What Helps Most When Reactive Tinnitus or Hyperacusis Creep Back In?

[alex1975]

My actual real tinnitus has improved to the point where it's not a great bother to me anymore. Sometimes I can barely hear it. But I'm struggling SO hard with the somatic buzzing. You would imagine once the Tinnitus fades that you'd get over that... seems it's going to take a long time.

Sorry to hear that... I haven't heard of that term. Is it an actual vibration in the ear or a buzzing sound?

 

[alex1975]

I've seen 6 doctors and they all know next to nothing about our conditions. Only one has been any help at all. Audiologists know a bit more as they are often tinnitus sufferers themselves.

Funny enough my audiologist has T herself. She recommended a system called Levo but, it just came out in the States and haven't seen any reviews from users. For $6000 you kinda want to make sure it works, lol...

 

[all to gain]

Funny enough my audiologist has T herself. She recommended a system called Levo but, it just came out in the States and haven't seen any reviews from users. For $6000 you kinda want to make sure it works, lol...

My GP told me he has tinnitus after I told him i have it. Not sure if I believe him though, as the next time we talked about it i'm pretty sure he had a different sound than the first time. Not saying your audiologist is lying, but I reckon a lot of medical professionals say they have it when it suits.

 

[GoatSheep]

Funny enough my audiologist has T herself. She recommended a system called Levo but, it just came out in the States and haven't seen any reviews from users. For $6000 you kinda want to make sure it works, lol...

Levo is a habituation device, not something that may actually reduce symptoms. Just your awareness of them.

 

[alex1975]

Levo is a habituation device, not something that may actually reduce symptoms. Just your awareness of them.

Right... As far as I know there still isn't anything else except for Lenire? But even with that it sounds like you can't just do it for a while and quite, it's something you need to stay on, not entirely sure since it's relatively new as well.

 

[Michael Leigh]

Hi Micheal,
Thanks for all the info once again. I definitely see your point. It sounds like there is definitely more up side on giving up the ear phones. The only time I used them was to play my T masking sound, at a low volume. But lately I've been just playing it on my laptop or ipad and that seems to work even better actually.

HI @alex1975
I am an Audiophile and used to listen to music through high-end headphones that eventually gave me tinnitus due to my own fault, listening at too high a volume without realizing it. That was 23 years ago. I wish I knew then what I know now and would have listened at a lower volume.

I now enjoy my music just as much even more, through speakers as headphones, no matter how high-end and I've heard some of the best: The highly respected "Stax" electrostatic headphones, driven by separate tube amplification. Headphones cannot create the realism of a three dimensional sound stage that good HI-FI speakers can and that is a fact. All serious Audiophiles do their main listening through speakers.

All the best
Michael

 

[GoatSheep]

Right... As far as I know there still isn't anything else except for Lenire? But even with that it sounds like you can't just do it for a while and quite, it's something you need to stay on, not entirely sure since it's relatively new as well.

From what I gather the original trial model was 12 weeks and they followed up with people at the one year mark to confirm they still had the same results.

@Redknight mentioned he was going to see about prolonging treatment to the 18 week mark I believe to see if he garnered further results.

It may have been him also that mentioned in the future they may be looking to offer software upgrades for the device. Presumably, if they improved upon their timings or something and could offer further reduction.

So it appears they aren't looking at it as continuous use, but possible periodic need. Someone else had said something like what if you incur another noise trauma etc. In which case I could see another round of treatment.

As long as it turns out to be legitimate then I'd say it appears they have a goal of making it something with incentives to continue to bring in revenue, but not form dependency on it. Though they also have charges for tongue tip replacements after 180 hours use or something like that.

I'm sure to receive software upgrades would cost additional money plus the additional cost of clinic visits etc.

My word is by no means gospel. Just my interpretation of what's been presented.

