Jsm_Joestar

Jsm_Joestar

Member From Netherlands
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  • Zigs
    Hey! If you see this please could you get in touch and let me know how you recovered after March 2022? If you could give some details of what you did eg how much you protected, what you could handle etc and then how you progressed? Thank you
    Jsm_Joestar
    I think it was mostly the passage of time. I tried to stay physically active by walking in the morning with muffs on when the streets were empty. i worked out at home. ate healthy, took cold showers. started doing antiinflamatory stuff like eating ginger and just protecting froms stuff that triggered my nox
    Jsm_Joestar
    just came back from a 10 day vacation in japan it was amazing. Did moderatly loud stuff and it didnt effect me. i flew 4 times in total
    Jsm_Joestar
    Doing great, my life is back to normal. Hope yall are hanging in there. Remember that most people leave the forum after recovering
    TheCapybara
    Glad to hear it man. If you end up leaving entirely, I hope you'll stay fine and won't have any more hearing issues in the future :)
    Jsm_Joestar
    thx for the nice words Capy. Knowing myself i might come back here and there just to raise morals. hope you are doing and are going to be doing great
    Jsm_Joestar
    largely recovered but so scared of sounds. im conditioned to feel lots of anxiety around digital noise that i dont control.
    View previous comments…
    Mo8409
    Do you still have T or is it gone?
    Jsm_Joestar
    @Joshua Macleod i definetly understand why thats the case. this was really mental and withouth a doubt the worst time in my life. i believe i can get over the fear with time
    Jsm_Joestar
    @Mo8409 Stil have T just less tones and its way more stable. i honestly dont care about my T 90% of the time. I had decently bad nox and thats almost gone or gone. hard to tell because im afraid of exposure
    Jsm_Joestar
    I keep getting better and i feel very good regarding my ear problems.
    View previous comments…
    Jupiterman
    Keep this up and you won't want to come back here.

    Give it two more months then post in the success stories.
    Jsm_Joestar
    @TheCapybara never had distortions. Just things sounding louder, burning/stabbing pain and T spiking. Dw im very carefull and those loud things were hard to avoid
    Jsm_Joestar
    @Jupiterman i already dont feel the need to comeback but i sometimes want to check on some people and i wanted to share this progress to give people strenght
    Jsm_Joestar
    (3/3) Most of the time i realise that im just afraid at this point and the pain im expecting isnt coming. Did very loud things these weeks
    Jsm_Joestar
    (2/3) I think i can handle way more than i do right now. Its hard to put myself in some situations because my phonophobia blocks me
    Jsm_Joestar
    (1/3) An update on my situation. My nox is largely gone and my T is pretty stable. I watch videos every day, listen to music. Hangout again
    Jsm_Joestar
    Do we need to make an introduction post before we make other posts? i want to make a postive update and post a succes story of someone here.
    Christiaan
    Hoe gaat het trouwens met jou? Is jouw tinnitus mild of heb je er vrij veel last van?
    View previous comments…
    Christiaan
    Nee hoor, dat vind ik niet erg om toe te lichten. Ik heb zeker pijn ervaren toen ik hyperacusis had.
    Christiaan
    Ik weet nog dat ik in het begin niet op straat wilde zijn, want elke voorbijrijdende auto maakte zo'n geluid waarbij mijn oren brandden en het net voelde alsof er een dolk door mijn trommelvlies werd gestoken. Daarna werd het gelukkig gaandeweg minder en bleven de symptomen vrij mild. Sinds 10 maanden heb ik geen symptomen meer.
    Jsm_Joestar
    @Christiaan Basiccaly i said i wanted to become a good psychologist because of this and im happy that your symtoms are gone now in regards to Hyperacusis
    tiniturk
    Hi, fellow Nederlander! Your profile posts really gave me hope, thanks for posting!
    Jsm_Joestar
    ah you come from the land of kaas aswell. np stay strong @tiniturk. If it keeps improving and stays well ill write a success story
    Jsm_Joestar
    (2/2) Feeling great these months. T is alot more stable and idk if it even spikes these days. I do alot of stuf withouth protection now
    Jsm_Joestar
    (1/2)Feeling way better. Nox feels 90% healed. I listnen to music everyday. I have started to watch videos again and everything.
    Jsm_Joestar
    got white earwax in both ears. my doctor said that my left ear(the bad one with nox) was red but not infected. anyone know what this is?
    Jsm_Joestar
    (2/2) i felt some liqued that seemed to be draining out of my ear while sleeping. Gonna let someone else check this out
    Jsm_Joestar
    (1/2)Test results were in. My gp said they found nothing odd in my ear. I do have white discharge coming out Im skeptical about the results
    Jsm_Joestar
    Went to the gym today but left after 5 min. Music was way to loud even with peltor optime 3s on. Not gonna risk it
    BrOKeN_1
    I've been looking into maybe getting a bowflex. Get away from the free weights for a time
    Jsm_Joestar
    @BrOKeN_1 That would be amazing if you have room for that. It also saves money in the long term because you dont have to pay for a membership
    Jsm_Joestar
    anything i should watchout for when getting eardrops? like the contents
    Jsm_Joestar
    Went to my GP again. My ear canal and drum are still red and she sent a sample to test for bacteria. I might get eardrops.
    stacey
    What caused your ear canal and drum to get red? What caused the inflammation I mean
    Jsm_Joestar
    @stacey i wore alot of foam earplugs and i think that irritated my ear to much and even cut it a bit.
    Jsm_Joestar
    Active ingredients TRIAMCINOLONACETONIDE. Excipients ACETIC ACID (E 260), CONCENTRATED PROPYLENE GLYCOL (E 1520) WATER, PURIFIED
    View previous comments…
    Damocles
    Well, Triamcinolone is just a topical corticosteroid.

