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Last night was one of the worst. The craziest noises to date. Like a firework show of tinnitus in my ears.

Today has been pretty normal. Hoping and praying it stays this way or better yet gets better and goes away soon.
5.5 months in. Still no sleep, no focus and suicidal ideation. Just because of morons who cranked speakers where even with hearing protection, it was not enough. I can't deal with this much longer I feel.
My tinnitus has been on a roller coaster ride recently… it was almost nonexistent for a lot of the day. It's cranking now though!
Had a good run and was doing well... but this disorder seems to always get you. Ears are sensitive again and new sound in my right ear when I speak. My fault I got complacent. I hope this is just a spike and will improve.
Going to use this to journal since I have literally zero people who understand what I'm going through. those super loud spikes this morning scared the shit out of me. Back to the hissing and the occasional EEEE and the dog whistles. Can hear the hiss over my son watching Lilo and stitch, on the couch with pneumonia. Have had nonstop headaches.
kaymath
@elPuritan ugh. Yeah. It's pretty terrible. Mine fluctuates sounds and swaps ears so I it's really hard when I think it's getting better or I'm getting used to it and then bam! New sound!
Last night was one of the worst it just started going crazy with sounds for no reason!

I hope you get better too. Wouldnt wish this on annnnnyone.
elPuritan
I know what you mean. I may not know exactly but i understand. I have 3 high frequency tones in my left ear all competing for a level 10 volume and a single EEEEE in my right that changes frequency and usually hangs out at a level 6-7 volume. This all started in June of this year.
elPuritan
Crazy to think that modern medicine has not figured out a remedy for this. My doctors can't figure out why this is happening and although my ENT is amazing, he is still left with guessing. Sorry to be chatting your eyes off. Anyways, hope today is somewhat better for you.
Was on a board game day for 8 hours. Everything started of good but it was alot of yelling when things happened at the board game. Not super loud but more like "NOOOO THATS MY STREET!". Been exposed for like 30 min-1 hour combined maybe. I thought i could handle it without earplugs. Today im spiking loudly (already was in a spike tho). Any tips are appreciated
Hi @Arnaudswiss when will you be starting your Neurofeedback treatments? I hope so much for you to find success with this. I applaud anyone who courageously steps forward to try whatever seems hopeful to defeat this beast that torments us. Please keep us posted about your experience. You know all of us are pulling for you!!

Where are you getting your treatments? Isabella
Arnaudswiss
Hello @Isabella 123,
Thanks for your message. I will start in early January. Did it help you in any way?

Kindly,
Arnaud
Isabella 123
I haven't had the treatments yet, still hoping to find a place to access it. In Asheville North Carolina US, can't locate anyplace near me. Please keep us posted about your outcome, good luck!!!
Who else is hopeful for the Susan Shore device?
Sodlin
I just wanna get some updates. Dont like this radiosilence. Hopefully there will be some kinda of treatment. It dosent need to go away but lowering it abit would have been nice :)
Exposed to loud ambulance siren again (which was right next to me). I'm so done with this condition. I'm so done with these possible worsenings always happening to me, it's so exhausting/tiring I can't catch a break. :(
Sodlin
Did u wear earplugs? Are u spiking?
Varda
I think tinnitus sufferers should be given a small device that emits a radio frequency that causes all sirens within 50m to be silenced. It should also cut the engine on nearby motorcycles and construction equipment and power tools. This sort of device is possible to implement with technology that currently exists. The fact that they don't proves society doesn't care at all about tinnitus sufferers.
@4Grace yeah I'm doing good. Dealing with the noise so much better. Maybe I habituated. I just try to go on every day. I miss you too and pray you will eventually get better. I just pray mine never gets worse later on down the road.
L
And you said you were never gonna get better . See you did it !
Hey mate is your nox gone? can i improve i have mild nox i can listen digital audio but i have catastrophic ocd
Joshua Macleod
only 3 months but felt like 3 years
I can really relate to that. I would check this website every hour, and otherwise just sit in as close to silence as I could. I'm sorry you're having to go through this too.
delta784
but whatever happens i have to hold on for my loved ones right? It can improve only god knows but time can heal me i am only 29
Joshua Macleod
@delta784 Hold on for you, your family, and for a future free of nox. Mine started around the same age, aptly. Keep pushing through, mate - reach out to us as and when you need it.
how is your tdcs treatment bro
W
Gonna write up a report in about a month. Its hard to say. Feels like it may have helped but its not world changing. I am going to stop treatment for awhile and see if I notice any difference. I couldn't recommend it yet.
As I'm working with AI lately and it amazes me every day I'm building hope scientific research using AI might help solving tinnitus and hyperacusis sooner than expected. 🤞
Seems i'm sentenced to take gabapentine on a daily basis. If I don't T is much more electrical/static and my ear channels burn. Resulting in a permanent headache. It sucks
Hello old friend. Miss you. Hope you are doing okay. Same old here. Too many words to describe my situation. I feel good enough to rejoin life. Just home bound. Just noise, no pain, hard but you can do it. No question.
BrOKeN_1
Sorry to hear your still homebound my friend. But glad to hear you have gotten a break from the pain. Small improvements are better then none I suppose. Be well.
Hey buddy. I miss you and love you. So happy to hear your sleep is better.
L along the way
Can I add.. i still have hope in the healing journey.. that's basically what I live on I guess.. The thing is.. without dramatisation.. t just is such a discomfortable affliction, and it interfered with my daily life in the form of having a good night's rest.. and just to experience wellbeing. Man.. I pray for these things
4Grace
You speak of euthanasia and it makes a tear run down my face. Life does not accommodate this horrific condition. I want to tell you that I understand. You are not alone. Your feelings are valid. It's okay to feel what you feel. I isolate due to extreme pain but loved ones see this is as a sign of weakness. Isolation in itself can become impossible for some.
4Grace
I wish at the least my words would be understood with my family. At this point I struggle to see how human compassion is zero. I love you brother keep the hope.
Yes, the 1,000 $ treatment. Exactly 1,200 $...
...but when you consider that I have already spent over 4,000 euros on my German tinnitus counselor, it's almost "cheap" in comparison.
hello everyone. How is everyone doing? I'm still in the trenches of the hell. It's gonna be almost 8 months and it's still the same as the day it started. I won't ever change I know that. It feels like a fucking joke tbh. I still remember the day 1 as yesterday.
Noise all the time 24/7 buzzing, static, electricity. So much worse than last year. But yeah the noise is worse, but heating to deal with the sound a lot better. I still have days I don't think I will make it, but I keep busy, keep going and try not to think about my T. It's the worst thing that has ever happened to me and my family.