@Dr. Nagler Pardon my ignorance, but what is six week syndrome? Do you mind sharing what the diagnosis was that made the tinnitus worse from sound therapy?
When discussions become lengthy, I can imagine he had a talent for summing things up.That's for sure...
Not forgetting the fact that @Max_fcktr has had some 100 posts of his deleted. Although (most) of them did stray well into the further regions of the 'profanity spectrum', and while most of them would also not display any significant literary finesse, his posts did most certainly convey the essence of the argument (and content)!
I sure did have a good laugh back in the day when @Max_fcktr was more active here on TinnitusTalk. Not sure he would make a good candidate for Team Awareness and public relations, though...
So the reason that sound therapy is such an essential component of TRT has to do with how we perceive sensory signals, but also has to do largely with neuroplasticity, the ability of neurons to create new synapses and hence the ability of the central nervous system to develop new pathways within itself while not actually increasing the number of neurons. Neuroplasticity occurs as the result of various "insults" (scientifically speaking) to the brain, and among the most common of these insults are environmental. The sound therapy, when tailored to the specific TRT category and various individual needs within those categories, is essentially an environmental insult that serves to promote development of new pathways, some anatomical (structural) and some physiological (functional). Approximately 1/4 to 1/3 of TRT patients who are doing the sound therapy exactly as they have been instructed to by their TRT clinicians will find that at some point between one and two months after starting TRT (hence the name "six-week syndrome,") their tinnitus gets somewhat louder temporarily. This circumstance always reverses itself with a few simple tweaks and is actually felt to be a good overall prognostic sign, indicating that new pathways are already starting to form even at this early stage - they are just developing in the wrong direction initially.Dr. Nagler Pardon my ignorance, but what is six week syndrome?
You mean the one time that I made a mistake and my patient was worse off for it? I'd really prefer not to go there. And, in fact, I think it's time for me to leave this thread entirely, having pretty well dominated it for several pages now responding to questions and clarifying various matters of concern.Do you mind sharing what the diagnosis was that made the tinnitus worse from sound therapy?
Not sure he would make a good candidate for Team Awareness and public relations, though...
Why don't you address a perfectly legitimate question? You are sure eager to join a thread the minute you spot an opening for spewing your TRT pseudo science. So why can you not answer a legitimate question that follows in the slipstream of the questions you yourself are responsible for?I'd really prefer not to go there. And, in fact, I think it's time for me to leave this thread entirely, having pretty well dominated it for several pages now responding to questions and clarifying various matters of concern.
Dr. Nagler has made it known that he won't respond to my question, anyway it is what it is... draw your own conclusions
Am I understanding correctly, that with TRT the tinnitus itself is irrelevant no matter what?
Well first you have to figure out why the tinnitus is reactive to the sound therapy.
To many people's dismay, @Dr. Nagler has a habit of only answering questions and discussing topics that promotes his own interests.@attheedgeofscience I agree. It seemed like a perfectly legitimate question, especially for people who do not respond well to sound therapy. Or for people with reactive tinnitus. May I ask your reasons for not liking TRT? Is it only effective for some and not others? I know that one size does not fit all when it comes to tinnitus. I am trying to glean as much information as possible, knowing there is no fail safe approach. What has been your treatment of choice? I am wondering what would be your advice for people who cannot tolerate sound therapy?
Tinnitus is a medical condition; not a psychological one. It therefore belongs to the discipline of medicine and biology (not psychology or psychological principles). A person I hold in high esteem once wrote the following:May I ask your reasons for not liking TRT?
I have often heard Dr. Nagler mention phrases with content to the following effect:Regarding psychology and tinnitus: tinnitus is not a disease of the mind; it is a disease of the brain. Psychotherapy will therefore not work. Just like antidepressants will not work against an ingrown toenail.
I'd be jumping up and down and screaming from the rooftops about the benefits of LLLT in tinnitus. But LLLT doesn't work for tinnitus.
The "question" - the practical question - is then: why are people not shouting from the rooftops about TRT? Well, Dr. Nagler has (developed) a standard answer to that inquiry as well:200 people jumping for joy and singing the praises of Retigabine from the rooftops. But there isn't a peep. Not one peep!
