Recent content by Keith D Mitchell

  1. Keith D Mitchell

    Carbamazepine (Tegretol, Equetro)

    I don't come around here much, but I did want to sound off on Carbamazepine. I started taking it a year or so ago as I developed MEM/TTTS on top of my tinnitus, which sucks. After months, my ENT mentioned Carbamazepine could help, and I've tried it. It doesn't affect my tinnitus at all, but it...
  2. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    How did you make out? I'm still in the same place, wiht multiple docs trying to push Nortriptyline on me. I had one give me Cabramazepine for 5 days, which was barely enough time to see if it worked, but it seemed to help calm my ear down. But they won't give it to me again, Nortriptyline is...
  3. Keith D Mitchell

    Confirming Middle Ear Myoclonus (MEM) Diagnosis with Botox?

    I know this is super duper late, but... you were symptom-free for 15 years. Did the muscles grow back and attach? Did you ever have that looked at again?
  4. Keith D Mitchell

    Be Honest. Do You Still Enjoy Life?

    I haven't posted in a bit, mainly because I've just been dealing. Some days have been amazing, others not so amazing. Like today, started off fine, had an argument with my daughter and then my tinnitus started making new sounds. Hopefully, it's temporary and if not, then I'll cope with it. I...
  5. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    I did get X-rays. One chiropractor says I have misalignment but this new chiro does not believe so. I've attached them.
  6. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    The last few weeks have been weird. Between using Sleepytime tea, and being completely tired, I've had some good rests. I've also experienced bouts of my ear fluttering out of nowhere, with clicking, for 15-30 minutes or longer. Last night it woke me up around 3 AM. That was fun. Today, I saw...
  7. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    The problem is this specific ENT organization has a monology on ENTs. If you were an independent ENT, they would offer you a job that you couldn't refuse. So all the good ENTs end up there. It's hard to find an ENT that's not part of this organization. An ENT I used to go to and was fantastic...
  8. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    I was half tempted to take a Q-tip and show the ENT how much fluid was coming out of my ear. When I did it, and I know I shouldn't, the top of the Q-Tip was so soaked that it falls apart.
  9. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Just an update. I came back from my GP and he says there's definitely some fluid in my ear which could be causing the clicking. My ENT said there was none, but the GP says my ear drum is not transparent and he sees white deposits the inside of my ear. Seriously, what's with these ENTs?
  10. Keith D Mitchell

    I Have Both Tinnitus and Pulsatile Tinnitus — The Latter Is Triggered by Certain Body/Head Movements

    The clicking sound is similar to what I developed back in February 2021. Random sounds, walking, talking, blowing my nose, exhaling all cause my right ear to click. My ear also has clear liquid that discharges, never colored. That sounds stops whenever the stimuli stop. I've tired Flonase...
  11. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Once again @Greg Sacramento, thank you for your input and wisdom. I'm not sure how much different a chiro is from a physical therapist, but if you're recommending it, I'm doing it.
  12. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    The sound is more like a hollow, metallic click. It's not very loud but if I'm listening, I hear it. What's driving me crazy is that it started a few months back. I thought it was an infection, but my damned ENT refuses to give me something for an ear infection until an allergy test. Which is...
  13. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Also, I realized that clicking noise persists even if I plug my ear and gets worse when I'm tired. Or it randomly goes crazy for 10 to 20 minutes.
  14. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Hello, I was hoping you'd see this post. A bit of an update. I saw a TMJ doctor last Friday. He said my mouth was fine. No reason to be concerned about the popping. So it's the spine straightening and correcting the C1 and C2. Honestly I don't know if that will help me. I definitely don't want...
  15. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Coping. I had some chamomile tea that helped me sleep last night. The tinnitus isn't so bothersome today, but the anxiety is still sky high. My mom gave me a Bible today after talking to her about everything I've gone through.