halt. My partner left me in April and I can only do small activities on the good days. I don't listen to music anymore, I don't watch series anymore and somehow I just try to cope with the normal challenges and errands of everyday life. It's not living anymore, it's just existing. I have tried acupuncture, take daily Gingko biloba, Magnesium and vitamin B12 - all to no avail. I try to live healthy (no alcohol, caffeine, medication etc.), but unfortunately I started smoking again out of desperation.
I only exist now because I can breathe a little on the quiet days every now and then. I've never experienced anything so awful and wake up to this nightmare anew every morning. Honestly, I don't know what will happen next and how long I can keep this up. I sometimes persuade myself to believe in medical progress, but I am more than skeptical, because tinnitus is so complex, mysterious and unpredictable, that I do not believe in any real relief within my - statistically speaking - remaining 40 years of life. It is pure survival instinct why I have not taken the further steps after an email inquiry to Pegasos so far.
I am sorry that this is a very negative post, but this inconceivable suffering is the reality - my own and that of many others here. I hope we somehow get through this.
P.S. Please excuse my English, I'm not a native speaker.
February 2023:
I was sitting in a coffee shop and suddenly noticed that everything seemed unusually loud. In the days that followed, my left ear somehow felt slightly clogged. I thought it was due to earwax and ignored it for a few weeks. In retrospect, I can't remember any specific trigger like acoustic trauma or anything like that.
March 2023:
I started noticing tinnitus in my left ear that was mild at first, but quickly became louder and louder. This was the alarm that startled me. I went to an ENT, who cleaned my ears, did a hearing test (-30 dB at 8 kHz in the left ear), ordered an MRI (with no findings) and prescribed me cortisone in tablet form. I did not receive a definite diagnosis and was assured that everything would be fine again.
The time that followed was absolute horror. Heart palpitations from the cortisone, no sleep for weeks, and very loud tinnitus. I was immediately suicidal. After 2 weeks the tinnitus suddenly stopped and I had a complete day of silence. I cried with joy and hoped that now everything was over. Unfortunately, it came back the next day, but a little more bearable than before. I continued to feel very bad, but the hope that it would continue to subside kept me going.
Since then, unfortunately, it has remained this way: An electric hissing sound in both ears, at about 10 kHz. It follows a certain rhythm. On bad days I hear it all the time and everywhere except in the shower. On good days it is almost gone and I feel like before the onset. Currently I have about 2 silent days per week. The change always happens while I am sleeping. In addition, I have hyperacusis, which is particularly evident in that car brakes seem louder than before and there are occasional clicking noises and fluttering in the left ear.
Now:
Somehow I have managed to continue going to work (quiet office job). But my social life has come to a complete halt. My partner left me in April and I can only do small activities on the good days. I don't listen to music anymore, I don't watch series anymore and somehow I just try to cope with the normal challenges and errands of everyday life. It's not living anymore, it's just existing. I have tried acupuncture, take daily Gingko biloba, Magnesium and vitamin B12 - all to no avail. I try to live healthy (no alcohol, caffeine, medication etc.), but unfortunately I started smoking again out of desperation.
I only exist now because I can breathe a little on the quiet days every now and then. I've never experienced anything so awful and wake up to this nightmare anew every morning. Honestly, I don't know what will happen next and how long I can keep this up. I sometimes persuade myself to believe in medical progress, but I am more than skeptical, because tinnitus is so complex, mysterious and unpredictable, that I do not believe in any real relief within my - statistically speaking - remaining 40 years of life. It is pure survival instinct why I have not taken the further steps after an email inquiry to Pegasos so far.
I am sorry that this is a very negative post, but this inconceivable suffering is the reality - my own and that of many others here. I hope we somehow get through this.
P.S. Please excuse my English, I'm not a native speaker.