Transverse Sinus Stent Cured My Pulsatile Tinnitus and Other Symptoms

[Taneisha]

My pulsatile tinnitus started back on August 3rd, 2020. Along with headaches, body aches, papilledema in my vision, and numbness in my fingers and toes.

I was diagnosed with intracranial hypertension.

Yesterday on January 15th, 2021 I had surgery for a stent placement in my left transverse sinus.

I am GLAD to say that my pulsatile tinnitus has faded entirely along with everything else.

I still have slight headaches but to hear silence again is a breath of fresh air!

I pray everyone on this forum receives the treatments needed for recovery! Best wishes to all!

 

[twa]

My pulsatile tinnitus started back on August 3rd, 2020. Along with headaches, body aches, papilledema in my vision, and numbness in my fingers and toes.

I was diagnosed with intracranial hypertension.

Yesterday on January 15th, 2021 I had surgery for a stent placement in my left transverse sinus.

I am GLAD to say that my pulsatile tinnitus has faded entirely along with everything else.

I still have slight headaches but to hear silence again is a breath of fresh air!

I pray everyone on this forum receives the treatments needed for recovery! Best wishes to all!

That is awesome! How were you diagnosed?

 

[Gstar2020]

Congratulations. That's amazing. I'm very happy for you

 

[Steph1710]

I'm so glad for you! I really am!

Because I live in the UK, I've been waiting since 2018 to have a stent in my left transverse sinus - but because we have a failing NHS, God knows when it will happen.

It was a fight with them to even admit there was something wrong.

 

[tiniturtle]

Congrats and welcome to the club. I have one in my right transverse sinus. The headaches will go away in time.

I assume they have you on Aspirin and Plavix for about 6 months?

 

[Ben Winders]

I'm so glad for you! I really am!

Because I live in the UK, I've been waiting since 2018 to have a stent in my left transverse sinus - but because we have a failing NHS, God knows when it will happen.

It was a fight with them to even admit there was something wrong.

You have only pulsatile tinnitus?

How were you diagnosed with intracranial hypertension?

 

[Steph1710]

How were you diagnosed with intracranial hypertension?

CT scan with contrast dye. I've had an MRI too. I was supposed to have another high definition CT scan to map out how they can do the operation, but they like to drag my medical needs out for years it seems.

To begin with they weren't going to help at all. They said everything was "normal". But as I usually do, I fought and fought and finally got them to admit there is an issue and they can do something about it.
I waited 7 years for a knee operation once - but that's another story.

I'm going private now I've started working again. I'll probably be dead by the time the NHS book my scan.

I can't live another three years with continuous migraines and a sound so loud in my ear that I can't concentrate. I have developed normal tinnitus in the last year too. So to be able to eliminate the pulsatile tinnitus would be nice.

What are your symptoms? You have pulsatile tinnitus?

Steph

 

[Ben Winders]

I've had pulsatile tinnitus for 30 minutes since the onset of my tinnitus, so for the rest of the 9 months it has been all regular hissing/beeping/buzzing tinnitus.

I commend you for keeping on fighting. I have the exact same mindset as you. First ENT told me "ha nothing to worry about , it's just your neck", second specialist said "you are lucky, it's probably just your neck, give it some time"

9 months later I still have tinnitus.

I'm still doing more research. This week another series of tests I have to pay for myself... but I will not rest until I know for sure what it is and if maybe it can be helped.

 

[Steph1710]

I will not rest until I know for sure what it is and if maybe it can be helped.

We'll keep going Ben! Fight the good fight.

Where are you from, may I ask?

I've had pulsatile tinnitus for 30 minutes since the onset of my tinnitus, so for the rest of the 9 months it has been all regular hissing/beeping/buzzing tinnitus.

If it's pulsatile tinnitus, then a lot can be done for it. If it's normal tinnitus, then I believe only time can help.

Do you think yours is pulsatile tinnitus? Or have I read into your message wrong? Please forgive me if I have - it's been a busy few days for me. I've been in meetings for hours. I'm sooo brain dead.

 

[Ben Winders]

We'll keep going Ben! Fight the good fight.

Where are you from, may I ask?

If it's pulsatile tinnitus, then a lot can be done for it. If it's normal tinnitus, then I believe only time can help.

Do you think yours is pulsatile tinnitus? Or have I read into your message wrong? Please forgive me if I have - it's been a busy few days for me. I've been in meetings for hours. I'm sooo brain dead.

I'm just across the channel from you

No, I only had pulsatile tinnitus once for 30 minutes... it is no no longer pulsatile but "normal tinnitus".

I still don't know why it was pulsatile that time and don't know if it is worth looking into since it lasted only for 30 minutes or so.

 

[Taneisha]

That is awesome! How were you diagnosed?

They figured out that it was intracranial hypertension through a CT scan of my neck.

 

[Taneisha]

Congratulations. That's amazing. I'm very happy for you

Thank you! Have you gotten any further in your journey?

 

[Taneisha]

I'm so glad for you! I really am!

Because I live in the UK, I've been waiting since 2018 to have a stent in my left transverse sinus - but because we have a failing NHS, God knows when it will happen.

It was a fight with them to even admit there was something wrong.

I really hope you get what you need soon! That's a long time for someone to be sitting around waiting. You are VERY strong! Keep holding on!

 

[Taneisha]

Congrats and welcome to the club. I have one in my right transverse sinus. The headaches will go away in time.

I assume they have you on Aspirin and Plavix for about 6 months?

How long have you had your stent placed? Has there been any trouble since getting it?

I can't wait until the headaches fade! And yes, I am on Aspirin, Plavix and my Diamox pills. No one has given me a deadline for how long I should be taking them yet.

 

[Gstar2020]

Hi,

Are stents permanent or do they need replacing eventually?

I'm so happy that you have been diagnosed and have had some treatment. I still haven't had any answers or diagnosis myself yet. I had a lumber puncture but my levels were all normal apparently so I'm still none the wiser as what's what.

Stay well and safe.

 

[tiniturtle]

How long have you had your stent placed? Has there been any trouble since getting it?

I can't wait until the headaches fade! And yes, I am on Aspirin, Plavix and my Diamox pills. No one has given me a deadline for how long I should be taking them yet.

I had mine placed July 2019. No problems at all. I'm no longer on antiplatelet therapy or anticoagulation. I did have issues with Plavix though. It made me weak, ill, high anxiety. It elevated my liver enzymes too. I felt much better after I stopped taking it. I couldn't tolerate it. My doctor switched me over to a different regimen for the time being.

 

[tiniturtle]

Are stents permanent or do they need replacing eventually?

I'm so happy that you have been diagnosed and have had some treatment. I still haven't had any answers or diagnosis myself yet. I had a lumber puncture but my levels were all normal apparently so I'm still none the wiser as what's what.

Stay well and safe.

They couldn't take them out if they wanted to. They are permanent. The tissue of the vessel wall grows over it within a few months.

 

[IntotheBlue03]

How long have you had your stent placed? Has there been any trouble since getting it?

I can't wait until the headaches fade! And yes, I am on Aspirin, Plavix and my Diamox pills. No one has given me a deadline for how long I should be taking them yet.

What visual symptoms did you have? I have a fishbowl tunnel vision sensation. Did you experience this? Or not being able to focus on things in your vision for too long?