One thing I constantly hear over and over again is how underfunded tinnitus research is.
The ATA boasts that they've donated $6 million over the last 50 years of their existence and have recently allocated another $120k this year for research into difference projects.
If you do the quick math, $6 million divided by 50 years is around that $120k mark.
Granted, I don't know the costs it takes to finish a clinical trial or any trial for tinnitus research for that matter, so it's hard for me to know whether or not that $120k per year can actually go a long ways or not.
The list of new treatments out there that exist, TRT, CBT, and finally Lenire would say that the $120k may not be going as far as we all wished it did.
So here we all are. Waiting. Suffering. Visiting the forums.
I would like for there to be more efforts if not by the ATA and BTA, then by us here at Tinnitus Talk to fundraise more money. Granted, the question is how.
By trade, I'm a full-stack software engineer, not a fundraising coordinator or any other title someone of the sort might hold. The only fundraising experience I have is being able to raise $3,000 dollars in the past for diabetes and then riding a bike 100 miles for it.
But if there's people here who visit the forums out of the 30,000 registered users, and any of you have experience with fundraising, why don't we build things to get us closer to better treatments instead of just waiting. I swear even just thinking proactively rather than passively waiting feels better.
Anyways, this is a call out to anyone who has experience fundraising and wants to help fundraise money for Tinnitus Talk so we can choose how much money can or can't go towards tinnitus research.
Ideally I want to build something like the JDRF Ride where each member raises money and it lists out all those who are fundraising money, and their amounts that they've fundraised with the list of donors too. Transparency would be key as well. My wish is that we would be able to get away from "tinnitus is just too poorly funded"
I refuse to believe that we as a community can't muster enough effort to fundraise more money than the $6 million the ATA has fundraised in 50 years.
Simple math:
$6,000,000 / 30,000 Tinnitus Talk members = $200 / member
Not that I'm asking for all of us to donate $200, but it puts into perspective how much money we'd each have to contribute to match what the ATA has done in 50 years.
Anyways, if there's anyone with experience in fundraising, I'd love to hear more.
If the costs to start a fundraiser are a barrier, I could help there. Tell me how much and within reason I'm willing to help donate that amount to get the ball rolling.
I'm a software engineer. I could build out a fundraising platform for us to list out the things I said above but would rather do it with a group of people who have experience fundraising rather than in a silo alone.
Anyway, happy Tinnitus Week.
The ATA boasts that they've donated $6 million over the last 50 years of their existence and have recently allocated another $120k this year for research into difference projects.
If you do the quick math, $6 million divided by 50 years is around that $120k mark.
Granted, I don't know the costs it takes to finish a clinical trial or any trial for tinnitus research for that matter, so it's hard for me to know whether or not that $120k per year can actually go a long ways or not.
The list of new treatments out there that exist, TRT, CBT, and finally Lenire would say that the $120k may not be going as far as we all wished it did.
So here we all are. Waiting. Suffering. Visiting the forums.
I would like for there to be more efforts if not by the ATA and BTA, then by us here at Tinnitus Talk to fundraise more money. Granted, the question is how.
By trade, I'm a full-stack software engineer, not a fundraising coordinator or any other title someone of the sort might hold. The only fundraising experience I have is being able to raise $3,000 dollars in the past for diabetes and then riding a bike 100 miles for it.
But if there's people here who visit the forums out of the 30,000 registered users, and any of you have experience with fundraising, why don't we build things to get us closer to better treatments instead of just waiting. I swear even just thinking proactively rather than passively waiting feels better.
Anyways, this is a call out to anyone who has experience fundraising and wants to help fundraise money for Tinnitus Talk so we can choose how much money can or can't go towards tinnitus research.
Ideally I want to build something like the JDRF Ride where each member raises money and it lists out all those who are fundraising money, and their amounts that they've fundraised with the list of donors too. Transparency would be key as well. My wish is that we would be able to get away from "tinnitus is just too poorly funded"
I refuse to believe that we as a community can't muster enough effort to fundraise more money than the $6 million the ATA has fundraised in 50 years.
Simple math:
$6,000,000 / 30,000 Tinnitus Talk members = $200 / member
Not that I'm asking for all of us to donate $200, but it puts into perspective how much money we'd each have to contribute to match what the ATA has done in 50 years.
Anyways, if there's anyone with experience in fundraising, I'd love to hear more.
- What are the barriers to fundraising?
- What would a good fundraising experience look like from a website perspective?
If the costs to start a fundraiser are a barrier, I could help there. Tell me how much and within reason I'm willing to help donate that amount to get the ball rolling.
I'm a software engineer. I could build out a fundraising platform for us to list out the things I said above but would rather do it with a group of people who have experience fundraising rather than in a silo alone.
Anyway, happy Tinnitus Week.
Member
