TRT and CBT Success

[Fordsnack]

Hey, so several years ago I had TRT and CBT and it really turned things around for me. I had quit playing music for a year and the tinnitus had got really loud and hyperacusis was kicking in too. Now, several years on I'm living a relatively normal life and am still able to work in music.

I have put some short videos together of information specifically for musician (although a lot will be relevant to non musicians too) to try and help others who are going through similar.

I know TRT can be a contentious topic around here, but I wanted to share my experience anyway and I would also like to hear your thoughts on the videos too.

You can watch them both on YouTube here https://innerpieces.co.uk/tinnitus/

 

[Contrast]

TRT and CBT holds back biomedical research on tinnitus. Researchers have less incentive to research the mechanisms of tinnitus, it creates a market based on selling a product to keep people ill.

Last time I checked TRT and CBT don't generate cochlear hair cells or reduce hyper neuronal activity in the dorsal cochlear nucleus.

 

[dpdx]

TRT and CBT holds back biomedical research on tinnitus. Researchers have less incentive to research the mechanisms of tinnitus, it creates a market based on selling a product to keep people ill.

Last time I checked TRT and CBT don't generate cochlear hair cells or reduce hyper neuronal activity in the dorsal cochlear nucleus.

THIS

 

[glynis]

@Fordsnack ,
TRT and CBT are ok as a way to cope better for some people but more funding is urgently needed for research into finding a cure for all subcategories for tinnitus and Hyperacusis.

love glynis

Thank you for posting your videos.

 

[Fordsnack]

I agree that more funding and research is needed and also concede that TRT is not a cure. But I think it has value to many people, especially as there is currently no other effective treatment out there that I am aware of. It certainly got me out of a pit of despair and changed my attitude to tinnitus (and life in general). So if it can help some people in the meantime while we wait for an actual cure, I'll keep championing the cause.

 

[MeBeSurfer]

Hearing aids + TRT +CBT = semi cured mine. I can't really hear my tinnitus anymore while wearing hearing aids. If they are out, I can after a long time. It's been almost a year and it was loud AF in the beginning.

 

[Ed209]

TRT and CBT holds back biomedical research on tinnitus. Researchers have less incentive to research the mechanisms of tinnitus, it creates a market based on selling a product to keep people ill.

Last time I checked TRT and CBT don't generate cochlear hair cells or reduce hyper neuronal activity in the dorsal cochlear nucleus.

There's no reason why they can't co-exist. If CBT helps people cope then it can only be a good thing. However, we should be more forward thinking and looking for treatments that can help most people.

Researchers have less incentive to research the mechanisms of tinnitus, it creates a market based on selling a product to keep people ill.

Not necessarily. It's a stop-gap that is helping people, right now, in a time where we have nothing else. What we need is better funding so that research can actually happen. Anything else is wishful thinking.

I sound like a broken record, but when there is little to no interest from the tinnitus community - to help change things - then what more can we expect? There are loads of conditions that need cures and/or treatments. The tinnitus community is just far too apathetic, though. People with other conditions are actively campaigning and raising money for their causes. This is what peaks the interest of the medical community and researchers alike.

If we want things to change then we need to contribute towards making that change happen. Don't expect the universe to give you what you want; the world owes us nothing. If we want something then we need to make ourselves heard and make it become a reality.

Exclusively posting on a Tinnitus forum is like preaching to the choir. The only people reading these comments are fellow sufferers. The outside world has no idea.

 

[Twinkle18]

I never really understood the hate against CBT and TRT. They are shown to be effective to aid people in habituating. I'm doing CBT and it's been a life saver. I know it's not a cure but there is no cure as of yet and I wanted my life back.

I think I've read somewhere that TRT has like a 85% success rate for treating tinnitus and hyperacusis as far as habituation goes. That's an amazing statistic. Especially if you want to improve your quality of life. Just a food for thought but AA or NA programs has less than 10% success rates and there's no cure for being an addict. I know this may seem like I am comparing apples and oranges but pain and suffering is relative.

My husband is a recovering alcoholic and he's in the 10% and I asked him how he can do it so easily and he said "it wasn't easy at first but I "drank the kool-aid" and it got a lot easier over time"

 

[Fordsnack]

I never really understood the hate against CBT and TRT.
"

Yeah I don't think I understand either. It's a very short list of treatments that have been shown to have a positive effect on tinnitus. And yeah, TRT is no perfect cure and certainly no quick fix but that's no reason to throw the baby out with the bath water. It definitely helps some people, so it can always help more.

If the day comes when there is a pill or medical procedure that can fully reverse the effects of hearing damage and tinnitus, I'll be making a video about that too. But until then I will keep pointing people towards TRT and CBT.