Tinnitus Started Recently — I Need to Know How Others Are Living with This?

Lena231292

Member
Author
May 11, 2019
10
Tinnitus Since
04/2019
Cause of Tinnitus
Loss hearing
Hello, my name is Lena.
I started having this problem recently. It's breaking me down and sometimes I'm thinking of giving up. I need to know how people live with this. Please help me...
 
Hi Lena.

I'm so sorry you're going through a difficult time right now. I've been where you are and experienced hopelessness. This isn't the end and it gets A LOT better. Do you know what caused your tinnitus? This is important.
 
Hello, my name is Lena.
I started having this problem recently. It's breaking me down and sometimes I'm thinking of giving up. I need to know how people live with this. Please help me...

Hi Lena, welcome to the forum.

How did you get your ear hurt? Was it caused by loud music? Or the tinnitus just came on without any signs?

What form of tinnitus do you have? Is it reactive? Does it fluctuate? Is it one tone all the time or do you have buzzing? Do you have fullness in your ear or even ear pain?

Many people will be shocked by this condition especially in the early going and they wouldn't know what to do. This is normal. And this is why we are here to perhaps help you go thru this difficult time.

The best thing to do now is be conscious of protecting your ears and do not give them the unnecessary stress like loud music or listening to music With headphones. Wear earplugs if you have to be in noisy environments.

Don't panic as a lot of the tinnitus sufferers will have their tinnitus slowly fade in time.

Our ears heal very slowly so you need to let them take their time to heal.

Take care!
 
Hello, my name is Lena.
I started having this problem recently. It's breaking me down and sometimes I'm thinking of giving up. I need to know how people live with this. Please help me...
Where are you from?
How loud is your tinnitus (on a scale of 0 to 10)?
What is the cause of your tinnitus?
 
Hello, my name is Lena.
I started having this problem recently. It's breaking me down and sometimes I'm thinking of giving up. I need to know how people live with this. Please help me...

Welcome,

It can be very difficult, especially in the beginning. Don't feel bad if you struggle.

You state you have hearing loss. How did that happen?
Are you comfortable posting your audiogram? (feel free to blank out any personal info)

Did you go down the diagnosis path with your doctor(s)?

Hang in there!
 
If your tinnitus is from hearing loss there are hearing aids now that also provide various masking sounds that can really help! Find a good audiologist to help you out.
 
Hello, I lost hearing when I was little and few weeks ago went to do hearing test and it showed that my hearing very poor and droped. Two weeks ago I started hearing noise as very annoying ringing in my head. I thought it will go away. But it's not. The sounds can be different too and very hard to concentrate and all I feel lately I don't wanna live with this...... my ex partner comited suicide from tinnitus. And I'm so scared I won't be able to live with this. It's just scary
 

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Last hearing loss from working in night clubs. And it got so much worse.
 

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Last hearing loss from working in night clubs. And it got so much worse.

Wow that's a lot of hearing loss for working in night clubs. I mean, you didn't realize you had hearing loss until you got to that point?

You also have a small air gap at some frequencies - I wonder if you have any problems in your middle ear too. Have you had it checked?
 
Hi Lena. I'm from Melbourne area (Australia) too. I noticed your tinnitus also goes up and down like mine. Have you correlated that change with anything ? I'm convinced mine is from EMR ... it sounds crazy like tin foil hat stuff but that is what I have found. Even this laptop is all wired up, no wireless mouse etc.

What I did as a test is went away to an area where there was no or very little EMR for a week, I even bought a meter to measure EMR levels. The tinnitus went away .. or at least back to level 1 -2 which I have had for many years and which I can ignore. I'm sure it's different for everyone but that's my experience. I read others on the board here have noticed similar.

Keep hope in the fact that it CAN reduce ... that's what I do, the fact that it can get quiet gives me hope.
 
Hello, I lost hearing when I was little and few weeks ago went to do hearing test and it showed that my hearing very poor and droped. Two weeks ago I started hearing noise as very annoying ringing in my head. I thought it will go away. But it's not. The sounds can be different too and very hard to concentrate and all I feel lately I don't wanna live with this...... my ex partner comited suicide from tinnitus. And I'm so scared I won't be able to live with this. It's just scary

The good news is that you have good speech discrimination. My neurotologist thinks that good speech discrimination paired with sensorineural losses indicate loss of hair cells but healthy nerve. There are drugs in the pipeline that are targeting hair cell regrowth. That could help you.

