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S
Remember to be gentle to yourself. This condition is tough, exhausting and sometimes it brings even the best of us on their knees. That's why we need to love ourselves more than anything. We deserve the best life we can have. You are the key to that life.
B
Has anyone had success with NeuroMed? The protocol is $5000 and I'm not sure if it's worth it or just another black hole for my money to fall into.
ECP
I'm stopping by to wish my fellow Americans a relaxing, quiet Thanksgiving tomorrow. I hope you see, smell, taste, and touch things that bring you joy.
Eric N
My tinnitus is through the roof after getting a neck ultrasound I don't understand how the test only lasted for 10 to 15 seconds and there was no noise
tobyharrixon
just wanna smoke weed and make music... what's stopping me? oh yea this brain piercing sound
cjbhab
how does marijuana effect your tinnitus? Admittedly, i was never a smoker, but I tried edibles once and it made my T go through the roof.
Flyingsheep
1.5 years on the same dosage of oral minoxidil for tinnitus reduction. Even more improvement than last update. It's very controlled and mild except for a few bad days here and there, but the bad days are manageable and I can easily forget it. Biggest quality of life upgrade I could have ever asked for. If anyone else is willing to experiment with this like I did, I hope it helps you.
Marcello
Hey man!
What is the dosage are you using per day? And what time you take it?
kingsfan
I've only heard of minoxidil spiking tinnitus. This is intriguing. I wouldn't mind a fuller head of hair either. 🤔
Nes
I'm having a huge spike. My hyperacusis has been insanely sensitive, to the point I have nausea when exposed to sounds. My ears feel weird, it's painful but at the same time it's not. I'm not sure if I removed protections too quickly as it happened the night after a discord call. Going to see ENT on Thursday.
in_the_shadows
How are you doing? I have been experiencing something similar, it's not painful but nerves are feeling kind of raw. Tinnitus is electric and fast-changing, every sound is mentally uncomfortable even though there's no pain. I suspect temporary neuro-inflammation from overexposure. Maybe try taking another break from sounds (especially digital) and take some antioxidants like NAC, it helped me in the past.
R
Hi Adam, I do not know the details of what happened to your ears (acoustic trauma?) or what treatment you underwent. Have you tried CBT? I am asking because I am also from Poland and I am seeing on regular basis a very good CBT person who specializes in tinnitus. She is helping me a lot. She also does on-line visits.
adpolandam
Hi. CBT won't work for me. The problem lies in the middle ear, inner ear, and trigeminal nerve. Thank you for the suggestion. Where are you from?
delta784
If i had no tinnitus i think i could deal with ear pain better. Its just easy tinnitus is relentless its in your brain non stop doesn't even give you time to relief.
kingsfan
Stable tinnitus that wouldn't worsen and no ear pain would be good enough for me. Trying to avoid pain and worsening is mental torture beyond just the horrible ringing and hissing.
delta784
i want to go back in time and not get these IV injections then i could be happy again this isn't me i know it :)
adpolandam
Karbamazepina, Okskarbazepina, Gabapentyna, Pregabalina, Lamotrygina, Baklofen, Klomipramina. Are these medications effective for stabbing pain in the middle ear caused by sounds, as well as for worsening tinnitus?
delta784
clomipramine yes
adpolandam
What dose are you taking and what are the positive and negative effects (t, h, n)?
delta784
my right ear exploded since 3 -4 days after my sickness it was lowest since 14 months now right ear cuts everything 15 khz very loud it has to go away again. please :(
kingsfan
What kind of illness?
delta784
cold flu like illness its gone now and my tinnitus went up like crazy
S
Yeah. I made my situation worse 6 months ago. There has been some improvement, but definitely worse. Will write post about it later.
delta784
If i don't believe this happened to me and i am constantly saying its not real am i lunatic? Or am i having hard time accepting this is my real life from now on
tobyharrixon
I completely understand you. I will turn 30 in January. Can't accept this is my life. I've found a method to end my life when I'm ready. Also dealing with chronic foot pain which makes even going for a walk and sleeping even harder. I get stressed and panicked every day but that just keeps increasing the T. So even though I'm angry and upset, even the luxury of crying or yelling in anger to release brings more suffering. I used to be able to calm myself. I just can't anymore. Sleeping is getting harder and harder. Ending it is so tempting, everyday is meaningless and I lost the strength to fight through it.

Sorry I know none of this helps. Just saying I completely understand you. Maybe if you don't have any physical pain (except your ears as I understand?) then that's a positive..
S
Give it time. I had to give up so much. Years later, I am believe it or not, a better versio of myself. Injury changed my life - forever. And strangely, for the better. Yes, I would rather have healthy ears, but without the accident, I wouldn't be the person I am today. It made me realize how fragile we are.

After years of therapy and working with myself and not giving up made me different, better man. Quite literally.

Sooner you accept your new life, the better. Think it as an new beginning. New start.
kingsfan
@Strife_84 My empathy has gone through the roof since my tinnitus began, but my patience is now nearly nonexistent. My previous self was an incredibly patient person.
Marina Moon
It's strange how easily things can change, for better or worse. Yesterday morning started off okay, worked through pain that got better in the afternoon, but then things spiraled in the evening and progressed into today. I'm so tired of being hurt. I still cannot believe that this is my reality.
delta784
Life is so unfair since 14 months and i don't think its real i just turned 30. I was harmed by a clueless doctor now she lives her life and i am having panic attacks nearly everyday. I am in pain, i am on the verge of giving up i have no emotions since 14 months. Never laughed truly. I don't think its possible to live this way. We came to this life once and i fucked up unreal.
Marina Moon
Happy almost thanksgiving everyone! I haven't logged in a quite a while but I hope and pray everyone is doing well. I'm excited for thanksgiving, my jaw pain has been acting up lately, but I hope it lets up next week because I really want to stuff my face in peace 🦃
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