Member- Dec 24, 2013
- 933
- Tinnitus Since
- (1956) > 1980 > 2006 > 2012 > (2015)
- Cause of Tinnitus
- Ac. Trauma & Ac.Trauma + Meds.
After an absence of nearly 3 years being a very active member of Tinnitus Talk, I have decided to come back primarily to present an idea because it is something that I would want for myself. However, the more I reflected on the idea the more I realized there may be others out there (likewise with more severe tinnitus and/or hyperacusis), that might be in the same position and want the same thing! So after running it by Markku and getting his approval we decided to go ahead with it and see if there was positive response or need in the Tinnitus Talk community – with the caveat that this be, at core, a "practical" endeavour, and not some pie-in-the-sky idea to debate into theoretical extinction.
What I am talking about here is something I am calling the: "Tinnitus Safe Travel and Meeting Network". What it is and who this could benefit is explained in two separate new threads that will follow.
- One is for general discussion and thrashing out the details, concerns, obstacles, spin-off ideas, whatever. The key in this thread would be: "Discussion".
- The second is for actual postings of those who want participate in the program giving details of their locations and situations. This will be focused on the specifics related to the postings. Thus, the "Participants" thread.
To get the ball rolling I am putting in my own place and circumstances as a participant. Please bear in mind that this is indeed for real, but very much a beginning and possibly inadequate start. I'm sure many suggestions could be made as to how such postings could be done and improved. I look forward to that, and hopefully to a good list of others who want to join in!
OK, so that is why I am back – yet I do so with some caution too, as I got pretty heavily burned out by the time I decided to drop Tinnitus Talk from my daily online activities.
Some of the old timers still around may remember me as indeed Tinnitus Talk was a very exciting and happening place during that era, particularly 2014 when we were super hopped up and hoped up about Trobalt, other Potassium Channel Modulators, Tzounopoulos, Autifony, AM 101, ATEOS' ventures into stem cells, and so on. It was crazy exciting and we all felt sure a "real cure" was just around the corner. In short, I spent a lot of time on Tinnitus Talk, posted a lot of threads, had hundreds of private Conversations with many of those leading to emails off board as well.
Old timers may also recall that I was "old school" in terms of being the opposite of a one sentence "Tweeter"! I went into detail. I gave long and full responses to the many requests for help. However, soon after my unsuccessful affair as one of the early participants with Trobalt I started to fall into my own black hole.
As seems to me vividly typical of online social forums I was forgotten in a heartbeat. I hardly recall anyone reaching out to ask where I had gone. Maybe that is too harsh, but that is how my memory recalls it... yet I still for years got requests for help from new Tinnitus Talk members that bumped into my old threads. And often I replied, but less willingly. It took a lot out of my limited reserves, and I kept off Tinnitus Talk apart from the occasional glance to see if any new "miracles" had cropped up yet. Sigh... Seemingly not for people like me.
So, why am I saying this above? – Because I want to make it clear that I do not want to go down that road again. So please, if you have questions for me stick to the threads about the "Network". Also, read my Profile (updated) to get a more historical perspective on my condition and the realities of my tinnitus and hyperacusis history. Yes, those four increases in tinnitus volume over my life are true, as are the later increases in hyperacusis. Again, look at my Profile if you want to know about that, as I consider it to be a pre-condition before I answer (or IF I answer) any Conversation request.
Yeah, this may sound a bit dictatorial and hard-arse, but just how it is. If you were in my shoes I think you would get it just fine!
And yes, kind of a long post and a challenge for the short attention-span set. Well, welcome to Zimichael...and his conditional return!
Best ~ Z.
What I am talking about here is something I am calling the: "Tinnitus Safe Travel and Meeting Network". What it is and who this could benefit is explained in two separate new threads that will follow.
- One is for general discussion and thrashing out the details, concerns, obstacles, spin-off ideas, whatever. The key in this thread would be: "Discussion".
- The second is for actual postings of those who want participate in the program giving details of their locations and situations. This will be focused on the specifics related to the postings. Thus, the "Participants" thread.
To get the ball rolling I am putting in my own place and circumstances as a participant. Please bear in mind that this is indeed for real, but very much a beginning and possibly inadequate start. I'm sure many suggestions could be made as to how such postings could be done and improved. I look forward to that, and hopefully to a good list of others who want to join in!
OK, so that is why I am back – yet I do so with some caution too, as I got pretty heavily burned out by the time I decided to drop Tinnitus Talk from my daily online activities.
Some of the old timers still around may remember me as indeed Tinnitus Talk was a very exciting and happening place during that era, particularly 2014 when we were super hopped up and hoped up about Trobalt, other Potassium Channel Modulators, Tzounopoulos, Autifony, AM 101, ATEOS' ventures into stem cells, and so on. It was crazy exciting and we all felt sure a "real cure" was just around the corner. In short, I spent a lot of time on Tinnitus Talk, posted a lot of threads, had hundreds of private Conversations with many of those leading to emails off board as well.
Old timers may also recall that I was "old school" in terms of being the opposite of a one sentence "Tweeter"! I went into detail. I gave long and full responses to the many requests for help. However, soon after my unsuccessful affair as one of the early participants with Trobalt I started to fall into my own black hole.
As seems to me vividly typical of online social forums I was forgotten in a heartbeat. I hardly recall anyone reaching out to ask where I had gone. Maybe that is too harsh, but that is how my memory recalls it... yet I still for years got requests for help from new Tinnitus Talk members that bumped into my old threads. And often I replied, but less willingly. It took a lot out of my limited reserves, and I kept off Tinnitus Talk apart from the occasional glance to see if any new "miracles" had cropped up yet. Sigh... Seemingly not for people like me.
So, why am I saying this above? – Because I want to make it clear that I do not want to go down that road again. So please, if you have questions for me stick to the threads about the "Network". Also, read my Profile (updated) to get a more historical perspective on my condition and the realities of my tinnitus and hyperacusis history. Yes, those four increases in tinnitus volume over my life are true, as are the later increases in hyperacusis. Again, look at my Profile if you want to know about that, as I consider it to be a pre-condition before I answer (or IF I answer) any Conversation request.
Yeah, this may sound a bit dictatorial and hard-arse, but just how it is. If you were in my shoes I think you would get it just fine!
And yes, kind of a long post and a challenge for the short attention-span set. Well, welcome to Zimichael...and his conditional return!
Best ~ Z.