 

[acute]

My actual real tinnitus has improved to the point where it's not a great bother to me anymore. Sometimes I can barely hear it. But I'm struggling SO hard with the somatic buzzing. You would imagine once the Tinnitus fades that you'd get over that... seems it's going to take a long time.

How do you know that buzzing is somatic? I also have a buzzing in my head most of the time and I would like to know if something similar happens to us. Also, what do you mean by "somatic"?

The tinnitus that was faded was a static tone?

 

[foam]

How do you know that buzzing is somatic? I also have a buzzing in my head most of the time and I would like to know if something similar happens to us. Also, what do you mean by "somatic"?

The tinnitus that was faded was a static tone?

Because one sound is inside my ear... and it never changes but I can hardly ever hear it because the ringing in my brain is way louder. My ear was just a constant loud 10.5khz tone. Which now became a slight morse code beep. The other "sound" is al electrical buzz/hiss that's right in/all over my brain but mostly coming from the left side of my brain. This part of it gets' louder with neck and jaw stretching or reacts to being in the car and loud low frequency sounds like that. I'm sure the sound in my ear caused my brain to go weird with this nerve/somatic part of the problem. The brain ringing starts as soon as I fall asleep, and also between 5 am and when I wake up. My head is fairly clear between 9pm and 5am.

 

[alex1975]

Because one sound is inside my ear... and it never changes but I can hardly ever hear it because the ringing in my brain is way louder. My ear was just a constant loud 10.5khz tone. Which now became a slight morse code beep. The other "sound" is al electrical buzz/hiss that's right in/all over my brain but mostly coming from the left side of my brain. This part of it gets' louder with neck and jaw stretching or reacts to being in the car and loud low frequency sounds like that. I'm sure the sound in my ear caused my brain to go weird with this nerve/somatic part of the problem. The brain ringing starts as soon as I fall asleep, and also between 5 am and when I wake up. My head is fairly clear between 9pm and 5am.

Very similar to what I have. So ce my T got louder after my concert a couple of weeks ago almost, I get woken up at 5-6AM every day. So annoying!

 

[alex1975]

From what I gather the original trial model was 12 weeks and they followed up with people at the one year mark to confirm they still had the same results.

@Redknight mentioned he was going to see about prolonging treatment to the 18 week mark I believe to see if he garnered further results.

It may have been him also that mentioned in the future they may be looking to offer software upgrades for the device. Presumably, if they improved upon their timings or something and could offer further reduction.

So it appears they aren't looking at it as continuous use, but possible periodic need. Someone else had said something like what if you incur another noise trauma etc. In which case I could see another round of treatment.

As long as it turns out to be legitimate then I'd say it appears they have a goal of making it something with incentives to continue to bring in revenue, but not form dependency on it. Though they also have charges for tongue tip replacements after 180 hours use or something like that.

I'm sure to receive software upgrades would cost additional money plus the additional cost of clinic visits etc.

My word is by no means gospel. Just my interpretation of what's been presented.

I see... So it's still in the trial phase then, not available to the public?

 

[alex1975]

HI @alex1975
I am an Audiophile and used to listen to music through high-end headphones that eventually gave me tinnitus due to my own fault, listening at too high a volume without realizing it. That was 23 years ago. I wish I knew then what I know now and would have listened at a lower volume.

I now enjoy my music just as much even more, through speakers as headphones, no matter how high-end and I've heard some of the best: The highly respected "Stax" electrostatic headphones, driven by separate tube amplification. Headphones cannot create the realism of a three dimensional sound stage that good HI-FI speakers can and that is a fact. All serious Audiophiles do their main listening through speakers.

All the best
Michael

Same here, but I used to work in Nigh Clubs when I was younger, then shot guns, with no protection, worked in construction, again never wearing protection. Raced motorcycles... It's a wonder actually that I didn't get this sooner... I guess I should see it as actually being lucky that it hit me in my mid 40's...

 

[GoatSheep]

I see... So it's still in the trial phase then, not available to the public?

It's available in Ireland.