Recent content by Freddie

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    Retigabine (Trobalt, Potiga) — General Discussion

    Hi Danny can I ask you please that when you were using Kepra and Campral how much of these did you use and did you take them at the same time along with the Trobalt, were they easy to come by or do you need a description, apologies for so many questions just that I need to get some more trobalt...
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    10 Years with Tinnitus — Major Spike 2 Months Ago — Now It's Better!

    Hello Megatron, I have had the noise now for nearly two years and I still find I am totally freaked out by it and just wish that someday I could get my peace back that I know I never will so I always am in awe of those people that say they have habituated. I try to live my life as best as I can...
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    Retigabine (Trobalt, Potiga) — General Discussion

    Hi Geo, yes I did get an element of relief and some days were better than others but I do think by the sounds of it that 3x300 may have a better effect, are you on anything at the moment to ease the T at all ?
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    Retigabine (Trobalt, Potiga) — General Discussion

    Hello there Danny just want to ask you. I unfortunately ran out of my trobalt just over a week ago so I can sense another trip to Spain coming on which is where I purchased my last amount as you did I think, I was on about 6oo a day 200x3 and ideally really by the sounds of it I should have...
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    Retigabine (Trobalt, Potiga) — General Discussion

    Hi Danny Boy, I am now down to my last pack of 200mg of which I bought quite a bit when I was in Spain last year, so i might have to go back for another visit as this is one of the few places I know where you can easily get this over the counter presumably similar for you ? Maximum dose I ever...
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    Collecting Names of People Who Used to Have Tinnitus

    Hi Julian, what actually did you do to make your tinnitus get better after 20 years as that must have been incredible for you and how long were you on the diet for and are you still on some sort of diet, how wonderful it is to hear of your great success any advise would be much appreciated...
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    Retigabine (Trobalt, Potiga) — General Discussion

    Hi there all and wonder if i can have some advice please as well. At the moment I am on 500mg a day and about to increase tomorrow to 600mg so therefore 3 x 200 over the day, my aim is to get to about 8 or 900 a day and see what happens as at the moment I have just entered my fourth week and...
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    Retigabine (Trobalt, Potiga) — General Discussion

    Hello there locoyeti Sounds like you have had some relative good success with the drug, i have some that I may start to take soon but I am waiting to see if I am accepted onto the AUTIFONY trial here in London first, but my question to you is can you tell me please what sort of dosage you took...
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    Some Help Please...

    Thank you all so far for your help and support it is good to know I am not alone out here I know I am one of many but at times you can feel so isolated and see everyone around you like you used to be it hits you some times how we all suffer, mind over matter and all that need to stay positive...
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    Some Help Please...

    Hi all, really need some help, really do, i am struggling today and for the very first time ever I wish I was not here for some reason, my T is really loud and so affecting me and my well being my life is not anywhere close to what it was and I cannot ever see it being that way again, ever. I...
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    A Supplement That Resolved My Tinnitus

    Hello there James, where did you order yours through as nothing seems to show on Amazon UK site? Thank you, Freddie
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    Trembling

    Hello there, can I ask any of you here if you experience this at all.? Virtually every morning when I awake and also at certain times during the day I can feel myself trembling and seems to be more apparent at times in my right hand, I remember having this at this time last year after my T...
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    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Hello chamferman great to hear that you are on the study, do you mind me asking what hospital it was that you went to, I have an appointment at Birmingham this week, ideally the UCL in london would have been far better for me but they seem to have not to get their out patients organised yet, so...
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    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Hello Gill, I did that telephone questionnaire as well and passed and as I have had mine for about 13 months I do fit into their criteria so at the moment I am waiting to be contacted with an appointment for the screening trial, this is at the UCL in London. They e mailed me last week to say I...
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    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Hello there Lisa sorry for a delayed reply but I wanted you to know that I did in the end manage to talk with someone at UCL, they require a referral from your GP, I actually managed to get an email address so I then checked if they received the letter which they did and their last conversation...