What amazes me is that Dr. Nagler has frequented the various tinnitus boards for almost two decades (I believe he has +7000 posts on the TSMB website, for instance!)...The guy who finally at long last claws his way to safety from the depths of a rattlesnake pit is just not gonna want to hang out at the reptile exhibit of the local zoo.
Furthermore, Dr. Nagler likes to use phrases such as...As far as inviting my own former patients - TRT or otherwise - to give their input on this forum, I guess I could, but I have absolutely no intention of doing so. Why would I want to bring back such a difficult time in their lives? If they themselves are moved to post on a support board, that's fine with me. But I want no role in it.
Who is the captain of your ship?
...but I am not exactly sure what that means! Indeed, as one person astutely observed:One is to let tinnitus drive your bus.
Dr. Nagler tends to have standard phrases prepared for the ailment of tinnitus - and here is a "classic":He makes it sound so easy .
At a first glance it all seems logical and clear - just like math on a piece of paper - but upon a 2nd read, can anyone seriously explain to me what the hell that means? And can anyone seriously explain to me - in context - how that has any impact and/or relevance to a tinnitus sufferer? After doing TRT your tinnitus loudness will be just the same. Nothing has changed...The keys to success are Strategy, Determination, Flexibility, and Insight.
If in spite of your Determination your current Strategy does not get you where you want to go, you have to be Flexible enough to change strategies.
I have taken the scientific/medical approach. Essentially I have looked into any and all clinical trials that might be available. None were available to me (due to my country of origin, Denmark, and as a resident of Germany). I have furthermore tried to get hold of drugs like AM-101 and OTO-311 for non-study purposes (but the pharmas declined, despite a formal request from an ENT surgeon licensed to partake in clinical trials). I ended up doing stem cell therapy (x 2) and LLLT. I have also done a brief four rounds of Flupirtine.What has been your treatment of choice?
Since Dr. Nagler has apparently offered you free TRT therapy, I would at least consider how that goes (it's a first on this board despite many requests from my side). And since it is free, what have you got to lose?I am wondering what would be your advice for people who cannot tolerate sound therapy?
Carm, I have answered every single question posed to me in this thread promptly, respectfully, and completely to the very best of my ability... save for one. Here is the question I did not answer:To many people's dismay, @Dr. Nagler has a habit of only answering questions and discussing topics that promotes his own interests.
That wasn't my question. But based on your response, I would not recommend TRT for you. No, it's not because your tinnitus is too severe for you to succeed. That's not it at all. It's because according to your logic, succeeding in TRT would mean (to you) that your tinnitus wasn't bad after all ... and you are just too vested in insisting that it is!
Telis, tinnitus is not a 2% problem. And tinnitus does not have a 2% solution. It's a tough climb all the way. Thousands upon thousands of people with severe intrusive tinnitus have overcome it one way or another. But there are some folks who are simply destined not to make that climb. The term for those folks is "flag-waver." Flag-wavers are people to wear their tinnitus on their sleeve, like some sort of badge of honor. And anybody who truly believes that those who have succeeded in overcoming their tinnitus cannot possibly have it as bad as he or she does ... is pretty much destined to fail.
To the contrary, I absolutely expect people to have their own beliefs/logic. It is totally normal for people to have their own beliefs/logic. But if a person is going to consider a treatment protocol that might in part run a little contrary to those beliefs/logic, then I expect him or her to be just a tiny bit open-minded about it. You do not have to "believe-in" TRT for it to be effective. But if you are not going to at least be open to the possibility that there might actually be something to the model upon which it is based, then in my opinion you are wasting your time. I suspect that other clinicians will gladly take your money - indeed @svintegrity has had some experience up close and personal with one of them. But I think that for you TRT would likely be a waste of time - because from what I can glean from your post above, you are not at all open to the possibility that there is even the smallest amount of validity to the model upon which it is based. That is not in any way a criticism of you. It is a simple non-judgmental observation. If I am wrong, then I stand corrected. It surely would not be the first time I was wrong about something.You expect people not have their own beliefs/logic?
