VAD Approved (Date Not Fixed Yet) — Lost Any Hope After Almost 20 Years of Suffering with Tinnitus
- Thread starter Bhop
- Start date
Member
I'm doing okay @Bhop. I just had a round of 3 intratympanic injections of Dexamethasone for my hearing loss. It lowered the volume of the tinnitus for a day or two, but I'm not sure if the results will remain.
How are you doing? Still hoping you find some relief from this awful condition.
Below is a link to the sign up page. Apply with your name and email and they will contact you. Clinical trials are free so it will not cost a cent. You are a perfect candidate.
It says "Even though they are not yet recruiting, we will reach out to the sponsors on your behalf."
Sign Up: Evaluation of Deep Brain Stimulation (DBS) of the Right Operculum 3 (OP3) in Permanent Non-pulsatile Disabling Tinnitus (TINNOP3-DBS)
I hope you are selected. I want you to stay alive man. But I know the torturous noise makes in unbearable. I will keep looking for solutions for you - they may be extreme and invasive, but I'm sure anything to give you back a sense of peace would be worth the trouble.
P.S. @Bhop, note the exclusion criteria listed on the signup page. Be selective on the information you choose to share with them, or else they may exclude you from the trial.
How are you doing? Still hoping you find some relief from this awful condition.
Below is a link to the sign up page. Apply with your name and email and they will contact you. Clinical trials are free so it will not cost a cent. You are a perfect candidate.
It says "Even though they are not yet recruiting, we will reach out to the sponsors on your behalf."
Sign Up: Evaluation of Deep Brain Stimulation (DBS) of the Right Operculum 3 (OP3) in Permanent Non-pulsatile Disabling Tinnitus (TINNOP3-DBS)
I hope you are selected. I want you to stay alive man. But I know the torturous noise makes in unbearable. I will keep looking for solutions for you - they may be extreme and invasive, but I'm sure anything to give you back a sense of peace would be worth the trouble.
P.S. @Bhop, note the exclusion criteria listed on the signup page. Be selective on the information you choose to share with them, or else they may exclude you from the trial.
- Sep 16, 2021
- 465
- 39
- Tinnitus Since
- 2002
- Cause of Tinnitus
- Medication ototoxicity
Do you know which doctor was doing this in London? And it was for tinnitus? Thanks for the help.
Blix M. Paraglot
Member
- Sep 29, 2021
- 27
- Tinnitus Since
- mild since 90s - serious since 2000s
- Cause of Tinnitus
- Larks' Tongues in Aspic, part one
Blix M. Paraglot
Member
- Sep 29, 2021
- 27
- Tinnitus Since
- mild since 90s - serious since 2000s
- Cause of Tinnitus
- Larks' Tongues in Aspic, part one
Keep in mind regarding the De Ridder/Vanneste Naltrexone study, some subjects were on 50 mg Naltrexone daily for eight weeks before they saw improvement. Some of the people in the study experienced total or near-total remission. @Johnny Karate had fast results, but not everyone does. But don't assume it's not going to work and give up.
Hey Blix,
How are you doing now? I know you've had a bumpy ride with the Naltrexone. Have things settled down yet for you? I have been thinking about you... (hugs)
Blix M. Paraglot
Member
- Sep 29, 2021
- 27
- Tinnitus Since
- mild since 90s - serious since 2000s
- Cause of Tinnitus
- Larks' Tongues in Aspic, part one
Thank you for asking. I do appreciate your kindness.
I'm now up to 25 mg / day, no side effects at all now. It makes me feel brave enough to want to jump all the way up to 50 mg tomorrow, but I'm trying to resist that impulse. After two nights, I discontinued the antihypertensive that my doctor put me on. There has to be some kind of BP med that doesn't cause my tinnitus to spike. So that last spike has settled. My GP seems to think I am a heart attack or stroke waiting to happen. But I've had untreated hypertension for 2 or 3 years, touch wood. I am now taking 3 beta blocker pills per day, to counteract the caffeine. I drink 2 or 3 espressos a day, and if I'd only give up coffee, I wouldn't have hypertension.
But I love wine and I love coffee. So no, I will not give them up. I have already given up music, because I can't listen at any level without pain and a three-day long spike. I tried again last night, with the music down as low as it would go, and I turned it right off again.
The Naltrexone has made it so that I now take two hours to slowly nurse a 1/3 full glass of Malbec. I almost could not finish it. This is not normal for me. I guess that means I am de facto giving up wine, like it or not.
I am not really in as grumpy a mood as it seems. I am hopeful. I'm still able to keep a job and still drawing pictures, which gives me something creative to do and I love it. I dream of being able to make music again. I was a songwriter and singer, before.
-Geoff
Travis Henry
Member
- Mar 12, 2022
- 428
- 41
- Tinnitus Since
- 10/2021
- Cause of Tinnitus
- 1 Moderna Vac, Noise and stress I guess, its killing me
@Bhop, I have also everything prepared for VAD. You are not alone my friend! I have a wife and a 2.5-year-old daughter. It would be terrible for them but I can't change the situation unfortunately... it's what it is.
Even tinnitus professors can't help, such as Prof. Langguth or Prof. De Ridder.
I don't know if Dr. Shore's device will have success (I hope so) but even that might not work for me. And it's maybe available earliest in 1-2 years. That's a long time...
Even tinnitus professors can't help, such as Prof. Langguth or Prof. De Ridder.
I don't know if Dr. Shore's device will have success (I hope so) but even that might not work for me. And it's maybe available earliest in 1-2 years. That's a long time...
Hi Geoff,
Have you tried Magnesium and CoQ10 for your hypertension? Also, you could look at Alpha-Lipoic Acid to help normalise your glucose metabolism, as I have read another of your posts where you've mentioned wanting to avoid Metformin.
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