Recent content by Charlie396

So interesting to hear everyone's different audiologist stories. From full of hope success stories to 'well, just wait and see what happens'

Same.

Oh man, AM 101 memories. I remember the car salesman pitch the site coordinator gave us when he heavily implied so many people were cured when given the real drug.

Hey guys, figured I'd come back to tell my story since it's been exactly 2 years since tinnitus reared it's ugly head. Apologies in advance as this is probably going to be long winded My name is Charlie. My tinnitus is the classic high pitched dentist drill, a new wavy metallic sound has been...

We all tried many a'remedy during the first few desperate months.

it took nearly 4 months for me to get anything, didn't even get gas covered although they said they would. never received anything from the second round of injections

Such a heartbreak. Meanwhile I still have my smug site coordinator begging me to return. Fat chance after all this.

I wouldn't hold my breath. Shady would be the optimal word to describe my experience with this whole process.

Amen

Hi everyone. It's been a while. Been quite a few months since I had the open label injections. Zero improvements. Only difference is slightly louder T I assume because of loud noises at my job. Haven't bothered going to the last hearing test/blood draw and don't really feel inclined to even...

Well my aloof doc let the needle actually slip out of his hand during my second day my first round. Hurt like hell, he just says 'oop's and re-did it. Well today I told my site coordinator I officially quit. Zero side effects zero changes since February. Guess the drug doesn't affect some people.

I think I'm pretty close to being done guys. Exactly one month ago I had the open label round injections. For 1 week the T was a little louder due to my right ear feeling clogged. Only lasted about a week though. Aside from that, absolutely zero improvement or changes. No spikes, no tonal...

Shit, sounds like a few of us are trying to weather storms. Stay strong is I guess all we can do. I kinda wish past participants would make appearances here and there and give 'I went through similar experiences but things are gonna be ok' pep talks.

@TC426 how are you doing now?

48 hours since the final open label injection. Hearing is really muffled. T is definitely louder. God I hope this goes away. How's everyone else doing?