Like I just said, your own thoughts would rule it out only if you are not open to even the slightest possibility that those closely-held beliefs of yours might in some small way be incorrect. Which from what I can gather pretty much describes your situation, my friend. That has nothing to do with placebo. It has to do with common sense.And if my own thoughts rule me out of this treatment it is very very clear this is a placebo type treatment.
As I have written before, I only see 9s and 10s (and a very few 8s) in my clinic. I interview every prospective patient by phone for at least 30 minutes ahead of time. There is not a sugar pill in the world that will help the folks who are ultimately offered appointments. What you refer to above as "the rest" ... are the only people I am interested in treating. Moreover that's how I think TRT should be conducted in general. In my opinion too many people are offered TRT ... and they are offered it for the wrong reasons. That's what can happen when there is no standardization or certification.Sure you can help the types that can take a sugar pill and feel better, but what about the rest?
Stephen, I know. Nevertheless it is still tough.Martin, the two words in your post that stand out more than any of the others are Doing better. Doing better is good, yes? It's not yet great, but it is definitely good.
I realize it's tough. I know it was tough for me. If we wanted "easy," you and I have chosen one hell of an affliction, no? Severe intrusive tinnitus is damn tough!Stephen, I know. Nevertheless it is still tough.
And who can ask for more than that?Sometimes (oftentimes) I have multiple high-pitched tones above 14 or 15 kHz in my head.
Not reacting to them is damn difficult. But I do my very best.
You are very kind to say that, Martin. And you are most welcome. I must admit that it's been particularly difficult for me lately. You'd think that folks could criticize TRT without taking personal swipes at me. There is much about TRT that deserves criticism, but nobody deserves to be treated the way I have been treated here of late. The admins have done a lot of "surgery" on this thread, yet still it continues.Thanks for being with us here.
I know, I have seen that. I think it is not fair.You are very kind to say that, Martin. And you are most welcome. I must admit that it's been particularly difficult for me lately. You'd think that folks could criticize TRT without taking personal swipes at me. There is much about TRT that deserves criticism, but nobody deserves to be treated the way I have been treated here of late. The admins have done a lot of "surgery" on this thread, yet still it continues.
@attheedgeofscience I agree. It seemed like a perfectly legitimate question, especially for people who do not respond well to sound therapy. Or for people with reactive tinnitus. May I ask your reasons for not liking TRT? Is it only effective for some and not others? I know that one size does not fit all when it comes to tinnitus. I am trying to glean as much information as possible, knowing there is no fail safe approach. What has been your treatment of choice? I am wondering what would be your advice for people who cannot tolerate sound therapy?
shatner never had bad T, although his reaction was bad. In a interview he held the mic up and said it sounds exActly like this....shhhhhhhhhh. That is NOT bad T. HIS REACTION WAS TERRIBLE, HIS T MANAGABLE.
You have no idea how his T. sounds. He was demonstrating in an interview however that is not necessarily 100% accurate. In lack of an appropriate sound source he blew on the microphone. I don't think it's not meant to be taken literately concerning either pitch or volume. He was simply explaining that it is a constant sound.
Lynn, I did TRT a few months before Shatner did. We both had the same TRT clinician.I still don't consider it my bad T. Maybe it was his reaction? ! which is why TRT worked for him..since that is what TRT is about..and personally I was shocked like Telis when he described it on tv..I thought he would say it's like a siren or something. .not shhhhh..I thought to myself " no wonder he is ok now"
He also said he took off the TRT masker becasue he found it to be louder and more annoying than his T. You can read many interviews with him, it seems pretty clear that his T is pretty minor but he had a very hard time with it. I like shatner a lot and I'm very thankful he is bringing awareness to tinnitus but IMO it's sounds like he has a pretty minor case of T, very easy to habituate to.Well I think he was describing the sound..I call it " letting air out of a tire" it fills my entire head and I can hear it all the time..
