What Are Your Guesses on Why My Tinnitus Goes Away and Comes Back?

#61
@Bill Bauer I don't have TTTS. I don't think you can have that for 30 days and have it magically go away. I had a MASSIVE amount of anxiety. I for one believe my highly trained ENT DR. He told me get my anxiety down and it would go away...I did and it did too just like he said. It probably happened one time by chance while my neighbor was talking and then I fixated on it and like a self fulfilling prophecy it kept happening until I stopped worrying about it. I never heard any whooshes....just my ear drum jumping around for a second or two. I'll leave my diagnoses to my Dr.
 
#62
reinergirl said:
@Raphael7713 I had the same thing with my eardrum(only the left one) for a while. It would only happen when my neighbor spoke and when I used a certain App on my phone(the voice on the app). It really freaked me out, of course I was having super high anxiety which is obviously a challenge for you too at this point. My ETN explained to me that we have 2 tiny muscles in our ear, one of them(can't remember the name) will spasm just like when you get an eye twitch, it's caused my anxiety/stress/etc just like the eye twitch is. He hadn't heard of it reacting only to certain noises but I took what he said to heart and stopped worrying about it just like I wouldn't worry about an eye twitch and low and behold it went away completely!

A few days ago my ear thumped once and every time I thought about it it did it again....so I put it out of my mind and once again it stopped. I was making it happen by fixating and zeroing my attention on it. You are really, really anxious right now and it magnifies everything exponentially. I know exactly how you feel right now, I just got mine in Dec 2016....and it's noticeable just about everywhere so what you'd call intrusive......so I lost it for a while. You've got to get your fear under control, it's truly amazing what fear and worry in our mind can manifest physically in our bodies.

If you have access to, I would highly suggest speaking to a good CBT therapist and try not to read too much online. If you haven't already, definitely go and get checked out medically.....it's a lot easier to let some of the worry go when you know for sure that you are healthy instead of wondering endlessly. Dr Google is not a good source to consult! I wish you the very best :)
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Thank you for your answer!

But do you see/think there is any connection to this eardrum thing and my T? I have hard time telling what ear I have T in. Sometimes it feels both, sometimes left/right.
This TTTS stuff I had it for like a year before my T came along.

You are very right in that im anxious, Ive been that even before my T kicked in...so imagine now haha.
I explained this to my ENT she couldnt give any answer.

And like I also said, if this can mean something. Two months before I got my T, i did a hearing test and my score was very good. Can all that change in 2 months?
 
#63
reinergirl said:
My ETN explained to me that we have 2 tiny muscles in our ear, one of them(can't remember the name) will spasm just like when you get an eye twitch
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The name of that muscle is tensor tympani. TTTS is a condition that hasn't been studied very much at all. I can't remember whether the papers on TTTS I have read mentioned it twitching as a result of stress.

That muscle is Supposed to twitch to protect you from loud noises. In TTTS the threshold for it to twitch is lowered. So it can react to sounds of certain frequencies or certain volumes.

It is my understanding that, just like T, TTTS spontaneously resolves itself for some lucky patients.
 
#64
I'm not denying that some people get this Syndrome and that it isn't real, I'm sure it is and some people get it and I really sympathize with them. I'm sure if you are constantly having it with no resolve then I'm sure you'd be diagnosed with it. However, just because one occasionally gets the under eye twitch doesn't mean that you automatically have some sort of Eye Twitch syndrome or official diagnosis. I call that s**t that just sometimes happens. You can't obsess over every little thing, I've been there done that and it's NOT helpful to your mental or physical well being!

@Raphael7713 I have no idea the actual connection between TTTS and T, I'm sure there is some.....those are questions best left for a Dr and not strangers on the internet. I also think there is something to say for what happens when some people(like myself) get T, we obsess over the noise, hyper focus on the noise and everything little thing that our ears do which cause ourselves enormous amounts of anxiety, which makes more problems/then more anxiety and so on. I'm not saying we are making this stuff up, not at all but I think our mental states exacerbates it.

Real world example.....A few weeks ago I was having some weird reaction to small noises, when it was quiet and say the house would creak or my dogs collar would jingle, my brain felt like it was jumping inside my skull. This of course really freaked me out which caused me to hyper focus on it and within 24 hours was much, much worse. I was so upset and of course came here and read a million horror stories about H and diagnosed myself with some strange form of it. Of course the calm/logical part of my brain said, "well you're not bothered by a Semi truck driving by or music in your car, the tv, etc"....but I had myself all worked up so I ignored that sensible argument I gave myself. So I decided to try really hard to not react negatively to it and it got better....a week later I went to my Chiropractor because my neck has been jammed up from the TMJ therapy I've been going through and after one adjustment was miles better.....now 3 adjustments later and it's completely gone. I caused myself a ridiculous amount of energy, hysterical crying, anxiety and sleepless nights over nothing. I diagnosed myself and was dead wrong. An anxious mind is not very trustworthy! Disclaimer, I'm not a Dr and by no means think you should ignore possible medical problems but I've learned the hard way that our own minds can make things really go downhill fast.
 
