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I had a very quiet head today and got quite a few things done. I wish today was repeatable but my history says it's not very likely unfortunately.
Yesterday, I went a bar where people at my table got loud, and the tinnitus is less intrusive today. I worry I'll be paying for it in a few days.
It's really intrusive today... Like on the first day. It will not get better. I know it. I hate this life.
Damn it, it's worse now. Three spikes in one day. How is this even possible. :(
Sodlin
Sounds like my average day aswell... :p It will get better! :)
orenge01
@Sodlin it did actually get a bit better, thanks. Trying to keep the hope up.
:)
On days when you feel spikes, it's best to avoid getting flu shots, COVID shots, or any vaccinations that might make you feel worse. It's more beneficial to receive these shots only on good days
I
Yep I saw. If you look at the timelines it was approved approx 11 months after closing phase 3 and because of all problems with pain management drugs I can imagine this being very strict.

It's good to keep 11 months in mind for XEN1101 after completion for a fast track approval.
Well it seems that I recovered some, but not back to where I was prior... I never thought I would find myself wishing for my old T back. I always wondered how I would be able to deal with worse... I guess I am finding out... You just do, because there is no choice. Still hoping it improves with time again.
BrOKeN_1
"You Just Do".. I couldn't say it better myself. God knows how we can manage to keep it together with tinnitus that makes onset look laughable. I can only attribute this to time served.. hope your day finds you distracted in more pleasurable activities. :)
I've often asked myself recently what little things I was annoyed and worried about back then.

I had no idea.
Tryn2BHopeful
I do this myself. How trivial those things really were. T gives you a completely different perspective on things.
Hey, has your T caused by hearing loss above 8kHz i remember reading something about it months ago. Was able to create account recently wanted to ask it and how are you wish u're ok
SharonBell
@hunu92 yeah my right ear is over 10,000 sensorineural Cochlea high frequency hearing loss and tinnitus. It's also bad in left ear. Mine is 24/7 in my head. When I first got it I thought I was going to kill myself. But I have managed to deal with it and start doing things I use to and yeah it's worse than it was before. I think mine was caused from covid.
hunu92
same for me i've got hearing loss between 10k-18k at my right ear nothing under 10k it's like brand new when u look at normal audiograms... it's sad that got undiagnosed because of that. hope it'll get better for all the people in the forum maybe we'll be able to see magic drug renews every single thing in our life time.

wish u blessings
accidentally screamed when playing videogames a loud "F**K!". Ear feels abit full but hope i will be okey :)
I have noticed the following changes since the beginning:

-there are loud and quiet days for me
-the sound in my "bad" left ear sometimes changes
-after getting up, T is usually quieter and gets louder again by bedtime
-there have been occasional days when the worst parts of my T were barely audible, but very rarely
-there are relapses, I am still very sensitive to noise at some frequencies
Hello everyone,

as of today I would like to document my progress regarding my noise-induced tinnitus.
I've had my tinnitus since October 25, 2024, so I'm currently at the beginning of the fourth month. I will try to post an update every month, or whenever there are significant changes.

I would be delighted if you would join me on this difficult journey!
Do insurance companies pay for suicide?
just1morething
Mine does after 2 years according to my agent. It's a term policy I have had for many years. It's too bad some severe health conditions make us think of ending it all.
Feb 3rd Texas Roadhouse is donating all profits for Dine In and Out orders to the ATA. I told my wife this, and she said... What is the ATA?... I am thinking where have you been the last almost 2 years. :banghead:
Since getting this it has made me want to explore audiology as a career pathway. It's alarming how many unempathetic experiences people have had with the initial realization of having tinnitus. I think about how unprepared I was at first - I think I really needed someone who got it to help me understand more face to face.
Hi Kenneth, i can relate to your story. Can you manipulate your tinnitus with neck or jaw movements? I also developed tinnitus after a period of health anxiety, and much later developed eye floaters unfortunately. How are you doing? Any developments? Take care, wish you all the best!
MrRing
Hey, sorry you can relate.

I can squeeze my jaw to make it louder. But it almost feels like a different tinnitus? It's hard to explain but I always had the ability to make my ears rumble, ring, etc. Then the anxiety attack and now I'm hearing a flat tone tinnitus with a pulsing tone on top. The pulsing isn't with my heartrate or anything like that. No neck movements or anything affect it sadly.
MrRing
It's changed once to become barely unnoticeable but I had to distract myself for a whole day. Then it came back in full force and hasn't really subsided since.
I've been having issues with sleeping and keeping positive. Only just over a month in. I remember 2 months ago before any of this started and I yearn for those nostalgic times.

How are you doing?
Could you give an update on your benzo taper? How is your tinnitus doing now? thanks!
Week 9. I'm pretty much tired of caring, but I still do. I have so many different sounds. They come and go and change ears/head. I have a static, an old car idling, a squeak, a hiss, an almost beeping sound, a saw sound cutting through a tree or an old porch swing, and a high pitch EEE. I'm tired. Don't know my baseline, it ranges from 2-5/6 maybe? Idk. What's wrong with my brain. What did those meds really do to me?
Dont think i got a spike from the incident posted below. (more then the anxiety from the incident). Got alittle bit "frustrated" playing videogame and "yelledish" which made me abit irritated in one ear so kinda got a "fishbowl" over my head atm but im pretty sure thats from tension. Other then that it actually feels pretty OK atm :cat:
at first i wanted it to go away
then i wanted it to be not as loud
then i hoped it would at least remain stable
now i only hope to survive
Over the weekend, I came down with a sore throat and runny nose. Out of curiosity, I used an expired Covid rapid test and it came back positive with two solid red lines.