Will My Tinnitus Ever Go Away? More Prone to Noise-Induced Tinnitus?

[attheedgeofscience]

It is so weird. Some say "avoid anything above 80 db" and then someone said "I will try to avoid any noises above 65db for at least one year"

That's the beauty of the Internet. You can find opinions on everything.

 

[attheedgeofscience]

There is data (posted on those very forums even!) that shows AM-101 shows greater recovery than placebo 100 days after the injections. Please do not spread misinformation.

After reading some of the remarks within this thread, I doubt the average poster has any awareness as to the implication of terms such as "placebo" and "double blind" study.

When there are "givers" and "takers" of information - and where both parties are unfamiliar with the terminology and rationale behind it, then you have a perfect recipe for poor decision making. Then add the fact that we are dealing with health related matters, and you have a recipe for a disaster with potential life long consequences.

I stated yesterday (and the day before) that the Internet is a scary place. There is good reason to stand by that comment.

 

[Nucleo]

I think a lot of people here don't want their T to go away or don't want to be really cured. People like being part of some group and there is a lot of emotional support. just a hunch.

I get the same feeling sometimes. With some individuals it just becomes a pissing contest on who suffers the most.

 

[STi]

Don't listen to ear buds at max anymore damn! I doubt it will go away....You need to just try and block it out...you will get use to it...It will just become an annoyance that won't go away but livable...

To the person who said people don't want it to go away to be apart of a support forum is ridiculous. ....That is the stupidest thing I have read in awhile....That this day in age with social media and such do not need a frigging support group to be apart of.

Also.....I would not take powerful meds to try and fix something. ...that will likely cause other issues and not do nothing at all for intended purpose.

 

[Zora]

@STi by powerful meds do you mean Am 101? I am not listening to music at all anymore! " In hindsight your always smarter" I know that it was stupid but I had a lot of fucking issues I just wanted to suppress.

 

[Boy Helios]

@Boy Helios I see your point. But I have enough community in real life. i just want my T to go away what ur opinion about am 101?
If T is noise induced does it mean its nerve related?

if it's noise induced it's related to the hair cells, meaning it's harder to treat. I think you can still treat it if you start early. the hair cells might be severely damaged but capable of regeneration. look into laser.

 

[daniel1111]

I am staying in silence since the onset.

I think sitting in only silence can cause your hearing to be more sensitive. That would negatively affect your tinnitus.

You don't need to be listening to music with headphones or anything, but you can watch TV for example that's not going to damage your ears.

You can look here for acceptable noise exposure times: http://dangerousdecibels.org/education/information-center/decibel-exposure-time-guidelines/

If you are worried, just go a little less on the SPL.

 

[Nucleo]

@Nucleo I dont know if u already read it. But here my opinion: It is so weird. Some say "avoid anything above 80 db" and then someone said "I will try to avoid any noises above 65db for at least one year"
Apparently no one knows the answer.
I mean, the first instinct is to stay in silence. Especially after noise-induced T. You should trust your instincts I'd say.

To me, putting more noise on top of a noise injury just seems bad. Nerves heal slowly and with newer findings, we know know that hearing continues to deteriorate for weeks after the initial injury, while showing no changes on the standard audiogram.

You may not need to stay in dead silence the whole time but I would avoid places like cinema theaters, loud restaurant or bars. Of course shooting guns or concerts are absolutely out of the question.

 

[John Meyers]

@Nucleo I dont know if u already read it. But here my opinion: It is so weird. Some say "avoid anything above 80 db" and then someone said "I will try to avoid any noises above 65db for at least one year"
Apparently no one knows the answer.
I mean, the first instinct is to stay in silence. Especially after noise-induced T. You should trust your instincts I'd say.

I think that avoiding the extreme noises like concerts, bands/DJ in closed in areas, loud machinery, etc is key.

Placing yourself in complete silence is not going to help get rid of T. -- If that helps you not think about it, go for it but for me, that would make me think about it all the time.

Also, I'm all for occasional masking to help you get through the day (and night) until you habilitate.

 

[John Meyers]

@John Meyers hopefully you are right. that means that I dont have to suffer from not getting in AM 101.