#65
reinergirl said:
I'm not denying that some people get this Syndrome and that it isn't real, I'm sure it is and some people get it and I really sympathize with them. I'm sure if you are constantly having it with no resolve then I'm sure you'd be diagnosed with it. However, just because one occasionally gets the under eye twitch doesn't mean that you automatically have some sort of Eye Twitch syndrome or official diagnosis. I call that s**t that just sometimes happens. You can't obsess over every little thing, I've been there done that and it's NOT helpful to your mental or physical well being!

@Raphael7713 I have no idea the actual connection between TTTS and T, I'm sure there is some.....those are questions best left for a Dr and not strangers on the internet. I also think there is something to say for what happens when some people(like myself) get T, we obsess over the noise, hyper focus on the noise and everything little thing that our ears do which cause ourselves enormous amounts of anxiety, which makes more problems/then more anxiety and so on. I'm not saying we are making this stuff up, not at all but I think our mental states exacerbates it.

Real world example.....A few weeks ago I was having some weird reaction to small noises, when it was quiet and say the house would creak or my dogs collar would jingle, my brain felt like it was jumping inside my skull. This of course really freaked me out which caused me to hyper focus on it and within 24 hours was much, much worse. I was so upset and of course came here and read a million horror stories about H and diagnosed myself with some strange form of it. Of course the calm/logical part of my brain said, "well you're not bothered by a Semi truck driving by or music in your car, the tv, etc"....but I had myself all worked up so I ignored that sensible argument I gave myself. So I decided to try really hard to not react negatively to it and it got better....a week later I went to my Chiropractor because my neck has been jammed up from the TMJ therapy I've been going through and after one adjustment was miles better.....now 3 adjustments later and it's completely gone. I caused myself a ridiculous amount of energy, hysterical crying, anxiety and sleepless nights over nothing. I diagnosed myself and was dead wrong. An anxious mind is not very trustworthy! Disclaimer, I'm not a Dr and by no means think you should ignore possible medical problems but I've learned the hard way that our own minds can make things really go downhill fast.
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Like i've said a dozen of times - If i could learn to sleep with my T I wouldn't care about it AT ALL. The last week it seems my T has gotten worse or Im thinking about it more. On friday night I slept to good. All of a sudden day after and till now, i have sleep difficulties.
 
#66
Have you considered taking pills to help you sleep?

I have amitriptyline (10 mg). It is non-addictive, and when I take 0.75 or 1 tablet, I don't fee drowsy the next morning. I also have Ativan, just in case. Of course I wouldn't want to take that every night, as one can get addicted to that.
 
#67
I am taking pills...but its not my own..I cant ask for them all the time. Yesterday I didn't take the pills and it resulted in in me not sleeping. Perhaps 1-2 hour at best. 3-4 days before I took pill and managed to sleep. But I want to train myself to sleep without.
 
#69
Raphael7713 said:
I am taking pills...but its not my own..I cant ask for them all the time.
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I don't think your doctor would mind prescribing amitriptyline to you. Junkies don't use it.

You can also always go to the emergency and explain that T won't let you sleep. This is how I got my supply of Ativan...
 
#70
Bill Bauer said:
Are you using any sound enrichment?

I have
https://www.amazon.com/Machine-Soothing-Natural-Ambient-SilverOnyx/dp/B01N7IN2PW
I use it at the "crickets" setting, to help with high-pitch T.

After I bought the above, I learned about the existence of potentially better systems like
https://www.amazon.com/Sound-Oasis-S-5000-Deluxe-Therapy/dp/B0085LW1DA
Click to expand...

I downloaded 2 apps on my cell ...but I suck at masking since it irritates me more lol. I will try it.

How long have u taken the pills? And do u see a future where u will sleep as a regular person without pills?
 
#71
Raphael7713 said:
I downloaded 2 apps on my cell ...but I suck at masking since it irritates me more lol. I will try it.

How long have u taken the pills? And do u see a future where u will sleep as a regular person without pills?
Click to expand...
I have only taken pills for at most 2 weeks. After that I was able to just use sound enrichment. Sometimes I still resort to pills (2 or 3 days in a row, a couple of times each month).

It is not easy to find sound enrichment that works for you, but it is possible.
 
#72
Last night I slept GREAT, thank god. But it was due to 3 things. First off I barely slept night before. I took pill and i walked for 10km. This 3 things combined in an almost perfect sleep. Can i do it today without pills and without being exhausted?
 
#73
Being exhausted works fantastic for sleep. Avoiding blue screens and doing meditation/yoga breathing techniques will make you relaxed and drowsy which also means sleep.

