Yes a brilliant idea! How about lobbying some MP's about it or your local MP or standing outside parliament and screaming about it or speakers corner in hyde park....Or arrange a massive demo in London with all the T sufferers in the UK....and get some more stuff out on the TV radio and papers and internet....
We need to do is some brain storming (instead of the brain storming for no reason!), come up with the right way of doing things and t....hen delegate who is doing what......a coordinated approach to get this info out....and get the priority for this problem raised....
I am more than happy to help and do stuff and I bet there are loads more people who would be willing to help out with this...