In the meantime, I imagine you are using hearing aids? If not, consider using them? They can be helpful not only for your hearing, but also for Tinnitus.

If you've had hearing loss since you were a kid, does anyone think there's a genetic component to it?

Good luck!
 
I knew from 8 years ago my hearing wasn't great that's when I did first test. Then during working in night clubs I didn't realise it droped. And didn't have tinnitus. Those rings happened roughly two weeks ago which I can't live with. It's too much for me.
 
I knew from 8 years ago my hearing wasn't great that's when I did first test. Then during working in night clubs I didn't realise it droped. And didn't have tinnitus. Those rings happened roughly two weeks ago which I can't live with. It's too much for me.
I was in a very bad place the first 3 months of my tinnitus. In and out of the hospital and I never really even got sick before. I was hopeless. Today, I have hope and my tinnitus is only annoying about 50% of the time. Things get better.
 
Make sure you convey to your Dr the impact that it's having on you.

Even when mine is really bad I can cope better now than a few months ago when it started getting really bad.

You have treatment options like hearing aids, therapy and drugs.

My boss had it really bad too years ago and she said hers just went away. There is hope.
 
I knew from 8 years ago my hearing wasn't great that's when I did first test. Then during working in night clubs I didn't realise it droped. And didn't have tinnitus. Those rings happened roughly two weeks ago which I can't live with. It's too much for me.

Are you using hearing aids?
 
Hello, my name is Lena.
I started having this problem recently. It's breaking me down and sometimes I'm thinking of giving up. I need to know how people live with this. Please help me...
Hello, my name is Lena.
I started having this problem recently. It's breaking me down and sometimes I'm thinking of giving up. I need to know how people live with this. Please help me...
I try not to think about the hissing sound, it's hard to block it when there is silence..
 
Those rings happened roughly two weeks ago which I can't live with. It's too much for me.
The first 3-6 months are the hardest. But there is a good chance that your T will begin fading and that eventually you will get to the "can hear it only in quiet rooms" stage (see the first tip in the link that I posted above).
 
My neurotologist thinks that good speech discrimination paired with sensorineural losses indicate loss of hair cells but healthy nerve. There are drugs in the pipeline that are targeting hair cell regrowth.

That gives me a bit of hope since I have perfect speech discrimination.

My hearing loss is minimal as well and has been stable for years but the tinnitus keeps getting worse anyway. Any thoughts as to why?
 
I try not to think about the hissing sound, it's hard to block it when there is silence..
It can't block it going 60mph with the AC full blast, or in the shower... in a quiet room I can't even hear the floor creaking because my tinnitus is so loud...
 
Hi all. Everyone Happy New Year.
My tinnitus got worse:(
Hopefully I will stop crying one day. But at least i learn how to control emotions and not show what i feel.
Thanks i have this forum.
And i read everyone.
Otherwise i would give up.
My partner patient a lot. But sometimes I feel like he doesn't deserve this shit ;(
Sad
 
Hi all. Everyone Happy New Year.
My tinnitus got worse:(
Hopefully I will stop crying one day. But at least i learn how to control emotions and not show what i feel.
Thanks i have this forum.
And i read everyone.
Otherwise i would give up.
My partner patient a lot. But sometimes I feel like he doesn't deserve this shit ;(
Sad

What made it worse do you think?
 
Hi all. Everyone Happy New Year.
My tinnitus got worse:(
Hopefully I will stop crying one day. But at least i learn how to control emotions and not show what i feel.
Thanks i have this forum.
And i read everyone.
Otherwise i would give up.
My partner patient a lot. But sometimes I feel like he doesn't deserve this shit ;(
Sad
Hey Lena,

Listen, get hearing aids, they will help you with the tinnitus! Also hearing of course. You will get relief from that. So do it!

Also be patient, soon (next year and year after that, TWO things will come out, Susan Shore's device and hopefully FX-322 will release, look it up and be patient!)
 

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