Generally not being able to fall asleep means that your body is keeping you awake as a response to an upcoming event, in our cases: T. So open up a window and meditate.
 
#74
Raphael7713 said:
This is confusing me so much and Im not sure anymore how much im imagning or is psycological, or if its actually T. Because many times I have thought I got T..but then i realize the sound comes from my radiator (a very low frequent sound). Then im like omg, this sound come from the radiator all along. But sometimes I have it for real. So my entire situation is sooo confusing that im not sure anymore how much of it im imagining and how much is real.
Click to expand...
Oh yes!I am experiencing this like you these days.Also confused,too
 
#76
So I thought I give a quick update.

I have for the last 3-4 weeks been sleeping a lot better, no use of sleeping pills, some days my T has been very, very low (almost gone). And I am on my way to habituation. The only thing that irritates me is that my T can shift a lot. Some times I can only hear it during sleeping time, some times I can hear it "everywhere" as long as it's somewhat quiet.
 
#77
@Raphael7713
You must be very careful when you go to a noisy place and wear earplugs
My guess is that you damage a bit your hair cells ...but still have some good one . You must keep those alive and you ll be fine.
 
#78
So just because I wrote my first post in weeks and it was a positive one, I just had to struggle the very same day!

Today no sleep. And for some weird reason masking didn't work at all. Cricket sound helped the best, but after 15-20 min I could hear my T over it. Sometimes masking works sometimes it doesnt...my T seem to rise in volume when i try to mask. This was a very important tool for me to relax and fall asleep.......what now when even masking fails?
 
#79
Hi Raphael i read your story, especially at the beginning. I think your tinnitus could be due to blood pressure or auditory nerve pressure. I say this because you mention that during day even in quit room you cannot hear your t but if you go to seelp just after you can notice it. Try ginko biliba it could help you if my guess is right. However you are luky bec your t seems very mild
 
#80
leledany said:
Hi Raphael i read your story, especially at the beginning. I think your tinnitus could be due to blood pressure or auditory nerve pressure. I say this because you mention that during day even in quit room you cannot hear your t but if you go to seelp just after you can notice it. Try ginko biliba it could help you if my guess is right. However you are luky bec your t seems very mild
Click to expand...

Hey and thank you for your answer!

Like I said, it changes a lot. Now I'm in a period where I can hear it in my balcony and outside. One-two weeks ago I could barely hear it, even when sleeping at the quiet night. I will check it out, thanks!
 
#81
Another update:

Tonight I struggled again. When I'm trying to mask my T it's like it responds with a "no no no, your not getting rid of me" and it changes in volume and sound. Im not fully masking it..im doing as recommended...but it's like the T gets more irritated by the masking. This gets me stressed, my brain doesnt let go..and i lay there in bed for hours.
 
#83
I also wonder why my tinnitus shifts so incredibly hard depending on my enviorment? If Im in one room it sounds a certain way, if im on my balcony its totaly different (louder). when im in my kitchen it's on a certain way.

Im getting maaaaaaaaad! And I thought I was on the road of habituation
 
#84
Sounds like H? Open a window at night or use nature sounds on a very low settings. Nature sounds have more lows in db compared to white noise or crickets etc. Therefor I personally think it is great against H. My hearing is less sensitive now after 4 weeks of sound enrichement at night.
 
#87
Now I know for sure the exact cause that stopped or ended my habituation (which was going very well!).
It is that my T now reacts to almost all external sounds and becomes irritating. Even when I try to mask my T at nights using nature sounds at a LOW volume it irritates my T making it louder and the sound itself gets more irritating. When I go out on the balcony for a smoke my T becomes way more intense, even if there is nothing loud outside, just the usual sound of wind and trees. My T gets so irritating when trying to mask it that I actually feel RELIEF when I turn it off, not the other way around. This is a huge turning point for me and I feel like im on square one again. Because 4-5 days ago and beyond I was feeling really well and I didn't even care about my T at all. I could sleep just as good as I did without T. Now all of a sudden I developed this "reactive tinnitus" or H as some people want to call it, out of the blue. I haven't used earplugs for several months, no exposure to loud sound etc. I'm in my zombie mode...again.
 
#88
Yesterday I got the worst spike of my life so far. It was so scarry! I started to panick. It was insanely LOUD and I could hear it over the tv. It seems that it has settled downa bit, but I dont even dare to hope. What helped me calm down was turning on the cpu and listening to it and some low guitar music. I dont know if this has anything to do with my cold but it was horrific.
 
#89
I wish the tv masked my t..and mine is not even loud but i can still hear it humming faintly when the tv is on.
 
#90
Another update:

After I got the worst spikes almost 10 days ago, the following 10 days were perfect, a very low T if not even gone! However, yesterday evening I noticed the ringing came back. Still a big mystery how my T has for 6 months come and go.
 

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