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I'm thinking go to ENT today, as I barely hear my voice in two mornings now, it's quite annoying to deal with this, but good news is vibration, and echo is gone, well vibration almost gone, but the ringing is back to normal which doesn't bother me much than my hearing right now.
I want to die, my tinnitus has only gotten worse over the past six years.
Now I hear something like the sound of a vacuum cleaner, and my other sounds are more intense (high-pitched sounds, electrical sounds, the sound of a dental drill, Morse code, the sound of pipes). I can't sleep at all :(
I live locked up in my home, I don't know what is causing this worsening. Could it be the Mirtazapine?
T
hey Kam, I would say it's likely the Mirt is making it worse, you could try tapering off and detoxing your body to see if that helps?
Luman
I do not know the answer to that question, but perhaps the Mirtazapone negatively affects your mind's ability to deal with the tinnitus.
Kam75
I've been taking Mirtazapine for sleep for 4 years now. The 2 first years my sleep was not so bad. So I started to resume a social life 2 years ago but my tinnitus worsen dramatically. I haven't been to any party or loud place for more than one year and a half (and I will never go back to any party aymore). But my tinnitus keeps worsening. So it's hard for me to say if it is really Mirtazapine or Alimemazine or Quetiapine that make it worse... Life is so complicated with this damn disease :(
thanks for asking. No I haven't. I'm having a really bad day today. I washed my hair for the first time in 2 weeks and I've caused a major spike. I was on antibiotics last week and I took a sleeping tablet every day with the 7 day course. Last night was my first night off antibiotics and sleeping pills and I only slept for about an hour. Think I'm hooked on the sleeping tablets even though I only get about 4 hours sleep with them, its still better than the usual none or one hour.

I'm demented with this. I fight suicidal thoughts every day. I'm seeing a private audiologist who specialises in hyperacusis but that too is really extreme. I just don't have the energy to kill myself but this is so difficult to live with. Are you better? How do you cope with this?
henkess
I´m sorry to hear that, seems very hard to deal with. I recognize the feeling, for the first year i was struggling alot. I hade pulsating tinnitus and hyperacusis, hard to sleep. Tried strong sleeping pills, but i got hallucinations so i had to quit. Now i have propavan. My pulsating tinnitus dissapered after i got my blood pressure better. Still have tinnitus. My sleep and hyperacusis was better after one year. Was doing alot of things outside and started training and took pre workout,b5,b12. Now i have tensor tympani after my gerd operation, its impossible to get uses to. But with pottasium, magnesium, muscle relaxant, its dissapers after around 5 hours.

I think you can get better to, hope you get better soon:)
Today i was outside in the "factory" where i work and i needed to get past someone that was using an angle grinder. Was like 1 metre away from him when he started to cut thru a big pipe. Very uncomfortable but had mine SNR 35 DB moldex earplugs so i think i will be safe.
Kingsfan if it's by allergies then it be easier to recover from it, I'm hoping it's a cold like my uncle said, but however unfortunately my cousin grandmother lives around here and smokes outside, so I'm not sure if Eustachian Tube Dysfunction caused by this.
Had a meeting today at my work. I use jabra speaker for teamcalls. I thought it was very "annoying to my ears" and double checked the volume after like 5 minutes into the meeting and it was on 60% (i always got it on 20% on volume). Probably my coworkers borrowed it and increased the sounds and didnt tell me. Dont think that will hurt me but it is very annoying and aggrevated my ears quite alot.
I'm having a tough day today, and that's probably just the result of a weekend where I had to give up my comfortable solitude for two days.
I wish it could stay this way forever, for the rest of my life. The problems weren't as furious today as they are most of the time.
Not feeling good right now, I barely hear voices and my appointment is on the 27th of Octoober, I wish I can go earlier
kingsfan
I lost hearing a few days ago and it turned out to be a slight bit of fluid in the ear. Enough to cut out all high frequency hearing in one ear. It apparently doesn't take much.
R3vtune
Kingsfan, Ouch, Is this permeant for you?
kingsfan
@R3vtune No I don't think so. I think it's fall allergies.
Being in a spike really sucks, I pray and hope that it will att get back to normal soon enough, I was doing so well for the last one to two years!
I somehow managed to get myself vestibular hyperacusis or something. Nausea, vertigo and feels like my head is between a press.
I forgot to renew my Betaserc recipe. I've been without it for 3 days now and my ears are definitely worse. Louder and ears are also aching. I hope I get a new prescription soon.
i wouldnt say that sounds makes me "PANIC" the way they used to. I still spike ALOT tho and some seems to be permanent. I mostly get angry or irritated when people yell, clap their hands etc close to me that creates a spike and im like "oh crap not another spike". Its good to not get super panicky and anxiety rid but still getting the spikes is kind of the hardest thing for me to deal with since it drains my energy and make me feel like im going backwards in progress
My morse code that I had years ago is back after a new trauma. It blends with sounds like microwave, running water or A/C and it´s disgusting. Don´t know if it´s dysacusis. Talked with my wife about VAD last night. She is not totally against it, but not in the near future, we´ll see in the coming months.
S
What was your new trauma? I'm so sorry you're going through this. Did your original tinnitus just start out of nowhere?
dipp
  • dipp