I did a ton of research since they are doing AM-101 near me (5 hour drive). -- After looking at the Pros and Cons (especially that I might get a placebo and have to start all over), I decided to take a pass.

If it was somewhat proven and no chance of getting a placebo, I would have gone for it but not worth if for me otherwise.

Don't be regretful Zora. You are still a newbie and will habilitate soon..

 

[Zora]

@John Meyers ahahah thank you!! "Close to my hometown 5hours" hahaha you only can be from usa!!! You guys are funny! They are doing am 101 20 minutes away from me! Thats what I would call close! 5 hours is a looooong time, very far away

 

[John Meyers]

There is data (posted on those very forums even!) that shows AM-101 shows greater recovery than placebo 100 days after the injections. Please do not spread misinformation.

https://www.tinnitustalk.com/threads/am-101-clinical-trial-—-participants-updates-and-discussion.6558/page-20#post-119473

Hello Nucleo,

"Just my 2 cents" means that it was I think, not that it is necessarily true. -- I encourage everyone to do their own research before making such a big step. -- If they do it and it works for them, awesome!

 

[John Meyers]

@John Meyers ahahah thank you!! "Close to my hometown 5hours" hahaha you only can be from usa!!! You guys are funny! They are doing am 101 20 minutes away from me! Thats what I would call close! 5 hours is a looooong time, very far away

Ha ha.. I'm in Chicago and they were going to pay for my mileage and hotel stay if I went to the one that is one more hour -- 6 hour drive away (in Louisville, Kentucky).

I saw that some T sufferers needed to hop on a plane to get AM-101 so that is what I was comparing it too..

 

[Zora]

@John Meyers oh ok I see. Yeah Its making me very depressed not to participate in am 101

 

[John Meyers]

@John Meyers oh ok I see. Yeah Its making me very depressed not to participate in am 101

I am hopeful they will find a proven remedy that is easily accessible. -- I am discovering that sugar and carbs are the worst right now.

Do you have it in both ears? From 1 to 10, what level are you at? -- We aren't supposed to rate our T but I was never good at following rules..

 

[Zora]

@John Meyers food doesnt seem to affect my T.
yes in Both ears. and at the moment it feels like a 7. but realisticaly its probably a 4 (compared to other people)

 

[John Meyers]

@John Meyers food doesnt seem to affect my T.
yes in Both ears. and at the moment it feels like a 7. but realisticaly its probably a 4 (compared to other people)

I have it in my right ear (the ear I put towards the damn guitar solos with my hand cupped behind. So stupid.).

You will be ok Zora. Just try to go on with your life, mask, meditate, etc.

I never thought I would ever meditate and it really does help. Here's a good link for meditation visuals/music: brainwavepowermusic.com

 

[Alue]

I think a lot of people here don't want their T to go away or don't want to be really cured. People like being part of some group and there is a lot of emotional support. just a hunch.

I do think T can be cured , esp. if it's nerve related.

Are you serious? Sure, there may be people that want attention or sympathy, but many desperately want their T to go away.

 

[Fangen]

@Zora,

I understand why you are asking this, I was desperate to find an answer for that as well when my T started in the beginning of Dec 2015. Truth is that there is no accurate answer, even if you ask doctors, depending on who you ask you'll get different answers. My ENT told me that I should not be scared of regular everyday noises, even if they sometimes appear to be loud. Only protect ears at concerts, cinema etc. No need to stop living my normal life and just beware of loud environments like I would have done without T (if I did it from start I didn't have to be here with T of course, lol). I've attended cinemas three times and a bar (Super Bowl Sunday!) with ear plugs during the whole night or movie. It has not affected my T in anyway.

