WTF

[MrNobody]

I am fed up of people around me ( well meaning i know) telling me not to focus on the T and it will go away !
Mine is so loud and all consuming that that is just not possible ! I have no choice but to hear it day and night . It fills my entire world. I have yet to find anything at all that will mask the noise now .it is MASSIVE.
I woke after dozing this morning ( lucky me) and found i was searching the bed for an off switch for the T ! I just sobbed when i came fully to . If this gets any worse it just will not be worth living.

Am I the only person that has it so extremely loud? Other folk seem to say they can think of other things and tune the T out or that tv masks it and so on .
Last week a Euro-fighter flew over head and my T was hugely louder than it !

My ears hurt all the time quite badly . My ENT Dr said i havd TMJ and my GP is just very dismissive . The pain worries me but i suppose it could be from the jaw joints . So miserable ... When will this ever get easier ? I guess nobody knows unless they are psychic.

 

[DDD]

No, of course you're not the only one. I have it super loud too. Try getting your tmj sorted out though. A dentist will usually give you a mouth guard or a splint and that will relieve some of your pain. Might wanna do it asap though because tmj always get worse the more you use your jaw. I have tmj too and I need to go to the dentist too.

 

[Mont]

Same boat here. Mine is so screaming loud it is insane. There is nothing that drowns it out. I just keep hoping it gets better. Hang in there.

 

[MrNobody]

Aww thank you guys . It really does help to share experiences. So miserable right now . Both ears screaming both hurting .
Got some very tough days shead as my wife and constant companion returns to full time work . Also the winter looming , dark by late afternoon here in England . SIGH . I despise being alone these days . Before T i was fine being alone .Most of my friends have passed away , some tragically young. Our children are both adults and have their own busy lives.
I cannot concentrate to read or study as i once did. This is ghe hardest thing i have ever been through.
Thanks for all your support

 

[Sam Bridge]

I think your case sounds kinda similar to @Telis.

 

[dan]

Last week a Euro-fighter flew over head and my T was hugely louder than it !

Same here. Just imagine you are in that plane 24/7.

 

[MrNobody]

So sorry to know you are suffering so badly Dan.
This forum is great . I have had such wonderful empathy and support . There are some really hood people here.
I am starting to try to work out what if anything spikes my T . I do have a lot of salt in my diet so willworl on reducing that.
I am starting to eat more salad fruit and veg.Drink less tea.Eat less sweets and came etc.
I will try anything that might help.
I despise early mornings now . Just as I wake is when the T is extra bad and I panic.
I just cannot stop moaning about T . Talking about it , thinking about it.
We dare not even have our holiday abroad in case it sends my T even worse.

 

[Martin69]

@MrNobody Same here. High-pitched tones above 15 kHz. Nothing masks it, only perhaps loud crickets.
So you are not alone. I survived already 3 years with this craziness in my head.
Lexapro (10 mg) helps me against depression and anxiety, Remeron (only 7,5 mg) to sleep 8-9 hours non-stop. On some days (maybe 10 %) I have it milder. Some are 10/10 like today. Really tough.
T is no T. People who can mask with TV are in another league. Some have it mild, some have it really bad, with pain and H. It is what it is. Keep on fighting and pray it will lower, go away one day or you do no longer care about it.
Until then, make the best out of it.

 

[MrNobody]

@Martin69 Thanks so much Martin.
It really does help to know I am not suffering alone.
There are some remarkable people in this group .
How i hate this affliction. Just lately it is 10/10 - 24/7 . Impossible to ignore or mask . Impossible to think for more than a few minutes .I want to scream and cry , often do.
Two weeks ago i found myself in the garden reslly early smashing stuff up and screaming . I was insane.My poor wife was scared. Only her help has got me here .

 

[Sam Bridge]

@Martin69 does the tv make the t less intense at least? Mine seems to but i still hear "wisps" of my t depending what i watch. Do you still watch tv generally?

 

[GregCA]

Am I the only person that has it so extremely loud?

No. You're not alone. You're in a (not so small) minority of T sufferers though, and it doesn't help when the majority claims that you can deal with it by just not thinking of it, or sleep with a fan. It makes the rest of the world think that this condition is benign, which has horrible consequences in terms of awareness and research for a treatment.

 

[MrNobody]

@GregCA I totally agree Greg. For me there is no masking it or forgetting it EVER. T fills my world , it totally overwhelmes me . It deafens me almost.

 

[Lorac]

@MrNobody ,
I have had tinnitus and reactive T or H for three years, thanks to sudden deafness in one ear. I remember how frustrating it was when people advised me to try ignoring it. I also recall feeling angry at dismissive doctors who said "they have tinnitus too". Really? Want to trade?

Nobody can tell you when things will get easier for you because all of our situations differ so much. I can tell you that I was depressed, overwhelmed, even suicidal for many months (about a year) but I don't feel that way now.

My T cannot be masked. Any and all sound makes my deaf ear react in a bad way. For example, when I drop pills into a weekly container - I hear and feel a hiss in my deaf ear with each dropping pill. Traffic, crowds, or loud music really make me react and so I can't really explain why I'm not overwhelmed nowadays. Maybe neuroplasticity or habituation? I am not expecting a normal life again but it is easier than it was three years ago.