    dipp

@Sonia554 I was in a store and had no earplugs left, I was just below the store speakers where they say to which checkout should you go. It was very loud. Yes, my original tinnitus started out of nowhere, since I have been slowly losing hearing with no known reason. I´m in a very bad place.
You never know the plan. You never know what's going to happen. We are not even promised tomorrow. I just try to focus on one day at a time. - Morgan Wallen -
I wanted to share this video with you-



Also, I keep reading about the fact there are only a small number of people who actually come back to tell of their success. I guess they just want to forget it ever existed for the time it did.
S
Thank you Escalado! I've seen a number of videos from people who had tinnitus and now no longer do. Mine has reduced quite a bit in the last 2 months and I believe it will keep reducing until it's gone or nearly gone. I will definitely be screaming about it from the rooftops when it happens. How is yours doing?
E
Maybe because I'm still early into this but it's not changed really. Its weird because I can go into the bathroom or living room ( when the TV is off ) and actually feel the silence for a while. Of course, I'll take that every chance I get.

One thing is certain, and thats you not doing a disapearing act once you're adequately recovered. You're getting nearer with each passing week 😊
Didn't ever believe that Susan Shore's device would work for me. But anyway, by the time it comes out I won't be able to use it because I won't be able to hear frequencies of my most bothersome T. Out of hope. Can't sleep today.
kingsfan
Yeah we just keep getting worse as they cross their T's and dot their I's and be perfectionists.
T
Does it require you to hear the frequencies your tinnitus is at?
how long do i have to endure this? susan shore device looks shit anyway and i live in turkey
We in Europe are possibly getting the Shore device in about 10 years the earliest if USA is getting it in like 6 years. Lol, thanks for nothing I guess.
Can't believe the dates shown on Auricle's stream.
cjbhab
made me sad. I was hoping to see it was 1-2 years away.
Ive been stretching my neck and jaw alot trying to release my tension i got everywhere. Also been taking walks. My tinnitus has got from 5/10 to 7/10 with doing these things. I dont understand why. Shouldnt it get lower? I wonder if i should keep going and if im onto something here or if i should stop. Takes alot of energy having it louder. its also more loud on the side i got most tension on which is weird.
kingsfan
Mine spikes for the day if I do any sort of exercise, hiking/walking included.
Sodlin
This has been 2 weeks tho :/
Developed pulsatile tinnitus, every time I lay down it sounds like a washing machine in my left ear. Been feeding ChatGPT with data about my PT now and it's been giving me some reassuring feedback that it's just positional. However might be due to Eustachian tube dysfunction. Let's see..
MindOverMatter
Might also be a variant of TTTS - Tonic Tensor Tympani Syndrome. Ive had long bouts of what you describe myself in the past, lasting for up to 6 months. It passes, eventually, every time.
Low bass tone in right ear has welcomed me a third day in a row waking up. Probably due to attending my mom's wedding last Saturday. Did my best protecting my hearing that day, even left early but man, hoping this lets up or something.