I have had three "downs" since onset, all related to my fear of making it worse, or been exposed in situations with sudden noise that I was unable to control (smoke alarm going off over my head for example). The more I started to worry, the more I listened, the more it seemed louder and I started to find new tones or frequencies that I swore were not there before. I am in the middle of a down now. I want to say it is louder now than before, after getting worried that my restaurant visit on Valentine's Day (measured 67-70 db, lets say max 75-80 db just in case the app was off a little). I sat without plugs for 45 min before feeling that the music started to get louder (my ears gets tired faster now than before, I feel tired from 1 hour meeting at work too). Put my plugs in and felt better the rest of the 45-60 min we were there. Even with 80 db for 45 min would still be within the safe zone yes? I can get exposed to that easily on the subway, in the laundry room or outside with traffic around me. But getting that thought "What if I caused it to be worse" - is in my perspective the main cause for my "spikes". I cannot say for sure if my T has changed at all, I want to say yes but then again, I keep comparing my T to my old baseline, holding my hands over my ear to listen for it etc. So yes, I probably feel it has become worse or intrusive, but the possibility of being the same with no change from before is also big. I just didn't pay attention to it at all, now I keep worrying so my brain keeps looking for it.
Also for me, having some kind of noise around me has always been the "cure" for habituation, the brain gets focused on the other stuff around you = less attention to the new sound. Once you realize you have been spending longer time alone focused on something and not hearing the T, you'll feel more confident in your progress = more progress. The anxiety will drop, likewise the worrying. I hope this make some sense for you, hard to explain. This is only my method and my perspective, it won't always work on everyone but it is similar to "Back to Silence"-method that you can find here. When you stop acknowledging the T with emotions or fear, it will become better.

Wish you the best and hope you'll feel better soon,

F.

 

[STi]

I have had noise induced T since thanksgiving 2015...so it hasn't been that long...the sensitivity and slight heaviness feeling are gone but the ringing stayed the same...the heaviness was the 1st to go away....They're no meds that will eliminate it or all the rich celebrities who have it would have found the fix...If it's going to fix it's going to fix itself. ..In the beginning I was like how the fuck am I going to live with this..but as time passes u realize u have no choice and just be glad u don't have terminal cancer or something....Once you accept it ....it just becomes and everyday annoyance that is livable and gets blocked out a good part of the day.....It sucks but things could be worst.

 

[hoper]

@TE: Am Anfang als ich meinen T bekommen habe, hatte ich die gleichen Gedanken wie du. Aber nach der Zeit habe ich mich daran gewöhnt und es macht mir kaum noch Sorgen. Bei dir wird das mit Sicherheit genauso sein
Dass der T einmal verschwindet hoffen wir alle, aber ich denke man muss einsehen dass es momentan weltweit einfach keine erfolgsversprechende Behandlung und auch keine Heilung gibt. Das kann sich in den nächsten Jahren aber noch ändern

 

[REDSNOW106]

Sounds like you disregarded the affects the tinnitus because you knew it was gonna go away, until one day it didn't. This what happens when ppl take everything for granted stuff get damaged beyond repair and nothing really to do but live with it, maybe you will get to use to the sound or maybe it will go away but either way you learned it the hard way, we only live life once so take care of yourself. And age don't matter, that don't increase the recovery time of a noise induced incident it depends on the amount of damage done, there are kids as young as 7 or 8 that has it just being around that type of environment and they had to get the implant which is horrible to been seen out in public with them on.

 

[GregCA]

And age don't matter, that don't increase the recovery time of a noise induced incident it depends on the amount of damage done, there are kids as young as 7 or 8 that has it just being around that type of environment and they had to get the implant which is horrible to been seen out in public with them on.

The horrible part isn't the look. It's that they can't hear naturally (hearing through implants is nothing like hearing naturally). That's the horrible part. It dwarfs anything looks-related, IMHO.

 

[REDSNOW106]

One of the best things a person can do is make it managable until one day they can barely notice it anymore. Reduction is not a cure but it helps a great deal in being able to function everyday normally. One thing tinnitus does is it robs us the ability to hear ourselves think silentely but managing and reducing helps you regain some functions back. Zora, i recommend you play music at safe levels to not point your hurting ear drums. Protect your ears while going out. Earplugs or earmuffs. Check out the acoustic cr nueromodulation forum up here and see does that help reduce or manage your tinnitus after a week or two. I use the Frequency sound generator app with some white noise.

 

[REDSNOW106]

The hardest part about this experience is probably having patience with not only with yourself, allowing other have patience with you as well. But once your brain get use to the sound it dims down.