Tinnitus & The Body: Take the Survey

[Rogi Cetpla]

Done.

 

[OnceUponaTime]

We need more people to fill out the survey, please!

It is extremely important that you do.

​

 

[OnceUponaTime]

@HalloweenScreamQueen , @bobvann , @Mathieulh & @Rogi Cetpla
Thank you so much for taking the survey!
Your time and help is appreciated!

 

[MBH]

Done.

 

[Shaz1]

 

[Nanny chocolate]

Done.

 

[GoatSheep]

Took it on Saturday, but if we are keeping a log of active users participating here then consider me done.

@Markku @Hazel
Some questions I would like to see that I don't on any surveys I've taken are in regard to ear issues arising post-tinnitus onset (as some people say some of these things are natural prior to onset).

- clicking when swallowing
- air getting trapped in the ear when swallowing
- pressurization problems when traveling (sometimes on car rides my ears now pop a ton and this never happened before.)
- patulous eustachian tube-like symptoms

Can't think of any others presently but I've seen plenty of threads on these issues so it would seem to be useful data for researchers to acknowledge and factor into looking at tinnitus in my opinion.

 

[Ruse]

Done!

 

[Kste Adams]

Done.

I found a few questions difficult to answer as there didn't seem to be an appropriate answer or a 'not applicable' answer. But I had to give an answer to complete the rest of the survey. Can't remember which questions they are now.

I had the same experience with the question about hearing loss. Mine is in the mid-frequencies, but the options were only for low and high frequencies. I added this as a comment at the end.

Another thing I noticed was that the survey only wanted to know about other conditions that had been diagnosed by a clinician. This meant I had to choose None for a few questions even though I actually do have some of the conditions. (I usually don't bother seeing a doctor for things that have no effective treatments. And with the craziness in the US healthcare/health insurance, I avoid being diagnosed for things that aren't serious or life-threatening.)

 

[brokensoul]

Another thing I noticed was that the survey only wanted to know about other conditions that had been diagnosed by a clinician. This meant I had to choose None for a few questions even though I actually do have some of the conditions.

I answered them as if I was actually diagnosed with it. It seems to me this is valuable information for the study so I didn't care if I actually was diagnosed or not, at least when I'm sure I have it.

 

[brokensoul]

I had the same experience with the question about hearing loss. Mine is in the mid-frequencies, but the options were only for low and high frequencies.

I've noticed there is often some ambiguity here when it comes to audiograms and frequencies and not everyone uses the same definition. I believe many here have never done an extended audiogram.

What should we consider as high frequency?

What exactly is low, mid and high?

8kHz is only halfway an extended audiogram. It's not even halfway the full spectrum.

Do we presume that everything over 8kHz is is high frequency or is it rather ultra high frequency, which is not mentioned.

Perhaps it was better to add some definition to it to optimise data quality.

 

[OnceUponaTime]

@MBH, @Shaz1, @Nanny chocolate, @GoatSheep, @Russ, @Kste Adams and @brokensoul
Thank you for taking the survey!

 

[OnceUponaTime]

https://www.surveymonkey.com/r/tinnitusbody

 

[OnceUponaTime]

IMPORTANT!!!!
Please take the survey today!
Tinnitus and the Body
https://www.surveymonkey.com/r/tinnitusbody

 

[Fifth Business]

Guys after a long stretch of good days my tinnitus and neck are both going wild! Please ONLY hug react this post!!

And thanks for doing this interesting study

 

[MrCrybaby]

Took it on Saturday, but if we are keeping a log of active users participating here then consider me done.

@Markku @Hazel
Some questions I would like to see that I don't on any surveys I've taken are in regard to ear issues arising post-tinnitus onset (as some people say some of these things are natural prior to onset).

- clicking when swallowing
- air getting trapped in the ear when swallowing
- pressurization problems when traveling (sometimes on car rides my ears now pop a ton and this never happened before.)
- patulous eustachian tube-like symptoms

Can't think of any others presently but I've seen plenty of threads on these issues so it would seem to be useful data for researchers to acknowledge and factor into looking at tinnitus in my opinion.

I'm dealing with this right now. To go from quiet swallowing to clicking hundreds of times a day is harder to deal with than the tinnitus itself for me.

 

[Barbara777]

All done!

 

[Ed209]

I hope there's been a fair few thousand fill this out as it's such a meaningful and useful thing to do, and it's so easy as well.

If you haven't filled it in yet, what's stopping you? Get cracking otherwise I'll grass you all up to @OnceUponaTime!

 

[Ed209]

I'm dealing with this right now. To go from quiet swallowing to clicking hundreds of times a day is harder to deal with than the tinnitus itself for me.

My ears squelch and click all the time. If you stop focusing your attention on it, you'll eventually filter it out and you'll stop noticing/caring.

 

[Badger19]

Done! How many respondents do you have?

 

[Dosman]

Done.

 

[Hazel]

Done! How many respondents do you have?

We're over 4,000 now, although not everyone has filled it in completely. Our previous record was 6,000 fully completed responses so I really want to pass that!

Please share the survey wherever you can!!!

 

[OnceUponaTime]

@Barbara777 , @badge, @Dosman
Thank you for taking the survey!

 

[OnceUponaTime]

IMPORTANT!!!!
Please take the survey today!
Tinnitus and the Body

Make @Hazel happy today...

https://www.surveymonkey.com/r/tinnitusbody

 

[morgothaod]

Done.

 

[Jcb]

Done, not as painful as I thought to complete.

 

[annV]

Thank you. Done.

 

[Audiophile_bg]

I also did the survey.

 

[Rafalek73]

Done.

 

[Ed209]

Have we cracked 10,000 yet? If not, why not!?

Don't make me inform Steve about this; he won't be happy.

And I'm pretty sure Dr Rauschecker wants access to this information also.