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_Shoto_
One year with T and H with zero improvements. At least no significant worsenings. Maybe some day I will be able to open semi plastic packaging again
_Shoto_
Yesterday was my first year anniversary of my T. November 30th is anniversary of my H after the doctor visit lol
delta784
Hey how is your distortions dysacusis? can it improve i am 29 yo.
in_LA
Actually yes, mine got back to normal, I'm very Lucky though, but today at Best buy someone was playing loud regetón music all night and afterwards lots of sounds ended up sounding like the music it's weird bro but it always goes away
delta784
how can i know if i had nox or not please help me
adpolandam
pain that accompanies you for several hours or days. it is triggered by normal activities such as eating chips or an empty stomach, as well as brushing teeth and many other everyday sounds.
delta784
what type of pain can it get better if its not severe? what should i do i am unsure if i have nox or not
delta784
Can i ask you something how can i know if i have nox or not ? What type of pain.
MAH1970
Hello. I was curious if your still using Gabapantin and klonopin and how they are working for you? Or if you have found any other med cocktails as I'm struggling with severe catestrophic tinnitus that only seems to get relief from Gabapantin, benzo, baclofen)
marqualler
I took this year's flu and Covid boosters on Thursday afternoon. My tinnitus was spiked a bit Thursday night and Friday, but today (Saturday) it is back to my baseline. I'm grateful for health care that protects me from getting seriously ill from viruses!
HighleyTall
Something simple like buying a new pair of shoes now has become a real challenge. Not sure if I won't to visit a shop.
HighleyTall
Because T is on the edge of the damaged frequenties (possible interaction inner and outer HC's?) my hope is eventually T will reduce because more HC's die due to aging. Maybe I'm at peak T. At least I still have hope.
Pinhead
Thinking of you. How are you?
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2049v
@Pinhead, where do you live? Are you able to work?
Pinhead
I live in the U.S. Unfortunately I have to work in order to afford any basic standard of life, although my CEO and directors have discussed my departure in indirect terms. I think I'm done. My efforts in life only seem to make things considerably worse over time. Nothing has worked out in my favor in any sense.
2049v
@Pinhead, I'm working part-time at my old job. I'm still in a very bad situation. It's like death, but I'm not dead.
Sointu
ENT said to me it isnt a surprise I havent heard in few weeks because I had so much fluid in ear and eutachian tube issues. The fluid was removed with myringotomy, now from other ear.
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Sointu
It was myringotomy without tubes. I was prescribed steroid nasal spray to help with blocked eutachian tubes and I have to keep my fingers crossed that the fluid does not come back, I am feeling optimistic. Yes, the hearing improved after the procedure but I am not sure if the hearing is in the normal level after all what I went through last weeks.
LukeYoung
@Sointu any reason they did not put tubes?
Sointu
@LukeYoung My condition has improved without tubes luckily. The fluid did not come back.
Ozhe
After 11 months of Tinnitus today I won a game. I was silent for almost an hour. The fight continued.
AverageJoe12
Hey buddy - I had my appointment with Dr. Stefane Maison at Mass Eye and Ear and signed paperwork to join a future trial for CIL001 if it becomes available. Dr. Maison mentioned hidden hearing loss or cochlear synaptopathy as possible causes of my tinnitus and hyperacusis. Their auditory research lab is top-notch, and I hope they keep getting funding to advance their work in this noisy world.
Keith Handy
(2 of 2) Was definitely inflammation and not a sudden death of thousands of cochlear hair cells like I originally feared. Still gets annoying sometimes, but a little rest, some water, and stretching my neck and jaw, and I'm better.
Keith Handy
(1 of 2) Four year mark: right now it's kinda like if I had just listened to a tape on a walkman and it's at the blank part at the end and I forgot to switch it off but there's some tape hiss. I listen to whole albums in the car and it's mostly great, with occasional annoying moments.
B
At least you were able to find a doctor. Mine won't and I'm afraid I'm going to suffer another major episode and then end up taking my life because of it. I don't even know what to do now except call emergency services and arrange for them to take me to hospital if this happens again because it will be the only thing that can save me from doing something to myself that would put an end to me.
ErikaS
Well I went from the post below to entering that time of the month and BOOM. Instant spike, increased reactivity, decreased mental and emotional tolerance, increased depression. As if this time isn't annoying enough 😣
Supersix
How is everyone doing? Please share any updates or improvements in the comments section; inquiring minds would like to know.
ErikaS
Doing some better than 2-3 months ago from major spike in August. Last day of work is January 3rd, just trying to make it until then with so much paperwork and a large student caseload. Going to do my best to enjoy the holidays 🦃 🎄❤️
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ErikaS
@Nick47 I'm so sorry, the variability is maddening and would drive the most mentally stable person crazy. Give your ears some time from those ear plugs, first time I did that it took like 6-7 months. This time seems quicker but my job is so stressful and kicking my butt, which kicks up my T.
Cmspgran
@Nick47 your description of your last 3 years is a carbon copy of my last 18 months, it's soul destroying. @ErikaS keep us posted on clonazepam progress, have you considered combining with low dose Gabapentin?
N
@Cmspgran it's as if someone is wired up to the national grid and screaming in my ears today. Then I put the radio on and they scream louder over the top of the music.
orenge01
At least I have my peltors, but I don't really want to wear them in public.
Juliane
My peltors give me problems with my neck.
orenge01
@Juliane yeah I wouldn't say they are very comfortable either but I trust them at least to stay on my ears securely, compared to earplugs :/
delta784
Hello brother going through the same mine started after prednisolone injections from my arm before that i had mild tinnitus, now i have severe t, dysacusis, hyperacusis and burning pain in my ears hundreds of floaters i am only 29 whats your problems rn?
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delta784
no its just prednisolone injections from my arm i took after sound trauma i had no hearing loss but they gave me tinnitus, visual snow, reactive t, dysacusis all of them my tinnitus moderate to severe i hear everywhere except shower. i think you can call severe
2049v
@delta784, wtf man are you serious? I was regretting so much because I couldn't get the steroids at all. I was thinking if I had at the right time I would have gotten better already but you're saying that it made yours worse...
delta784
I am serious they ruined my life i am not even joking i took them from my veins intravenous methylprednisolone for my hyperacusis i got scared to catch nox but it was gonna go away eventually now i have vss,dysacusis,h,tinnitus,reactive tinnitus all from two dose injection worst mistake of my life i will never forgive myself i will lose everything that i've own because of this. even my mental health.
HighleyTall
I avoid speaking because it elevates my T. My voice isn't used to speaking anymore, it starts cracking after a conversation of 15' at normal levels. Yesterday I had a 45' conversation one to one and T is blasting so loud it hurts, left side of my head feels numb.
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