 

[DDD]

@MrNobody ,
I have had tinnitus and reactive T or H for three years, thanks to sudden deafness in one ear. I remember how frustrating it was when people advised me to try ignoring it. I also recall feeling angry at dismissive doctors who said "they have tinnitus too". Really? Want to trade?

Nobody can tell you when things will get easier for you because all of our situations differ so much. I can tell you that I was depressed, overwhelmed, even suicidal for many months (about a year) but I don't feel that way now.

My T cannot be masked. Any and all sound makes my deaf ear react in a bad way. For example, when I drop pills into a weekly container - I hear and feel a hiss in my deaf ear with each dropping pill. Traffic, crowds, or loud music really make me react and so I can't really explain why I'm not overwhelmed nowadays. Maybe neuroplasticity or habituation? I am not expecting a normal life again but it is easier than it was three years ago.

So would you say your mostly happy like before tinnitus? Or are you still depressed by it?

 

[Lorac]

So would you say your mostly happy like before tinnitus? Or are you still depressed by it?

Yes, I would say that I am mostly happy like before hearing loss and tinnitus.

I know I would be happier if I could hear sound again in my deaf ear instead of a bunch of noise, but that's just not going to happen. I had to give up playing music, my life long hobby. I can't tolerate loud venues so my social life is altered. I had to make it through a grieving process. I had to accept a new normal.

 

[DDD]

Yes, I would say that I am mostly happy like before hearing loss and tinnitus.

I know I would be happier if I could hear sound again in my deaf ear instead of a bunch of noise, but that's just not going to happen. I had to give up playing music, my life long hobby. I can't tolerate loud venues so my social life is altered. I had to make it through a grieving process. I had to accept a new normal.

My tinnitus and hyperacusis is just like yours so you inspire me. I just want to be happy.

 

[valeri]

@MrNobody ,
I have had tinnitus and reactive T or H for three years, thanks to sudden deafness in one ear. I remember how frustrating it was when people advised me to try ignoring it. I also recall feeling angry at dismissive doctors who said "they have tinnitus too". Really? Want to trade?

Nobody can tell you when things will get easier for you because all of our situations differ so much. I can tell you that I was depressed, overwhelmed, even suicidal for many months (about a year) but I don't feel that way now.

My T cannot be masked. Any and all sound makes my deaf ear react in a bad way. For example, when I drop pills into a weekly container - I hear and feel a hiss in my deaf ear with each dropping pill. Traffic, crowds, or loud music really make me react and so I can't really explain why I'm not overwhelmed nowadays. Maybe neuroplasticity or habituation? I am not expecting a normal life again but it is easier than it was three years ago.

I like your story.
I have reactive hissing and it's driving me mad.
Hopefully I can achieve the same state of mind as you.

 

[Lorac]

I like your story.
I have reactive hissing and it's driving me mad.
Hopefully I can achieve the same state of mind as you.

The reactive hissing drove me mad for many months! It made my body tense. It made me cry often. The narrative in my mind went something like this:
"Why is this happening? I hate sound! I can't live like this!"

Now, I just accept this as the weird, uncomfortable, jacked up way I experience sound. I almost feel guilty for getting used to this crap. I assume that doctors won't take this condition seriously as long as there are people like me who are able to be reasonably happy in spite of it. I want them to keep working on this though. I want the hissing to stop.

 

[Lorac]

My tinnitus and hyperacusis is just like yours so you inspire me. I just want to be happy.

I want you to be happy too.

 

[valeri]

The reactive hissing drove me mad for many months! It made my body tense. It made me cry often. The narrative in my mind went something like this:
"Why is this happening? I hate sound! I can't live like this!"

Now, I just accept this as the weird, uncomfortable, jacked up way I experience sound. I almost feel guilty for getting used to this crap. I assume that doctors won't take this condition seriously as long as there are people like me who are able to be reasonably happy in spite of it. I want them to keep working on this though. I want the hissing to stop.

Thank you!
I hope to get to the same mind frame, it's just too intrusive and sharp to not react to.
Has you reactiveness improved at all or you just don't care anymore?
Do you have hissing as a constant sound?

 

[Lorac]

Thank you!
I hope to get to the same mind frame, it's just too intrusive and sharp to not react to.
Has you reactiveness improved at all or you just don't care anymore?
Do you have hissing as a constant sound?

I do have hissing as a constant sound and I always feel it. Any exposure to sound will increase the noise and the discomfort so I still prefer quiet spaces. I don't think the reactiveness has improved much so I guess it is my reaction to the reactiveness that has improved.
I had more nonreactive noises early on....crackling, knocking, beeping, etc. I still deal with these things during spikes but the spikes are happening less frequently.

 

[Florida John]

@MrNobody Same here. High-pitched tones above 15 kHz. Nothing masks it, only perhaps loud crickets.
So you are not alone. I survived already 3 years with this craziness in my head.
Lexapro (10 mg) helps me against depression and anxiety, Remeron (only 7,5 mg) to sleep 8-9 hours non-stop. On some days (maybe 10 %) I have it milder. Some are 10/10 like today. Really tough.
T is no T. People who can mask with TV are in another league. Some have it mild, some have it really bad, with pain and H. It is what it is. Keep on fighting and pray it will lower, go away one day or you do no longer care about it.
Until then, make the best out of it.

how long you been on the lexapro? still working?