    People with T may rightly be suspcicious (or in some cases over-zealous) where taking corticosteroids are concerned, but this is just a topical solution we're talking about.

    The 0.00001% of the solution that makes it beyond the skin of the affected ear canal is unlikely to make a noticeable (or unnoticeable for that matter) change to your tinnitus.
    Damocles
    To give you some perspective, I've used Neomycin (a highly ototoxic anti-biotic) ear drops for several ear infections over the last 14 years, and my tinnitus is no worse (not as a result of them, anyway).
    Jsm_Joestar
    @Strawberryblonde @Damocles thx for the replies. Yea i wasnt taking any risks and thought it would be best to ask people here before taking anything. Im going to take it this sunday and i only have to take it for a week.
    Jsm_Joestar
    My GP looked into my ear and said that my ear canal and drum are inflammed. She prescribed some eardrops. Could this possibly worsen my T/H?
    S
    What are these drops called? You can always check on here to see others experiences. But remember everyone will react differently.
    Jsm_Joestar
    I only got the dutch name. But they are Acid drops with TRIAMCINOLONACETONIDE. I put the ingredients in another post on my page. I wil pick it up today and see if i got a name then
    KoolKat
    also the whole What If stuff, has plagued my mind for the past decade. its the story of my new life. i Also didnt know you got this very recently in 2020 and so im very sorry man. i wish we could of met on a forum talking about DBZ or something cool. Hopefully you dont have to deal with this for a decade like me. but i do think about What id accomplished or where would I be if tinnitus never existed.
    View previous comments…
    Jsm_Joestar
    @KoolKat i cant imagine having it for a decade. My t started in 2020 but it was a 1/10 i did have H but only experienced pain from noises above 80 db and really bad audio. It got really bad 1 year ago (exactly today). It did get alot better and i hope ill be able to keep recovering
    KoolKat
    @Jsm_Joestar Yep so much. i cant believe my own freaking brain is holding me or should i say US hostage like this. I hope too buddy we all get cured from this very soon, cause this aint the way to live. Life is already hard WITHOUT TINNITUS smh
    KoolKat
    @Jsm_Joestar I hope you dont ever have to live having it for a decade and i hope i dont have 2 have it for 2,3,4 decades. i had a very very brief thing with H / acoustic shock. but that was a decade ago, so im lucky in that department. the thing with this condition however is its always 1 step forward 5 backwards.
    Jsm_Joestar
    Anyone else get pain from foam earplugs?
    View previous comments…
    Jsm_Joestar
    @Strawberryblonde I hope you are doing oke with your earpain. I have been there (inserting alpine plugs to deep) that really stings.
    S
    Sounds like it's more the plugs causing you the pain rather than H sound. If it only happens when you use them then itll be that.
    Im doing ok today its eased off but not fully, ive kept them out my ears for 2 days. @Jsm_Joestar
    Jsm_Joestar
    @Strawberryblonde Im happy to hear that it has eased off. I hope it continues to diminish. I took a gap year and need to work until may to have enough money for my bills. After that ill go withouth plugs and see if my earpain goes away.
    Jsm_Joestar
    (2/2) lights and some neon speakers drove by us blasting the loudest music i have heard in a while. That was a crazy encounter.
    View previous comments…
    Jsm_Joestar
    @Ken219 He might with what he is doing. I told my other friends about this ecounter and they said that he is well known in my city. I thought it was a one time thing but he patrolled infront of my flat yesterday.
    Ken219
    @Jsm_Joestar I have that in my neighborhood as soon as I hear them coming my index fingers go quickly in my ears! As soon as I hear a loud sound from the distance fingers in the ears! It works!
    Jsm_Joestar
    @Ken219 Its the most simple yet effective technique. No wonder most people do it on reflex when loud noises occur.
    Jsm_Joestar
    (1/2)5 min ago i was chilling with a friend who wanted to hangout today. We went outside a bit when suddenly a guy on a bike with Neon
    Jsm_Joestar
    (2/2) I got advised to buy a digital to analog converter to improve the sound quality of the speaker i want to buy. Im excited to try it out
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