I still don't consider it my bad T. Maybe it was his reaction? ! which is why TRT worked for him..since that is what TRT is about..and personally I was shocked like @Telis when he described it on tv..I thought he would say it's like a siren or something. .not shhhhh..I thought to myself " no wonder he is ok now"
Tinnitus is a medical condition; not a psychological one. It therefore belongs to the discipline of medicine and biology (not psychology or psychological principles).
Shatner discontinued wearing TRT devices because they were more annoying than his tinnitus. But the devices are not annoying at all if they are set properly. And that is part of what the TRT clinician does - make sure that they are set so they are not annoying and do not interfere with communication. So Shatner started TRT because his tinnitus was so annoying to him that he was even contemplating suicide. And within six months or so the devices, which are not annoying at all, were more annoying than his tinnitus. That's exactly what is supposed to happen in TRT. And it happens regardless of how loud or pitchy the tinnitus itself might be!He [Shatner] also said he took off the TRT masker becasue he found it to be louder and more annoying than his T. You can read many interviews with him, it seems pretty clear that his T is pretty minor but he had a very hard time with it.
He also said he took off the TRT masker becasue he found it to be louder and more annoying than his T. You can read many interviews with him, it seems pretty clear that his T is pretty minor but he had a very hard time with it. I like shatner a lot and I'm very thankful he is bringing awareness to tinnitus but IMO it's sounds like he has a pretty minor case of T, very easy to habituate to.
This reminds me about the competence of technicians in the audiology field. Some are just not qualified to work with T or hyperacusis etc. This also applies to hearing-aids, that are now "digital", which audiologists tweak/calibrate using their computer. If one has hearing-aids, patients can request to set programs to help mask tinnitus. However, the majority of audiologists do not have this training and instead refer patients to ENTs or Otoneuros. who do not work with hearing-aids or just set the programs to be too loud, which worsens T. Circular cycle......But the devices are not annoying at all if they are set properly. And that is part of what the TRT clinician does - make sure that they are set so they are not annoying and do not interfere with communication.....
This reminds me about the competence of technicians in the audiology field. Some are just not qualified to work with T or hyperacusis etc. This also applies to hearing-aids, that are now "digital", which audiologists tweak/calibrate using their computer. If one has hearing-aids, patients can request to set programs to help mask tinnitus. However, the majority of audiologists do not have this training and instead refer patients to ENTs or Otoneuros. who do not work with hearing-aids or just set the programs to be too loud, which worsens T. Circular cycle.
I strongly advise anyone to see a clinician educated in Tinnitus to reprogram their digital aids to try masking their tinnitus, hyperacusis & hearing-loss. If the audiologist is not qualified or does that *shrug* - Go somewhere else.
I am not sure the difference between these programmed hearing-aids vs. TRT.
Some people have aids just for tinnitus-masking reasons. Only a few clinics provide these services - odd.
It matters when it comes to TRT and habituation, yes 100 percent. This factor seems to be dismissed for some reason, I guess people are fearful to discuss the condition itself, I don't know, it's strange. There area two factors- your response and the severity of the condition. Yes they ABSOLUTELY BOTH matter.Now just a question. Does it matter one bit how loud his T. is or what it sounds like. Because to me it doesn't. What matters is that he has tinnitus, and that it drove him mad enough to consider suicide. Everything else is irrelevant. How we deal with our T. is very personal and for him it's bad. That's enough.
So the condition itself doesn't matter? Loudness or pitch play no part? "It just happens regardless of how loud or pitchy the tinnitus itself might be" This is starting to really sound goofy now! Come on!Shatner discontinued wearing TRT devices because they were more annoying than his tinnitus. But the devices are not annoying at all if they are set properly. And that is part of what the TRT clinician does - make sure that they are set so they are not annoying and do not interfere with communication. So Shatner started TRT because his tinnitus was so annoying to him that he was even contemplating suicide. And within six months or so the devices, which are not annoying at all, were more annoying than his tinnitus. That's exactly what is supposed to happen in TRT. And it happens regardless of how loud or pitchy the tinnitus itself might be!
So the condition itself doesn't matter? Loudness or pitch play no part? "It just happens regardless of how loud or pitchy the tinnitus itself might be" This is starting to really sound goofy now! Come on!