New profile posts

hey, Joe. I am also Jo. nice to meet you. I see you are struggling very much with your tinnitus. Let me tell you, the first habituation process is the hardest. ngl. You don't know how it feels like and therefore it is an endless cascade. It took me 3 years to get better. I am a very anxious person, because of childhood trauma. It will get better with time. First 1,5 years was hell. like torture. endless days. little to no sleep. nothing i could think about other than the sounds. People like me need a lot longer to habituate. So don't give up. I never thought i would habituate, but i did. I never thought i would habituate after my worsening and the drone hum.. but i did.. We don't know what the future has in store for us.

Hi Delta. How are you feeling today? Has the Clomipramine helped at all? How well are you managing your relationships? Hope I'm not too intrusive. These are all things I think about. Well wishes.

Restless legs has decided to join in now. Took a zopiclone 2 nights ago as tinnitus was raging. It didn't help much and gave me 1 hour sleep. Last night I got 2 hours broken sleep and restless legs not helping. but tinnitus was mild during the day as long as Im not around any noise other than natural sounds. Panicking again that this is how it will be forever. Trying to remember that I've had it disappear for a few hours on two occassions last week. So if it can disappear then then perhaps it can again. I don't think pills will help as I just get too anxious about side effects.

it is so crazy to me that i habe failed out of habituation two times now.. my energy is so low.. it was such a shitty year.. also landlord wants to get rid of us. i will not find a quiet place like this again..

We are all in hell. I am in hell. And i do not feel anything anymore. I am not afraid anymore. I am just exhausted. It eats away your energy. Why does this exist...

you were one of the quarterstones in my 2nd worsening. Without you... well.. don't want to think about it. Sammy, you are a machine and i know, that you fought for this so hard. I am glad, that you are doing well better now.

I just started Wellbutrin, I've been feeling so depressed and suicidal. I read that it made your tinnitus worse. I hope it's not the same for me.

okay, i know now that i have reactive tinnitus.. i need to get my head around it and don't want to make it anything worse. artifical noise is not good for me, so i need to listen to my t all the time, but since it is quieter it is okayish. Time to dig forums..

My T is bad

Hey mate. how are things nowadays? Any major improvements?

My beautiful dog, who I picked out at the shelter when I was 13, died on Dec 9th. It was sudden and I had to make the worst decision of my life. She had a tumor rupture in her abdomen and was bleeding out internally. They said this cancer is undetectable until it's too late. I couldn't save her. The grief is making my anxiety about my tinnitus horrific. I guess that's normal? I don't know. I miss my angel. I had her for 12 years and 2 days.

Well, how have things been? Any changes in your condition or life in general?

I'm rough. This setback is hitting me hard. ttts, waking up after 3 hours with it blasting and not being able to get back to sleep. Unstable - hissing/static - metallic shrill stuff that breaks me down. Loudness hyperacusis around 70db.

Hi I was wondering if you are still experiencing low humming/vibrating tinnitus? I've been experiencing this for the past week. I've had tinnitus for 9 months, but this new rumbling, vibrating head sensation is new. Wondering how you've been doing?

Been a few months since I've seen you post, just wondering how you're coping?

Just Cut The Nerve (Dr. Pulec).

Hey mate did you recover from the recent SSHL? Looking to hear back from you

was outside the WHOLE day, hard to deal with in winter, but what can you do. But.. it was really silent, as i was entering my house and i was overjoyed. Now it is getting louder again.. is this some kind of h going on? I know, that i am hearing a lot of "artifical noise is not good." i am trying to play and have twitch open beside that. Try to really focus on the words of the commentator. But it is really getting louder in the background again and soonish it was so loud as the commentator. can someone tell me? Is this h? reactive tinnitus? just artifical noises? I dont wear headphones since this this started in 2017.

Tinitus since 2023 from a 140db alarm a few seconds exposure still suffering from tinitus

spikes spikes spikes. They just don't seem to stop coming. At what point does a spike just become the new normal I wonder? And why did tinnitus magically switch off 3 nights ago. It was so blissful that I didn't sleep much. I just lay there enjoying proper peace and quiet, too scared to move in case the tinnitus started up again. Then I did sleep for the usual 3 hours and when I woke up it was still away and I just enjoyed lying there too for an hour or so but then it eventually started up again. The following night it disappeared too but it did it whilst I was asleep. I wonder if tinnitus always disappears when we sleep and that's how sleep helps as it gives out brains a rest from the ringing for a bit.

i dont know how i fall out of habituation always and always.

the severe anxiety is making my life miserable. i forgot how the sleep felt. always bad Dreams, always constant on edge.. Hum is also back.. how do you deal with that? i am currently unemployed.. so a lot of time.

Having the flu just takes this shit to a whole different level.

Don't know why, but couple of days in a row my ears have felt very good. I don't complain!

...
In October a smoke alarm caused a 5 week setback. In early November I wore a headset for a zoom meeting, then he'll broke loose again. I feel to blame at times, however was my behaviour reckless to the population at large? Since then I've been mainly homebound with loudness hyperacusis, ttts, Mem and crazy reactivity like we both experienced a couple of years ago. I'm guessing you are okay as you've not been on here for a few months.

Nick

Hi @ErikaS Just thought I would update you, as I have been reading some of your old posts. From March - September this year I had the best period since things got incredibly difficult in February 2022. I recovered from the night out in September 2024, and the reactivity disappeared for the first time in 3 years. I had habituated by May 2025.

Hi Danny, thank you for the encouragement from 12 years ago, I'm glad to report I'm still around, but I would have to say very tough going. A few weeks ago I ended up in a too noisy of a car and I've got another tinnitus spike.

It is just so frustrating that I was doing well and now I've got this ridiculous spike to contend with, it's just I'm kind of struggling and down a bit, is all, which I know no one wants to hear someone else is down, I'm not prone to depression, I'm actually normally a cheerful person, just from being able to experience everything I have, living in Canada, having access to education, all sorts of things most of the rest of the world can't even dream of, and here I am.

/ paul m. - sault ste. marie, ontario, and it's cold out.

getting T was so easily avoidable (for me). and then it worsening, and worsening, and worsening, was so easily avoidable. but nope, it all had to happen didn't it. with all kinds of physical pain now too. safe to say i did NOT handle T well.

5 year trophy... is that so. Thanks tinnitus talk. If only that calmed this atrocious spike. And so it goes. Hope some of my friends here are doing ok. I don't pop in much anymore.

i hate the fact that i am falling out of habituation again and again. It is so exhausting. It is so troublesome. I know i must conquer this, but i have no idea how. I don't know, if i can habituate again, when i know, i can get this again and again and again. Habituation is not a fix, it is like a placebo, so the millions will not get into good studies. It is so fucked up.

What makes it frustrating is that I can expose to sounds no problem, and then a few hours after or even in the morning I'll know if it was too much and if I'll spike or have a hyperacusis warning. Makes it SUPER hard to know how and when exposure is successful