orenge01

orenge01

Member From Finland
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  • orenge01
    "Oh but, but you are completely normal there is nothing wrong with you, you have no issues, you have no problem with doing your tasks, you are not crying constantly, you don't look distressed at all, you've been managing fine. Which means you are fine."

    Ugh...
    orenge01
    Also funny how you are almost expected to function normally/unstressed with all this added pressure from external unchangeable factors and other bs. Almost like having a four legged animal walk with one leg instead of four and somehow expecting it to behave the exact same way and at the same capacity/efficiency as it did before. Absolutely ridiculous.
    orenge01
    Lovely how unfair things can feel and you're just supposed to pretend everything is fine. I'm tired of pretending.
    orenge01
    I feel this spike is going to be permanent. I don't know what to do. Like I said I am tired, so damn tired of
    this...

    Just noticed there is a new tone... Fml :grumpy:
    Sodlin
    Lately my TT has been having so many tones thats i cant even "hear it" its like so many sounds that i cant even find the original TT by all the other sounds. Its weird. I know 1 is from muscles since i only hear it when i "do things" like bend over to pick stuff up and etc but im around 3-6 sounds now depending how im feeling.
    orenge01
    Tinnitus louder and more reactive now. :grumpy: Hopefully this spike will subside. Next time I'll remember to bring the earplugs I guess. :dunno:
    orenge01
    Kinda regret going to a certain social gathering on christmas without earplugs, now my ears are killing me :(

    well I guess it's ok. I'll try to be more careful next time. Now I at least know that less noise also spikes me...
    orenge01
    Exposed to loud ambulance siren again (which was right next to me). I'm so done with this condition. I'm so done with these possible worsenings always happening to me, it's so exhausting/tiring I can't catch a break. :(
    View previous comments…
    orenge01
    @Sodlin I did wear earplugs, although they were albeit loosely on (because they dont want to stay in my ears properly for some reason and usually pop out), thanks for asking. I don't think I'm spiking I'm probably fine now. But yeah there are a lot of loud sounds to be aware of avoiding. Yeah not fun. :/ nvm I do seem to be spiking at least currently, oh man this condition is a piece of work...
    Sodlin
    Glad to hear ur doing better! I know what u mean. Went to a "boardgame evening" with alot of laughter and occationally people yelling because somthing happend at the game. Was having alot of fun but got a superspike from it which ive been dealing with for soon 2 weeks now. very frustrating stuff :p
    orenge01
    @Sodlin yup it's good to have fun though, boardgame evening does sound fun. But yeah the spike is always there as a side effect unfortunately :/
    orenge01
    It's gotten worse now I feel... Screaming 24/7 tinnitus in my ears now especially left ear for a few days now. I really hope it calms down and goes back to it's initial baseline, it's hard to concentrate properly in this noise :(
    2049v
    Hello, as far as I can see, your tinnitus also started with headphones. Is yours severe and 24/7? How would you describe your level?
    View previous comments…
    2049v
    mine is so severe, suicidal level since it started 7 months ago
    orenge01
    I feel bad for you man. I wish you could find some relief from it, it truly is awful. :(
    Sodlin
    "Sometimes it can suddenly jump to a 7-8 but that usually lasts 30 seconds or something like that." had this a TON when my TT were new. Pretty sure its a stress/muscle thing. Even healthy people get it :)
    orenge01
    The effects of these conditions seem downplayed. I don't feel it's talked about, taken seriously enough because, I mean the damage is permanent ffs. Most docs are like just learn to live with it. Not so helpful advice. I guess only those who have it actually know the severity of it. The true effects of damage just haven't been talked/warned about it seems. It's frustrating to say the least. :grumpy:
    LukeYoung
    Tinnitus talk can be great for connecting us who experience the same feelings and problems. you can feel somewhat HEARD. It's a terrible disorder, and very down played, but you're right. No one will understand unless they have it. It's like that for many things i guess.
    dreamer16
    ''don't look for it and you won't find it''. Works perfectly when it's mild. But when it's worse, I just can't ''not hear it'' even when I'm not listening for it. Sorry just needed to vent.
    orenge01
    No need to be sorry, it's perfectly fine. I agree with what you said. It's an awful condition, all we can do is keep waiting for a cure, and distracting ourselves from the noise. Even if you can hear it, not thinking about it is probably the best thing you can do :/
    orenge01
    Man. It's just exhausting. It always seems to be: worry/stress about other stuff + this condition. The fucking cherry on top.
    adpolandam
    Hej. Jak tam twoje uszy?
    orenge01
    Hey thanks for asking! My ears are ok I guess no drastic changes that I've noticed. It's always a bit stressful though going outside. Especially because of the problem I mentioned earlier :/
    orenge01
    Quite a rowdy day, was around a lot of noise unfortunately, very close to some loud construction site. I had earplugs but yeah, constantly having to adjust them so they sit correctly is definitely a problem... Kind of debating if I should go back to the simple foam ones, at least they stay in my ears.
    orenge01
    At least I have my peltors, but I don't really want to wear them in public.
    Juliane
    My peltors give me problems with my neck.
    orenge01
    @Juliane yeah I wouldn't say they are very comfortable either but I trust them at least to stay on my ears securely, compared to earplugs :/
    orenge01
    Earplugs keep falling out of my ears :/ idk if this is even viable, I might have to try different tip sizes. Kinda nervous to do that though since last time I went one size higher and it felt uncomfortable but might be because I didn't insert it correctly idk. This is annoying.
    View previous comments…
    orenge01
    @weehiru Yeah I've heard of them but, I've also heard people thought they were uncomfortable so I don't know if I will be able to wear them for a long commute. But maybe I should still give them a try, it's at least cheaper than buying custom earplugs from an audiologist.
    T
    Buy custom-moulded silicon earplugs. I use GN Sleep plugs (Australia). Cost $152/pair. Knocks off ~40dB off ambient sounds. I have them in for most daytime hours.
    orenge01
    @trevl That's my problem, those are really expensive... Maybe someday but I can't afford that right now. :/
    orenge01
    I wish I could go back to my previous baseline so bad now... :(
    orenge01
    Isn't it awesome to get blasted with literally every sound like the whole day. Totally didn't happen to me today, even with earplugs, holy shit, you can't make this shitty luck up...
    orenge01
    Seems like I'm fine. Gotta be more careful next time, I seem to lose my balance quite easily...
    orenge01
    I just fell on the stairs and hit my head... Just my luck... Hopefully nothing changed and things are normal. I hope
    orenge01
    no pain anymore it was probably something else causing that, but the ringing still persists in my left ear. Very loud. :/
    orenge01
    I just realized some songs don't sound the same to me anymore they sound so different, I think I have actually officially permanently worsened my hearing. :(
    snizzleberry
    How does the music sound? What happened?
    orenge01
    @snizzleberry I don't know how to explain it but I guess it's that I don't hear some frequencies anymore. So some songs sound like less lively than before. As I can't hear every element in the song.

    How this happened? I was making music for too long at low volume but then accidentally listened at max volume for 1 sec and listening to high end frequencies. But basically I was just really reckless.
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