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Another day in my room in plugs. So scared this Ativan taper will kill me. I'm not nearly as strong as Padraigh or Brian and look what it did to them. They have kids too. Benzos are evil.
Holding on for my son, Kai. Kai buddy I love you more than anything in this world and mommy is trying to get better for you.
Staying on my taper of Ativan at 1/4 of a 0.5 pill 3x a day. My tinnitus is insane. 10 different sounds in head and ears. I'm also having ear pain and extreme hyperacusis. I'm very scared. It seems all the suicide stories here got bad multitonal tinnitus from benzos like me. Trying to stay strong but worried I'll just be a memorial post in a few months. One tone vibrates my entire head.
I'll soon hit my four year anniversary. I'm not happy that I've made it this long. Every day has been pure suffering. Not worth it.
DamagedJoe
I'm very sorry for you. My "journey" with reactive T has only just begun. Almost 4 months now. I'm not sure yet if I want to continue living like this. I still have hope for improvement, but it's fading.
Had some setbacks this past month, and have been struggling pretty badly again. Essentially, I make some delicate progress between setbacks, and then any harsh noise exposure 100x trumps all of that, rinse and repeat. Extremely frustrating to say the least

Started reading Kevin Hogan's "Turning the Volume Down" and trying to incorporate some practices

If you have any suggestions or just want to chat/vent, I'm here
Theezy
Hey vilebubbles, sorry to hear that, I sympathize with you. The initial months after a worsening can be extremely challenging. Was there a specific incident that started this one? When I had my sharpest worsening a couple years ago I was a wreck for a long time, and the condition went up and down but very gradually improved. Have you tried or looked into any treatments?
vilebubbles
Hi theezy, I was on 2 ototoxic meds & had a noise injury. Cold turkey's my meds (bad idea!), T went mild to moderate & h came. Started benzos for TTTS, then started to taper after a few weeks and now my T is catastrophic and I'm getting pain in ears too :/
Theezy
Gotcha sorry to hear, mines been mostly noise related/random. I've never personally used benzos or any meds that spiked before, but I've seen plenty of stories where people get a lot better over time after getting off. It's super tough to be in the acute stages :/
headache, pressure in the head, pain in the ears without sound, pain on sounds and worsening noises, anxiety, depression. I've never been in such a mess as I have been since my ear problems.
clonazepam made it worse for you? how long you took mate and how old are you let me know. i have generalized panic disorder ocd.
streifzug
i've been taking it for more than 2 years now every day. after half a year i noticed that T would worsen way more often than in the years before. T started to get really extreme while trying to taper it (5%/month) and even though i reinstated it eventually, the tinnitus would not get better or stabilize after, like at all. i wish my doctor would not have prescribed it. (1)
streifzug
it's a gamble. to think i would not try ashwaganda or antidepressants but somehow i was ok with taking that shit every day until it was too late to quit... f me. if you need advice try deepseek, it seems like it does not have problems sharing medical insights. i hope you get better! (2)
You have nox mate? If i can watch tv go outside with plugs do you think i have nox?
I actually "forgot" about the incident below and i didnt spike... Weird. Last 2 days i been feeling energetic and in a good mood! :)
A severe tinnitus / noxacusis patient has 2 options. Euthanasia or torture for the rest of his life.
It looks like we are similar. Severe worsening T and benzo withdrawal. Hope you're ok
streifzug
I'm not ok :( Are you tapering atm?
vilebubbles
Yes I am. I'm not on either :(. So many alien tones in my head that don't sound like ringing or hissing at all. There are pure brain damage like tones
3 months in. We got hissing, shrieks, long lasting pure tones, static, wind, rattling like a snake. It's all just chaos and all the sounds take turns every few seconds / minutes. Never the same. Hard to get used to but I'm getting better at not reacting/ignoring. Volume wise it's hard to tell because some sounds are louder than others and some days it all seems louder/ quieter.
Sat in the back of my friend's revved up car not warned how goddamn loud it would be - Having a noise increase :/ I still don't really feel all that polite jamming my fingers in my ears every time its loud, but sometimes you need to I suppose!